The charge of the Pediatric Dermatology Research Alliance Patient Advisory Committee (PeDRA-PtAC) is to inject the perspectives and priorities of patients and parents into PeDRA’s research activities, and to identify high-priority, cross-disease studies to be pursued by PeDRA investigators.

Francesca Tenconi
Chair
Children’s Skin Disease Foundation Representative

Becky Abbott
National Foundation for Ectodermal Dysplasias

Karen Camp
Psoriasis Parent Representative

Lauren Isbell
Nevus Outreach Representative

Sarah Pry
Global Parents for Eczema Research Representative

Jim Rittle
Pachyonychia Congenitia Project Representative

Julia Terrell
Sturge-Weber Foundation Representative

Lara Wine Lee, MD, PhD
Studies Committee Liaison
Last updated December 12, 2022

Jennifer Austin
International Alliance of Dermatology Patient Organizations Representative

Callista Brand
Hidradenitis Suppurativa Foundation Representative

Michelle Hall
Epidermolysis Bullosa Research Project Representative

Victoria Li
National Eczema Association Representative

Paula Quinn
National Alopecia Areata Foundation Representative

Erika Serna
PHACE Syndrome Community Representative

Meredith Weiss
Gorlin Syndrome Alliance Representative

Sam Zavitz
Foundation for Ichthyosis and Related Skin Types Representative