PeDRA

Pediatric Dermatology Research Alliance

Series

Survey 101 – Building a Research Survey

By

This three-part series of short on-demand webinars provides a high level overview of the design, execution, and analysis of an online research survey. Covering everything from building a survey team, to sampling techniques, to data collection and preparation for publication, this series will position investigators for success and protect the time and attention of busy survey respondents. If you are interested in submitting a survey for dissemination to PeDRA and/or SPD members, please visit our survey page to learn more and apply.

Each on-demand webinar includes multiple chapters addressing important topics related to survey design, execution, and analysis. Use the scroll bar in the video window after clicking “Watch Now” to navigate between the chapters.

Part 1: Laying the Foundation for a Successful Survey
ON-DEMAND

Chapter 1: Introduction
Chapter 2: Building a Team
Chapter 3: Characteristics of a Good Objective
Chapter 4: Qualitative vs. Quantitative Surveys

Watch NOW

Part 2: Designing an On-Line Survey
ON-DEMAND

Chapter 1: Sampling Techniques
Chapter 2: Samples Sources and Size
Chapter 3: Sample Size for Qualitative vs. Quantitative Surveys

Watch now

Part 3: Preparing a Survey and Gathering Data
ON-DEMAND

Chapter 1: The Survey Outline
Chapter 2: Validity vs. Reliability
Chapter 3: Types of Data
Chapter 4: Data Collection and Reporting Considerations

Watch now

Presenter

Erin Schulz, MS

UX and Market Researcher
LaunchBox

For nearly 20 years, Erin Schulz has been a principal researcher at LaunchBox, a research firm in the Pacific Northwest. At LaunchBox, Erin works with clients in designing and conducting primary research (quantitative and qualitative). She has worked on a variety of projects, for example, those related to healthcare (including NIH grants), consumer technology, aerospace, and recreation. Prior to joining LaunchBox, she was a researcher at Intel, Microsoft, and Boeing with a focus on human-computer interaction and the user experience.

In her career as a researcher, it became increasingly clear that decision makers, as consumers of research, could benefit from a solid understanding of basic research methods. For over a decade, she had the pleasure of teaching research methods at the University of Washington Graduate School, department of Human Centered Design & Engineering. Erin is particularly interested in research methodology, specifically the role and interpretation of inferential statistics and distinctions between quantitative and qualitative methods.

She holds a BA in English and MS in Human Centered Design & Engineering from the University of Washington. Erin is also a former reviewer for the IEEE Transactions on Professional Communication with a focus on empirical studies.

    Series: Emerging Therapies for Moderate-to-Severe Atopic Dermatitis in Children

    By

    Moderate-to-severe atopic dermatitis is associated with negative impacts on quality of life and health outcomes in all age groups, with the impact on children and families being uniquely severe. However, the rapid pace of drug development and uncertainty around novel medications may impact the shared decision-making process and lead to suboptimal treatment of many children. Thus, educating pediatric dermatologists and allergists is critical to positively affect treatment decisions and improve long-term outcomes. In addition, engaging experts in pediatric dermatology and allergy to consider what are the most important research issues in atopic dermatitis is important to direct future efforts. To address this need and help fill the gap left by canceled conferences in 2020, PeDRA is conducting a six-part educational series Emerging Therapies for Moderate-to-Severe Atopic Dermatitis in Children.      

    Being hosted by distinguished faculty in pediatric dermatology and allergy/immunology, this non-CME program will include a total of six parts, including two webinars, two podcasts, and two virtual meetings/townhalls. 

