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Pediatric Dermatology Research Alliance

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Archive

Webinar: Demographic Factors and Infantile Hemangioma Characteristics

July 28, 2021 By Jenn Dawson

Association of Demographic Factors and Infantile Hemangioma Characteristics with Risk of PHACE Syndrome

Dr. Colleen Cotton discusses the findings of her most recent collaborative study – Association of Demographic Factors and Infantile Hemangioma Characteristics with Risk of PHACE Syndrome. Learn more about hemangioma patterns that might suggest greater or lower risk for PHACE Syndrome and how to identify a high-risk patient for a full PHACE Syndrome work up.

Colleen Cotton, MD

Dr. Colleen Cotton is an Assistant Professor of Pediatric Dermatology and a pediatric dermatologist at the Medical University of South Carolina.

    Filed Under: Archive, Education, For Patients

    Webinar: Body Site Distribution of Pediatric-Onset Morphea and Association with Extracutaneous Manifestations

    April 15, 2021 By Jenn Dawson

    Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations

    Dr. Yvonne Chiu discusses the findings of her most recent collaborative study – Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations. Learn about the different morphea categories, and whether or not certain locations of linear morphea are risk factors for extracutaneous involvement.

    Yvonne Chiu, MD

    Dr. Yvonne Chiu is an Associate Professor of Dermatology and Pediatrics at the Medical College of Wisconsin and a staff pediatric dermatologist at the Children’s Hospital of Wisconsin.

      Filed Under: Archive, Education, For Patients

      Webinar: Catalyzing Your Research: From Idea to Action

      April 15, 2021 By Jenn Dawson

      Live webinar on Tuesday, April 27, 2021 at 5:30 PM PT / 8:30 PM ET. So you’ve got the funding, now how do you make the research happen? Hear from three funded PeDRA investigators and learn how they assembled their teams, tackled the paperwork, and got their projects off the ground. Don’t miss this great opportunity to learn from their experiences!

      This program is run in partnership with the Society for Pediatric Dermatology Junior Faculty/Fellows Committee.


      Catalyzing Your Research: From Idea to Action
      Tuesday, April 27, 5:30 PM PT / 7:30 PM CT / 8:30 PM ET

      Hosts: Lisa Arkin, MD and JiaDe Yu, MD
      Speakers: Elena Hawryluk, MD, PhD, Lucinda Kohn, MD and Leo Shmuylovich, MD, PhD

      watch now

      Speakers

      Elena Hawryluk, MD, PhD

      Elena B. Hawryluk, MD, PhD is a board-certified Dermatologist and Pediatric Dermatologist, and Assistant Professor of Dermatology at Harvard Medical School, where she serves as the Faculty Director of Pediatric Dermatology for the Harvard Combined Dermatology Residency Program.  After graduating from Carnegie Mellon University with degrees in Computer Science and Biological Sciences, she completed her medical degree (MD) and PhD (Cell Biology and Molecular Physiology) at the University of Pittsburgh School of Medicine’s Medical Scientist Training Program.  Dr. Hawryluk completed her internship at St. Vincent Hospital, followed by dermatology residency at Harvard Medical School, where she served as a Chief Resident.  Subsequently, she undertook advanced fellowship training in Pediatric Dermatology at Boston Children’s Hospital and was supported by the Dermatology Foundation’s Fellowship in Pediatric Dermatology award.  She serves on committees for the American Academy of Dermatology and Society for Pediatric Dermatology and is the Chair of the American Academy of Dermatology’s Melanoma and Skin Cancer Community Program Committee. Dr. Hawryluk has a clinical interest in pigmented lesions and melanoma, particularly in the pediatric population.  She has authored both primary research and review articles on melanoma and pigmented lesions and has delivered presentations at regional and national meetings on these topics. She has been supported by the Society for Pediatric Dermatology and Pediatric Dermatology Research Alliance’s Weston Career Development Award and the Dermatology Foundation Pediatric Dermatology Career Development Award.

        Lucinda Kohn, MD

        Lucinda Kohn, MD is an Assistant Professor of Dermatology at the University of Colorado, Anschutz Medical Campus and practices pediatric dermatology at the Children’s Hospital of Colorado. Dr. Kohn’s main area of academic interest is focused on increasing access to pediatric dermatology care for all children. She is affiliated with the Centers for American Indian and Alaska Native Health at the Colorado School of Public Health and is particularly focused on addressing disparities in dermatology care in American Indian and Alaska Native populations. Her overall career goal is to develop high quality, ethical, and replicable programs to expand pediatric dermatology to American Indian and Alaska Native youth.

          Leo Smuylovich, MD, PhD

          Dr. Shmuylovich is a Pediatric Dermatologist in the Division of Dermatology and a postdoctoral scholar in the Optical Radiology Laboratory at Washington University in Saint Louis, Missouri. He is at the start of his career as an MD/PhD dermatology physician scientist. His training has included both a Bachelors of Science in Chemical Engineering and a Physics PhD, and inspired by his quantitative background, he is focused on developing novel tools that objectively measure skin disease. The research mission of his lab will be the development technologies that provide all patients with access to accurate diagnosis and management of skin disease and improve treatment outcomes. 

            Filed Under: Archive, Education for Researchers

            Virtual Journal Club – April 2021

            April 15, 2021 By Mike Siegel

            Filed Under: Archive

            Webinar: Clinical Features, Prognostic Factors, and Treatment Interventions for Ulceration in Patients with Infantile Hemangioma

            April 1, 2021 By Jenn Dawson

            Clinical Features, Prognostic Factors, and Treatment Interventions for Ulceration in Patients with Infantile Hemangioma.

