Patient Advisory Committee
The charge of the Pediatric Dermatology Research Alliance Patient Advisory Committee (PeDRA-PtAC) is to inject the perspectives and priorities of patients and parents into PeDRA’s research activities, and to identify high-priority, cross-disease studies to be pursued by PeDRA investigators.
Updated October 21, 2026
Sturge-Weber Syndrome community
GlobalSkin
Hidradenitis Suppurativa community
Psoriasis community
Epidermolysis Bullosa community
Ectodermal Dysplasias community
Congenital Melanocytic Nevi community
PHACE Syndrome Community
Eczema community
Vitiligo community
Scleroderma community
Eczema community
Pachyonychia Congenita community
Melanoma community
Children’s Skin Disease Foundation
Gorlin Syndrome community
Porphyrias community
Studies Committee Liaison
Interested in joining one of PeDRA’s committees?
Become a member and then let us know how you want to be involved!