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PeDRA

Pediatric Dermatology Research Alliance

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          about PeDRA’s efforts to build capacity for patient engagement in pediatric dermatology research.

           

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          The 2021 PeDRA Annual Conference will take place October 14-15, 2021.

           

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          for the 2021 Childhood Eczema Challenge Grant being run in partnership with the National Eczema Association. Deadline to apply is May 4.

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          PeDRA is now hiring for a PeDRA Fellow to support organizational activities for the 2021-22 academic year (July 1, 2021 – June 30, 2022).

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Patient Advisory Committee

The charge of the Pediatric Dermatology Research Alliance Patient Advisory Committee (PeDRA-PAC) is to inject the perspectives and priorities of patients and parents into PeDRA’s research activities, and to identify high-priority, cross-disease studies to be pursued by PeDRA investigators.

Jennifer Austin

International Alliance of Dermatology Patient Organizations Representative

    Michelle Hall

    Epidermolysis Bullosa Research Project Representative

      Jerri Lauffer

      PHACE Syndrome Community Representative

        Sarah Pry

        Global Parents for Eczema Research Representative

          Jim Rittle

          Pachyonychia Congenitia Project Representative

            Julia Terrell

            Sturge-Weber Foundation Representative

              Sam Zavitz

              Foundation for Ichthyosis and Related Skin Types Representative

                Karen Camp

                Psoriasis Parent Representative

                  Lauren Isbell

                  Nevus Outreach Representative

                    Charlene Miciano

                    National Eczema Association Representative

                      Paula Quinn

                      National Alopecia Areata Foundation Representative

                        Francesca Tenconi

                        Children’s Skin Disease Foundation Representative

                          Meredith Weiss

                          Gorlin Syndrome Alliance Representative

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