PeDRA

Pediatric Dermatology Research Alliance

Education

Webinar: Understanding EB Biology and Recent Advances in EB Clinical Research and Q&A Session

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Hosted on January 11, 2021. PeDRA President-Elect Anna Bruckner, MD, MSCS gave a presentation on basic biology underlying EB and recent advances in EB clinical research. Webinar sponsored by Amryt Research Ltd. Understanding EB Biology and Recent Advances in EB Clinical Research and Q&A … [Read more...] about Webinar: Understanding EB Biology and Recent Advances in EB Clinical Research and Q&A Session

Webinar: EB-101 Clinical Development Update and Q&A Session

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Hosted on November 12, 2020 in partnership with Abeona Therapeutics, this webinar presented cutting edge clinical development updates towards the treatment of epidermolysis bullosa. The webinar featured presentations from Jean Tang, MD, PhD (Professor of Dermatology, Stanford University Medical … [Read more...] about Webinar: EB-101 Clinical Development Update and Q&A Session

Series: Emerging Therapies for Moderate-to-Severe Atopic Dermatitis in Children

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Moderate-to-severe atopic dermatitis is associated with negative impacts on quality of life and health outcomes in all age groups, with the impact on children and families being uniquely severe. However, the rapid pace of drug development and uncertainty around novel medications may impact the … [Read more...] about Series: Emerging Therapies for Moderate-to-Severe Atopic Dermatitis in Children

Town Hall: Impacts of COVID-19 on Children with Dermatological Disease

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In collaboration with PeDRA, GlobalSkin hosted a virtual townhall on June 30, 2020 with Dr. Kelly Cordoro and Dr. Amy Paller to discuss the impact of COVID-19 on children and action being taken by the pediatric dermatology researchers. GlobalSkin, also known as the International Alliance … [Read more...] about Town Hall: Impacts of COVID-19 on Children with Dermatological Disease

Webinar: Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes

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Olivia Davies, MD discusses the findings of a recent publication - Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes. … [Read more...] about Webinar: Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes

Podcast: A Roadmap for Navigating the New Eczema Treatment Landscape with Dr. Eric Simpson

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Through a special partnership with Global Parents for Eczema Research (GPER), PeDRA co-hosted a podcast interview with Dr. Eric Simpson from OHSU on June 5, 2020.  The podcast features a roadmap of new and emerging eczema treatments and Q&A with a small group of parents and early career … [Read more...] about Podcast: A Roadmap for Navigating the New Eczema Treatment Landscape with Dr. Eric Simpson