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PeDRA

Pediatric Dermatology Research Alliance

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        • Parents, advocates, and patients over the age of 18 with a direct connection or significant interest in childhood skin disease or pediatric dermatology research are encouraged to join the PeDRA network for free as Community Members.

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        • Save the Date! The 2023 PeDRA Annual Conference will be held November 9-11, 2023 at the Westin Buckhead Atlanta in Atlanta, GA.

           

           

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        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

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Patient Advisory Committee

The charge of the Pediatric Dermatology Research Alliance Patient Advisory Committee (PeDRA-PtAC) is to inject the perspectives and priorities of patients and parents into PeDRA’s research activities, and to identify high-priority, cross-disease studies to be pursued by PeDRA investigators.

Francesca Tenconi

Chair

Children’s Skin Disease Foundation Representative

    Becky Abbott

    National Foundation for Ectodermal Dysplasias

      Karen Camp

      Psoriasis Parent Representative

        Lauren Isbell

        Nevus Outreach Representative

          Sarah Pry

          Global Parents for Eczema Research Representative

            Jim Rittle

            Pachyonychia Congenitia Project Representative

              Julia Terrell

              Sturge-Weber Foundation Representative

                Lara Wine Lee, MD, PhD

                Studies Committee Liaison

                  Last updated December 12, 2022

                  Jennifer Austin

                  International Alliance of Dermatology Patient Organizations Representative

                    Callista Brand

                    Hidradenitis Suppurativa Foundation Representative

                      Michelle Hall

                      Epidermolysis Bullosa Research Project Representative

                        Victoria Li

                        National Eczema Association Representative

                          Paula Quinn

                          National Alopecia Areata Foundation Representative

                            Erika Serna

                            PHACE Syndrome Community Representative

                              Meredith Weiss

                              Gorlin Syndrome Alliance Representative

                                Sam Zavitz

                                Foundation for Ichthyosis and Related Skin Types Representative


                                  Interested in joining one of PeDRA’s committees?
                                  Contact us for more information.

                                  View PeDRA’s complete organizational structure here.

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