            This collaborative study examined the effectiveness of current interventions like propranolol and other beta blockers for the treatment of ulcerated infantile hemangiomas. Learn more about the study and whether features in patients and/or hemangiomas can help predict how long an ulceration might take to heal.


            Esteban Fernández Faith, MD

            Dr. Fernandez Faith is Assistant Professor of Pediatrics and Dermatology at the Ohio State University and Program Director of the Pediatric Dermatology Fellowship at Nationwide Children’s Hospital.

              Filed Under: Archive, Education, For Patients

              Webinar: Hidradenitis Suppurativa in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients

              April 1, 2021 By Jenn Dawson

              Hidradenitis Suppurative in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients

              This international, multicenter, retrospective, cross-sectional study of 481 pediatric patients revealed a gap in diagnosis, and that HS patients are likely to suffer from other comorbidities. Learn more about the study, recommendations for managing patients with HS, and recommendations for future research.


              Irene Lara Corrales, MD

              Dr. Lara Corrales is an Associate Professor of Pediatrics at the University of Toronto and a staff physician in Pediatric Dermatology at the Hospital for Sick Children in Toronto, Canada. 

                Filed Under: Archive, Education, For Patients

                Webinar: Gene Therapy for Large Chronic RDEB Wounds

                March 18, 2021 By Jenn Dawson

                Live webinar on Wednesday, April 14, 2021 at 5:00PM PT / 8:00PM ET. Hosted in partnership with Abeona Therapeutics, this webinar will provide an overview and update on gene therapy for large chronic wounds in recessive dystrophic epidermolysis bullosa (RDEB), with a presentation from Jean Tang, MD, PhD, Professor of Dermatology, Stanford University Medical Center and Principal Investigator, EB-101 pivotal Phase 3 VIITAL study. There will be a moderated Q&A following the presentation.


                Gene Therapy for Large Chronic RDEB Wounds, sponsored by Abeona Therapeutics
                Wednesday, April 14, 2021 5:00 PM PT / 8:00 PM ET

                Speaker: Jean Tang, MD, PhD

                watch now

                Jean Tang, MD, PhD

                Professor of Dermatology, Stanford University Medical Center AND Principal Investigator, EB-101 pivotal Phase 3 VIITAL study. Dr. Tang’s research focuses on genetic skin diseases such as Basal Cell Nevus Syndrome and Epidermolysis Bullosa. She studies new ways to treat and prevent NSMC and melanoma. Dr. Tang has led or co-led the conduct and completion of 6 investigator initiated clinical trials in BCC and EB. She received her MD/PhD from Stanford (Biophysics), completed her dermatology residency at Stanford, and then went to UCSF for a 3 year post-doc in mouse genetics, while simultaneously pursuing formal coursework in biostatistics, epidemiology, and clinical trial design in the KL2 CTSI program.

                  Filed Under: Archive, Education

                  Survey 101 – Building a Research Survey

                  March 8, 2021 By Mike Siegel

                  This three-part series of short on-demand webinars provides a high level overview of the design, execution, and analysis of an online research survey. Covering everything from building a survey team, to sampling techniques, to data collection and preparation for publication, this series will position investigators for success and protect the time and attention of busy survey respondents. If you are interested in submitting a survey for dissemination to PeDRA and/or SPD members, please visit our survey page to learn more and apply.

                  Each on-demand webinar includes multiple chapters addressing important topics related to survey design, execution, and analysis. Use the scroll bar in the video window after clicking “Watch Now” to navigate between the chapters.


                  Part 1: Laying the Foundation for a Successful Survey
                  ON-DEMAND

                  Chapter 1: Introduction
                  Chapter 2: Building a Team
                  Chapter 3: Characteristics of a Good Objective
                  Chapter 4: Qualitative vs. Quantitative Surveys

                  Watch NOW

                  Part 2: Designing an On-Line Survey
                  ON-DEMAND

                  Chapter 1: Sampling Techniques
                  Chapter 2: Samples Sources and Size
                  Chapter 3: Sample Size for Qualitative vs. Quantitative Surveys

                  Watch now

                  Part 3: Preparing a Survey and Gathering Data
                  ON-DEMAND

                  Chapter 1: The Survey Outline
                  Chapter 2: Validity vs. Reliability
                  Chapter 3: Types of Data
                  Chapter 4: Data Collection and Reporting Considerations

                  Watch now

                  Presenter

                  Erin Schulz, MS

                  UX and Market Researcher
                  LaunchBox

                  For nearly 20 years, Erin Schulz has been a principal researcher at LaunchBox, a research firm in the Pacific Northwest. At LaunchBox, Erin works with clients in designing and conducting primary research (quantitative and qualitative). She has worked on a variety of projects, for example, those related to healthcare (including NIH grants), consumer technology, aerospace, and recreation. Prior to joining LaunchBox, she was a researcher at Intel, Microsoft, and Boeing with a focus on human-computer interaction and the user experience.

                  In her career as a researcher, it became increasingly clear that decision makers, as consumers of research, could benefit from a solid understanding of basic research methods. For over a decade, she had the pleasure of teaching research methods at the University of Washington Graduate School, department of Human Centered Design & Engineering. Erin is particularly interested in research methodology, specifically the role and interpretation of inferential statistics and distinctions between quantitative and qualitative methods.

                  She holds a BA in English and MS in Human Centered Design & Engineering from the University of Washington. Erin is also a former reviewer for the IEEE Transactions on Professional Communication with a focus on empirical studies.

                    Filed Under: Archive, Education

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