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PeDRA

Pediatric Dermatology Research Alliance

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        • Parents, advocates, and patients over the age of 18 with a direct connection or significant interest in childhood skin disease or pediatric dermatology research are encouraged to join the PeDRA network for free as Community Members.

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        • Save the Date! The 2023 PeDRA Annual Conference will be held November 9-11, 2023 at the Westin Buckhead Atlanta in Atlanta, GA.

           

           

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        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

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Patients and family members: what PeDRA means to you!

The Pediatric Dermatology Research Alliance (PeDRA) is a collaborative research network, providing a platform for scientists in the field of pediatric dermatology to collaborate and conduct research. PeDRA includes more than 280 scientists across more than 130 institutions as well as patient advocacy organizations, industry partners, and other supporters committed to improving the lives of children with skin disease. PeDRA works by identifying important research questions, providing support to help studies succeed, and building an empowered community through conferences and education.

PeDRA offers educational resources for patients and families.

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What is pediatric dermatology research?

Research is a broad term and can involve many different ways of exploring scientific questions. Examples you may hear about include “bench research” (in a laboratory) or clinical trials (testing new drugs). Whatever the means, the common goal of research is to help us better understand diseases and ultimately help patients and family members like you!

Scientists focus on their research over long periods of time and meet many challenges along the way. Funding to keep studies going, having the necessary equipment and technology, and being able to collaborate with other experts are some common examples of hurdles that researchers experience.

Clinical Trials and Research Studies

As a patient (or caregiver to a patient), participating in pediatric dermatology research might involve simple activities such as describing how you feel, answering questions about your experiences, or even just monitoring what happens over time with your skin. Also, sometimes tests such as blood draws or skin biopsies might be involved in skin research. Clinical trials are a type of research where volunteers try new treatments to see if they are safe and effective. Patient safety is always a major priority in any research study or clinical trial, and anyone considering getting involved in research should talk to their health care provider.

Find clinical trials
Find PeDRA studies

Each month, PeDRA shines a light on a different patient community, highlighting the incredible work of patient advocacy organizations, the patient journey, and importance of research.

Watch the latest

Getting Support

PeDRA is dedicated to connecting patients and families with advocacy and support groups. Whether you are struggling with a recent diagnosis or facing the daily challenges of a disease, there are organizations and resources that can help! PeDRA proudly partners with many patient advocacy organizations to ensure the patient voice is reflected in the research we do.

Find Support

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