    Part 1: PEDIATRIC ATOPIC DERMATITIS – New and Emerging Systemic Therapies: An Overview
    RECORDED LIVE: Tuesday, October 6, 2020, 5:15 – 6:15PM PDT / 8:15 – 9:15PM EDT

    Chair: Lawrence Eichenfield, MD
    Speakers: Megha Tollefson, MD and Bob Geng, MD
    Panel: Wynnis Tom, MD and Dawn Davis, MD

    View Full Agenda

    5:15 – 5:20 – Introduction
    5:20 – 5:37 – Biologics – Overview and translation to practice
    5:37 – 5:49 – JAK-inhibitors
    5:49 – 6:01 – Mechanisms of action and allergy perspectives
    6:01 – 6:15 – Moderated discussion with audience

    Watch NOW

    Part 2: PEDIATRIC ATOPIC DERMATITIS – Algorithms of the Future
    RECORDED LIVE: Tuesday, October 13, 2020, 5:15 – 6:15PM PDT / 8:15 – 9:15PM EDT

    Chair: Lawrence Eichenfield, MD
    Speakers: Dawn Davis, MD and Wynnis Tom, MD
    Panel: Megha Tollefson, MD and Bob Geng, MD

    View Full Agenda

    5:15 – 5:20 – Introduction
    5:20 – 5:32 – New topicals for moderate to severe disease
    5:32 – 5:42 – New and traditional systemics: where do they fit?
    5:42 – 6:00 – Considerations when selecting appropriate therapy for the appropriate patient
    6:00 – 6:15 – Interactive discussion on “hot” research issues in moderate to severe atopic dermatitis for pediatric dermatologists and allergists

    Watch now

    Part 3: Systemic Therapy for Moderate-to-Severe AD in Children: Where are We?
    AVAILABLE NOW

    Host: Lawrence Eichenfield, MD
    Guests: Dawn Davis, MD, Bob Geng, MD, and Wynnis Tom, MD
    Guests

    LISTEN NOW:

    Subscribe to PeDRA Podcasts

    Part 4: Systemic Therapy for Moderate-to-Severe AD in Children: Where are We?
    Tuesday, December 8, 2020 5:15 – 6:15PM PST / 8:15 – 9:15PM EST

    Host: Lawrence Eichenfield, MD
    Guests: Dawn Davis, MD, Bob Geng, MD, and Wynnis Tom, MD
    Special Guests: Emma Guttman-Yassky, MD, PhD and Eric Simpson, MD

    LISTEN NOW:

    Subscribe to PeDRA Podcasts

    Part 5: Patient Perspectives on Therapies for Moderate-to-Severe AD in Children
    AVAILABLE NOW

    Host: Dawn Davis, MD
    Special Guests: Charlene Miciano and Sarah Pry

    LISTEN NOW:

    Subscribe to PeDRA Podcasts

    Part 6: Patient Perspectives on Therapies for Moderate-to-Severe AD in Children
    Tuesday, January 5, 2021, 5:15 – 6:15PM PST / 8:15 – 9:15PM EST

    An open discussion with faculty and patient advocates in follow-up to the second podcast. Bring your questions or just listen in.

    Host: Dawn Davis, MD
    Guests: Lawrence Eichenfield, MD, Bob Geng, MD, and Wynnis Tom, MD
    Special Guests: Korey Capozza, MPH from Global Parents for Eczema Research and Wendy Smith Begolka, MBS from the National Eczema Association

    LISTEN NOW:

    Subscribe to PeDRA Podcast

    FACULTY

    Lawrence Eichenfield, MD

    Chair

    Professor of Dermatology and Pediatrics
    Chief, Pediatric and Adolescent Dermatology
    Vice Chair, Department of Dermatology
    University of California, San Diego and Rady Children’s Hospital, San Diego

      Bob Geng, MD

      Assistant Professor of Medicine and Pediatrics
      Divisions of Adult and Pediatric Allergy & Immunology
      Co-Director of the Allergy Asthma Foundation of America sponsored UCSD Pediatric Severe Asthma Program
      Allergy/Immunology Director of the Multidisciplinary Atopic Dermatitis Program
      University of California, San Diego and Rady Children’s Hospital, San Diego

        Dawn Davis, MD

        Professor of Dermatology and Pediatrics
        Division Chair, Clinical Dermatology
        Director, Section of Pediatric Dermatology
        Mayo Clinic Rochester

