PeDRA is committed to providing education to researches that helps them conduct successful research, enjoy productive careers, and make an impact on the lives of patients and families. PeDRA is also committed to providing education to patients and families that helps them engage with reserach in a meaningful way, communicate with scientists, and understand what it means to get involved in studies and clinical trials.
For Patients and Families
View PeDRA’s Session at the 2020 Society for Investigative Dermatology Virtual Meeting. https://youtu.be/ntimFWfn3mQ
This presentation includes an overview of the collaborative research process, an overview of the support that PeDRA provides at each stage, and links to external resources intended to help PeDRA Studies get off the ground and succeed. full toolkit here Audio Only Below
Short videos from Basecamp on how to use it.
Lisa Arkin, MD presents the findings of a recent PeDRA study: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis. https://youtu.be/-uSPcmZAg48 Lisa Arkin, MD is the Director of Pediatric Dermatology and Assistant Professor of Dermatology at the University of Wisconsin, Madison. She has been a member of PeDRA since it’s inception and has served on…
Co-founding PeDRA member, Anna Bruckner, MD, MSCS provides an overview of what clinical research is, how it works, who benefits, and why it’s important. Anna L. Bruckner, MD, MSCS Dr. Bruckner is Associate Professor of Dermatology and Pediatrics and at the University of Colorado School of Medicine and Director of Pediatric Dermatology at Children’s Hospital…
Both webinars in this miniseries are now available! Watch and listen as Suz Schrandt, JD discusses the important role patients play in capturing meaningful data and how PeDRA investigators can engage them as strategy partners in data collection. Part One: Patients as Data Partners Part One: Patients as Data Partners SlidesDownload Part Two: Patients as…
Learn about the PCORI Award PeDRA received in 2019, as well as patient centered proceedings from the 2019 Annual Conference. Audio Only Below