Association of Demographic Factors and Infantile Hemangioma Characteristics with Risk of PHACE Syndrome Dr. Colleen Cotton discusses the findings of her most recent collaborative study - Association of Demographic Factors and Infantile Hemangioma Characteristics with Risk of PHACE Syndrome. Learn … [Read more...] about Webinar: Demographic Factors and Infantile Hemangioma Characteristics
Archive
Webinar: Body Site Distribution of Pediatric-Onset Morphea and Association with Extracutaneous Manifestations
Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations Dr. Yvonne Chiu discusses the findings of her most recent collaborative study - Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations. Learn about … [Read more...] about Webinar: Body Site Distribution of Pediatric-Onset Morphea and Association with Extracutaneous Manifestations
Webinar: Catalyzing Your Research: From Idea to Action
Live webinar on Tuesday, April 27, 2021 at 5:30 PM PT / 8:30 PM ET. So you've got the funding, now how do you make the research happen? Hear from three funded PeDRA investigators and learn how they assembled their teams, tackled the paperwork, and got their projects off the ground. Don’t miss this … [Read more...] about Webinar: Catalyzing Your Research: From Idea to Action
Virtual Journal Club – April 2021
Webinar: Clinical Features, Prognostic Factors, and Treatment Interventions for Ulceration in Patients with Infantile Hemangioma
Clinical Features, Prognostic Factors, and Treatment Interventions for Ulceration in Patients with Infantile Hemangioma. This collaborative study examined the effectiveness of current interventions like propranolol and other beta blockers for the treatment of ulcerated infantile hemangiomas. … [Read more...] about Webinar: Clinical Features, Prognostic Factors, and Treatment Interventions for Ulceration in Patients with Infantile Hemangioma
Webinar: Hidradenitis Suppurativa in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients
Hidradenitis Suppurative in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients This international, multicenter, retrospective, cross-sectional study of 481 pediatric patients revealed a gap in diagnosis, and that HS patients are … [Read more...] about Webinar: Hidradenitis Suppurativa in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients
Webinar: Gene Therapy for Large Chronic RDEB Wounds
Live webinar on Wednesday, April 14, 2021 at 5:00PM PT / 8:00PM ET. Hosted in partnership with Abeona Therapeutics, this webinar will provide an overview and update on gene therapy for large chronic wounds in recessive dystrophic epidermolysis bullosa (RDEB), with a presentation from Jean Tang, MD, … [Read more...] about Webinar: Gene Therapy for Large Chronic RDEB Wounds
Survey 101 – Building a Research Survey
This three-part series of short on-demand webinars provides a high level overview of the design, execution, and analysis of an online research survey. Covering everything from building a survey team, to sampling techniques, to data collection and preparation for publication, this series will … [Read more...] about Survey 101 – Building a Research Survey