Sponsored Webinar: New Developments in Patients with Epidermolysis Bullosa. In partnership with Amryt Pharma, Lara Wine Lee, MD, PhD and John Browning, MD, FAAD, FAAP, MBA presented a live webinar […]
Moderate-to-severe alopecia areata (AA) is associated with negative impacts on quality of life and health outcomes in all age groups. However, the impact on children living with this disease and […]
Hosted on February 10, 2021. Learn how to promote your science via social media channels. Featured presenters Dr. John Harris, and Dr. Daniel Sugai shared their experiences with social media […]
Hosted on January 11, 2021. PeDRA President-Elect Anna Bruckner, MD, MSCS gave a presentation on basic biology underlying EB and recent advances in EB clinical research. Webinar sponsored by Amryt […]
Hosted on November 12, 2020 in partnership with Abeona Therapeutics, this webinar presented cutting edge clinical development updates towards the treatment of epidermolysis bullosa. The webinar featured presentations from Jean […]
Moderate-to-severe atopic dermatitis is associated with negative impacts on quality of life and health outcomes in all age groups, with the impact on children and families being uniquely severe. However, the […]
Tune in to hear Jennifer Schoch, MD from University of Florida discuss her research in the microbiome and eczema, and learn about the value of PeDRA funding.
Olivia Davies, MD discusses the findings of a recent publication – Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes.
Lisa Arkin, MD presents the findings of a recent PeDRA study: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis.
Co-founding PeDRA member, Anna Bruckner, MD, MSCS provides an overview of what clinical research is, how it works, who benefits, and why it’s important.
Both webinars in this miniseries are now available! Watch and listen as Suz Schrandt, JD discusses the important role patients play in capturing meaningful data and how PeDRA investigators can […]
Learn about the PCORI Award PeDRA received in 2019, as well as patient centered proceedings from the 2019 Annual Conference. Audio Only Below