Scoring What Matters: Building an Assessment Tool for EB Simplex
Dr. Joyce Teng and fourth-year medical student Austin Johnson discuss their 2022 PeDRA Research Fellowship project, Epidermolysis Bullosa Simplex Disease Activity and Response Tool (EBSdart): Scoring Clinical Severity and Outcomes in Epidermolysis Bullosa Simplex. In this episode, they explore their mentorship partnership, walk through the process of developing a meaningful clinical assessment tool, and explain why standardized outcome measures are critical for advancing care and research for patients with epidermolysis bullosa simplex.
This episode originally aired in April 2024. Since then, roles on PeDRA committees and positions at institutions or organizations may have changed.











