The charge of the Pediatric Dermatology Research Alliance Patient Advisory Committee (PeDRA-PAC) is to inject the perspectives and priorities of patients and parents into PeDRA’s research activities, and to identify high-priority, cross-disease studies to be pursued by PeDRA investigators.
Becky Abbott
National Foundation for Ectodermal Dysplasias
Callista Brand
Hidradenitis Suppurativa Foundation Representative
Michelle Hall
Epidermolysis Bullosa Research Project Representative
Jerri Lauffer
PHACE Syndrome Community Representative
Sarah Pry
Global Parents for Eczema Research Representative
Jim Rittle
Pachyonychia Congenitia Project Representative
Julia Terrell
Sturge-Weber Foundation Representative
Sam Zavitz
Foundation for Ichthyosis and Related Skin Types Representative
Up to date as of November 30, 2021.
Jennifer Austin
International Alliance of Dermatology Patient Organizations Representative
Karen Camp
Psoriasis Parent Representative
Lauren Isbell
Nevus Outreach Representative
Charlene Miciano
National Eczema Association Representative
Paula Quinn
National Alopecia Areata Foundation Representative
Francesca Tenconi
Children’s Skin Disease Foundation Representative
Meredith Weiss
Gorlin Syndrome Alliance Representative