PeDRA

Pediatric Dermatology Research Alliance

For Patients

Webinar: Blistering severe cutaneous adverse reactions in children: proposal for paediatric-focused clinical criteria

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Blistering severe cutaneous adverse reactions in children: proposal for paediatric-focused clinical criteria

Blistering severe cutaneous adverse reaction in children: proposal for pediatric-focused clinical criteria. Dr. Michele Ramien summarizes a collaborative study on blistering severe cutaneous adverse reactions (SCAR) in children. It’s very important to diagnose these reactions early and accurately as they can be life-threatening. The study created categories that are more appropriate for diagnosing pediatric patients than what existed in the past. Watch to learn more about the impact on patients and next steps. Note to listeners: please turn up your volume.

Michele Ramien, MD

Dr. Ramien is a pediatric dermatologist and Associate Professor of Pediatrics at Alberta Children’s Hospital Research Institute.

    Webinar: Influence of Gender and Sexual Identity in Adolescent Skin Health

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    Influence in Gender and Sexual Identity in Adolescent Skin Health

    Dr. Markus Boos discusses the influence of gender and sexual identity in adolescent skin health. His findings reiterate the importance of recognizing implicit bias and ensuring sexual/gender minority (SGM) children are being treated with the same holistic, respectful care as non-SGM children. Watch to learn more.

    Markus Boos, MD, PhD

    Dr. Boos is an attending pediatric dermatologist at Seattle Children’s Hospital and Assistant Professor in the Department of Pediatrics.

      Webinar: Demographic Factors and Infantile Hemangioma Characteristics

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      Association of Demographic Factors and Infantile Hemangioma Characteristics with Risk of PHACE Syndrome

      Dr. Colleen Cotton discusses the findings of her most recent collaborative study – Association of Demographic Factors and Infantile Hemangioma Characteristics with Risk of PHACE Syndrome. Learn more about hemangioma patterns that might suggest greater or lower risk for PHACE Syndrome and how to identify a high-risk patient for a full PHACE Syndrome work up.

      Colleen Cotton, MD

      Dr. Colleen Cotton is an Assistant Professor of Pediatric Dermatology and a pediatric dermatologist at the Medical University of South Carolina.

        Webinar: Body Site Distribution of Pediatric-Onset Morphea and Association with Extracutaneous Manifestations

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        Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations

        Dr. Yvonne Chiu discusses the findings of her most recent collaborative study – Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations. Learn about the different morphea categories, and whether or not certain locations of linear morphea are risk factors for extracutaneous involvement.

        Yvonne Chiu, MD

        Dr. Yvonne Chiu is an Associate Professor of Dermatology and Pediatrics at the Medical College of Wisconsin and a staff pediatric dermatologist at the Children’s Hospital of Wisconsin.

          Webinar: Clinical Features, Prognostic Factors, and Treatment Interventions for Ulceration in Patients with Infantile Hemangioma

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          Clinical Features, Prognostic Factors, and Treatment Interventions for Ulceration in Patients with Infantile Hemangioma.

          This collaborative study examined the effectiveness of current interventions like propranolol and other beta blockers for the treatment of ulcerated infantile hemangiomas. Learn more about the study and whether features in patients and/or hemangiomas can help predict how long an ulceration might take to heal.

          Esteban Fernández Faith, MD

          Dr. Fernandez Faith is Assistant Professor of Pediatrics and Dermatology at the Ohio State University and Program Director of the Pediatric Dermatology Fellowship at Nationwide Children’s Hospital.

            Webinar: Hidradenitis Suppurativa in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients

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            Hidradenitis Suppurative in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients

            This international, multicenter, retrospective, cross-sectional study of 481 pediatric patients revealed a gap in diagnosis, and that HS patients are likely to suffer from other comorbidities. Learn more about the study, recommendations for managing patients with HS, and recommendations for future research.

            Irene Lara Corrales, MD

            Dr. Lara Corrales is an Associate Professor of Pediatrics at the University of Toronto and a staff physician in Pediatric Dermatology at the Hospital for Sick Children in Toronto, Canada. 

              Town Hall: Impacts of COVID-19 on Children with Dermatological Disease

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              In collaboration with PeDRA, GlobalSkin hosted a virtual townhall on June 30, 2020 with Dr. Kelly Cordoro and Dr. Amy Paller to discuss the impact of COVID-19 on children and action being taken by the pediatric dermatology researchers.

              GlobalSkin, also known as the International Alliance for Dermatology Patient Organizations (IADPO), is a nonprofit organization supporting more than 160 patient associations across more than 50 countries. They seek to improve the lives of patients with all skin disease through advocacy, education, networking, and research. To learn more, visit the GlobalSkin website.