The charge of the Pediatric Dermatology Research Alliance Patient Advisory Committee (PeDRA-PtAC) is to inject the perspectives and priorities of patients and parents into PeDRA’s research activities, and to identify high-priority, cross-disease studies to be pursued by PeDRA investigators.
Meredith Weiss
Chair
Gorlin Syndrome Alliance Representative
Becky Abbott
National Foundation for Ectodermal Dysplasias
Karen Camp
Psoriasis Parent Representative
Lauren Isbell
Nevus Outreach Representative
Sarah Pry
Global Parents for Eczema Research Representative
Jim Rittle
Pachyonychia Congenitia Project Representative
Francesca Tenconi
Children’s Skin Disease Foundation Representative
Lara Wine Lee, MD, PhD
Studies Committee Liaison
Last updated October 29, 2024
Jennifer Austin
International Alliance of Dermatology Patient Organizations Representative
Callista Brand
Hidradenitis Suppurativa Foundation Representative
Michelle Hall
Epidermolysis Bullosa Research Project Representative
Victoria Li
National Eczema Association Representative
Paula Quinn
National Alopecia Areata Foundation Representative
Erika Serna
PHACE Syndrome Community Representative
Julia Terrell
Sturge-Weber Foundation Representative
Sam Zavitz
Foundation for Ichthyosis and Related Skin Types Representative
