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PeDRA

Pediatric Dermatology Research Alliance

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        • Parents, advocates, and patients over the age of 18 with a direct connection or significant interest in childhood skin disease or pediatric dermatology research are encouraged to join the PeDRA network for free as Community Members.

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        • Save the Date! The 2023 PeDRA Annual Conference will be held November 9-11, 2023 at the Westin Buckhead Atlanta in Atlanta, GA.

           

           

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        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

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About

To address the devastating burden of pediatric skin diseases, and overcome challenges facing clinician scientists in the field, the Pediatric Dermatology Research Alliance (PeDRA) has created an infrastructure for efficient, collaborative research.  PeDRA was formed in 2012 by leaders from the Society for Pediatric Dermatology (SPD) with the goal of bringing together pediatric dermatologists from across North America to collaborate on research that would never be accomplished on a meaningful timescale were any investigator to take it on alone.  In this way, PeDRA is generating meaningful data to support health care decisions and improve the lives of patients and their families, while building a community of linked and research-ready clinician scientists in the field of pediatric dermatology.

PeDRA is a collaborative research network, providing a platform from which pediatric dermatologists organize studies and collaborate, while also supporting individuals embarking on early-stage research that may or may not benefit from collaboration in future. Pooling resources and linking investigators together multiplies the power of each individual clinician scientist many-fold. With more than 450 clinician researchers representing more than 150 institutions, PeDRA is accelerating research and bringing us closer to new treatment opportunities for children and families living with dermatologic conditions and diseases.

PeDRA is an independent 501(c)(3) nonprofit organization that works in close collaboration with, and serves as the research arm of, the Society for Pediatric Dermatology (SPD). PeDRA is committed to supporting diversity, equity, and inclusion across all facets of its organization, programs, committees, leadership, and research studies.

Birth of the PeDRA Acronym. A group of founding members devised the name for PeDRA at the 2010 SPD Annual Meeting in Portland, OR. As a fitting premonition for the research foundation that leaders would go on to build, PeDRA also means “rock” in Portuguese. From left: Wynnis Tom, MD; Jeff Sugarman, MD, PhD; Amy Paller, MD; Kelly Cordoro, MD. Photo credit: Raegan Hunt, MD, PhD

Mission and Vision

The PeDRA Mission

Create, inspire, and sustain research to prevent, treat, and cure childhood skin disease.

The PeDRA Vision

Changing lives and healing children with skin disease through collaboration and discovery.

Board of Directors

Anna Bruckner, MD

President
Executive Committee

University of Colorado

    Keith Choate, MD, PhD

    President-Elect
    Executive Committee

    Yale School of Medicine

      Leslie Lawley, MD

      Treasurer
      Executive Committee

      Emory University

        Lisa Arkin, MD

        Chair, Meetings Committee
        Executive Committee

        University of Wisconsin

          Carrie Coughlin, MD

          Chair, Outcomes Committee

          Washington University

            Elena Hawryluk, MD, PhD

            Chair, Early Investigator Committee
            Executive Committee

            Harvard Medical School

              Raegan Hunt, MD, PhD

              Chair, Grants Committee

              Baylor College of Medicine

                Francesca Tenconi, MBA

                Chair, Patient Advisory Committee

                Children’s Skin Disease Foundation

                  Andrea Zaenglein, MD

                  Chair, Studies Committee
                  Executive Committee

                  Penn State Health

                    Updated November 7, 2022

                    Ilona Frieden, MD

                    Immediate Past President
                    Executive Committee

                    University of California, San Francisco

                      Yvonne Chiu, MD

                      Member at Large
                      Executive Committee

                      Medical College of Wisconsin

                        Esteban Fernandez Faith, MD

                        Vice Chair, Meetings Committee
                        Executive Committee

                        Nationwide Children’s Hospital

                          Jen Huang, MD

                          Chair, Equity, Diversity, and Inclusion Committee
                          Executive Committee

                          Harvard Medical School

                            Jeffrey Sugarman, MD, PhD

                            Chair, Nominating Committee

                            University of California, San Francisco

                              Megha Tollefson, MD

                              Member at Large
                              Executive Committee

                              Mayo Clinic

                                Interested in getting involved on a PeDRA Committee or as part of PeDRA’s Leadership?  Become a member and then let us know how you want to be involved!

                                Meet the PeDRA Team

                                PeDRA is supported by a small group of staff who each play a unique role supporting the organization, its programs, and its research activities.

                                Mike Siegel, PhD

                                Executive Director

                                Mike Siegel joined PeDRA in 2018 following four years in nonprofit leadership and almost ten years in academic research and teaching. He seeks to strengthen PeDRA as an organization that brightens the future of children with skin disease and their families.

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                                Jenn Dawson

                                Associate Director of Educational Programs

                                Jenn Dawson brings more than 15 years of mission-based nonprofit experience to her role overseeing PeDRA’s education and podcast activities. Jenn specializes in program development and works closely with key stakeholders to make sure the educational needs of members are being met.

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                                Caitlin Haskell

                                Communications Manager

                                Caitlin Haskell brings more than ten years of experience in strategic communications, events, and academic recruiting to her role at PeDRA. Caitlin is responsible for engaging the PeDRA community through all modes of communication.

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                                Amy Buros Stein, PhD

                                PeDRA Biostatistician

                                Amy Buros Stein is an expert in a variety of advanced statistical analyses and has contributed to more than 60 peer-reviewed publications in clinical, epidemiological, and basic science research. Dr. Stein provides centralized statistical support to PeDRA Members working on PeDRA Studies.

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                                Eunice Bolay

                                Intern

                                Eunice Bolay is a graduate student pursuing a master’s degree in chemistry at Georgia State University. She has over 3 years of experience working with underrepresented communities and nonprofit organizations and will be supporting the 2023 PeDRA Annual Conference in Atlanta, GA.

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                                David Roberts

                                Development Director

                                David joined PeDRA in 2019 following more than 15 years of nonprofit development and fundraising experience.  David’s experience and commitment to serving children in need will help PeDRA with the growing field of pediatric dermatology.

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                                Katherine Devenport

                                Research Coordinator

                                Katherine Devenport brings with her five years of experience as a clinical research coordinator for the Medical College of Wisconsin. Katherine’s knowledge and attention to detail help in her role supporting PeDRA’s studies and grants programs.

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                                Heather Miller

                                Events and Membership Manager

                                Heather Miller brings more than 20 years of event planning experience for nonprofit organizations to her role in planning the PeDRA Annual Conference. She also manages PeDRA’s growing membership program ensuring members are connected to resources within PeDRA.

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                                Morgan Dykman

                                PeDRA Fellow

                                Morgan Dykman is a third-year medical student at the University of Minnesota. She brings experience with the Dermasphere Podcast and PeDRA’s Down Syndrome subgroup to her role at PeDRA where she provides support to the Board of Directors, membership, Annual Conference, and consensus guidelines activities.

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                                Learn more about our past PeDRA Fellows.

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