          Megha Tollefson, MD

          Associate Professor of Dermatology and Pediatrics
          Consultant, Dermatology
          Consultant, Pediatric and Adolescent Medicine
          Mayo Clinic Rochester

            Wynnis Tom, MD

            Clinical Professor of Dermatology and Pediatrics
            Fellowship Program Director
            Pediatric & Adolescent Dermatology
            University of California, San Diego and Rady Children’s Hospital, San Diego

              SPECIAL GUESTS

              Emma Guttman-Yassky, MD, PhD

              Vice Chair for Research
              Incoming System Chair of the Kimberly and Eric J. Waldman Department of Dermatology
              Icahn School of Medicine at Mount Sinai

                Charlene Miciano

                Charlene is a college student from San Diego majoring in bioinformatics. Her experience with eczema growing up influenced her to become an ambassador for the National Eczema Association. When she’s not coding, she enjoys music in many forms, whether it be playing piano or ukulele, doing karaoke, or going to concerts.

                  Korey Capozza, MPH

                  Korey is the founder and executive director of Global Parents for Eczema Research and the mother of a child with moderate to severe eczema. Her professional background is in public health, collaborative leadership, and patient-centered research.

                    Eric Simpson, MD

                    Professor of Dermatology
                    Oregon Health and Science University

                      Sarah Pry

                      Sarah is a mother of 2, Aiden age 12 and Bayle age 8. Aiden has severe eczema. Sarah works full time as an insurance agent in TN and in what spare time she has as a mom, she plays with her kids. She also loves to advocate and learn from the experts by volunteering or helping anyway that she can.

                        Wendy Smith Begolka, MBS

                        Ms. Smith Begolka is the VP for Scientific and Clinical Affairs for the National Eczema Association (NEA) where she guides the evolution and growth of NEA’s patient-centric research and clinical care efforts across the organization and with diverse stakeholders. Prior to joining NEA in 2018, she conducted biomedical laboratory research investigating immunological pathways of autoimmune disease at Northwestern University, and for over a decade, led the development of American Academy of Dermatology clinical guidelines and the application of science to the intersecting areas of quality, education, and advocacy. Her 25+ year scientific career has focused on advancing research, the use of scientific discovery and findings to support improved therapeutic options and clinical care, and the translation of research data for educational, quality, advocacy, and policy initiatives.

                          Special thanks to Pfizer Inc. for their support of this independent medical education program.  PeDRA is solely responsible for all program content and the selection of all presenters, authors, moderators, and faculty.

                          Series: How Patients Fuel Innovation

                          By

                          Both webinars in this miniseries are now available! Watch and listen as Suz Schrandt, JD discusses the important role patients play in capturing meaningful data and how PeDRA investigators can engage them as strategy partners in data collection.

                          Part One: Patients as Data Partners

                          Audio Only
                          Part One: Patients as Data Partners SlidesDownload

                          Part Two: Patients as Strategy Partners

                          Audio Only
                          Part Two: Patients as Strategy Partners SlidesDownload

                          Suz Schrandt is a patient and patient engagement advocate with a health and disability law background. She is the Founder and CEO of ExPPect, a patient engagement initiative aimed at putting skilled patient partners in the heart of healthcare innovation. Schrandt previously served as Director of Patient Engagement at the Arthritis Foundation, and as Deputy Director of Patient Engagement for the Patient-Centered Outcomes Research Institute (“PCORI”). Her career spans work in health reform, bioethics, genetic discrimination, and chronic disease self-management, as well as a long history in patient-led clinical training. Schrandt is one of nine voting members on the FDA’s inaugural Patient Engagement Advisory Committee, the Chairperson for the International Society of Pharmacoeconomics and Outcomes Research North American Patient Roundtable, and is an invited speaker at numerous US and international conferences. Schrandt received her law degree from the University of Kansas and has co-authored multiple peer-reviewed articles on health policy and the value of patient engagement.