Research In Action: Advancing Care for Epidermolysis Bullosa

Skin reactions during pediatric cancer treatment can be painful, stigmatizing, and sometimes threaten a child’s ability to stay on therapy. In this episode of PeDRA Pearls, Dr. Christina Boull and Dr. Rebecca Levy discuss PeDRA’s Skin Tumors and Reactions to Cancer Therapies (STARC) Focused Study Group and its work to prevent, recognize, and manage these toxicities. They highlight multicenter efforts spanning photosensitivity prevention, survivorship outcomes, and targeted therapy side effects—including MEK inhibitor–associated mucocutaneous toxicities—plus the need for stronger derm–onc collaboration, better trial reporting, and evidence-based consensus guidelines. Keywords: Skin Cancer, MEK Inhibitors, Consensus Guidelines, Photosensitivity

In her final episode as guest host, PeDRA Fellow Hannah Chang talks with Dr. Andrea Zaenglein and Dr. Jonette Keri about the 2023 PeDRA consensus recommendations on using combined oral […]

In this episode, we bring together two leaders in pediatric dermatology research to explore the work of PeDRA’s Connective Tissue and Autoinflammatory Disorders Focused Study Group. Dr. Kalyani Marathe, the […]

In this special episode of PeDRA Pearls, host Jenn Dawson speaks with PeDRA Fellow Hannah Chang as she reflects on her two-year fellowship experience. Hannah shares highlights from recent conferences, […]

Reid Oldenburg, MD, PhD, joins host Jenn Dawson to discuss his journey as a clinician-scientist and his leadership of PeDRA’s Drugs and Bugs Focused Study Group. He shares how early […]

This episode of PeDRA Pearls features PeDRA’s own Associate Director of Communications, Caitlin Haskell. Tune in to this delightful conversation with Caitlin and Jenn about upcoming grant deadlines, membership renewal […]

Join PeDRA Fellow Hannah Chang for a roundtable discussion with special guests Dr. Jillian Rork and Dr. Deepti Gupta. Together, they discuss a recent publication titled “Impact of Persistent Alopecia on Quality of Life in Childhood Cancer and Transplant Survivors.” This article was published in Pediatric Blood & Cancer in 2025.

This three‑part podcast series offers a clear, engaging look inside the world of clinical trials—from how they begin, to where they happen, to how collaboration across sectors drives innovation in […]

PeDRA Fellow Hannah Chang hosts a roundtable discussion with Dr. Jillian Rork and Dr. Deepti Gupta on a recent publication titled “Photoprotection in Skin of Color: A Scoping Review of Barriers, […]

PeDRA Fellow Hannah Chang hosts a roundtable discussion with Dr. Jillian Rork and Dr. Deepti Gupta about a recent publication titled: Prevalence and Demographics of Psoriasis in the Down Syndrome Population: A […]

In this episode of PeDRA Pearls, we’re joined by Meredith Weiss, Executive Director of the Gorlin Syndrome Alliance, to explore the intersection of patient advocacy, education, and research. Meredith shares her personal journey into rare disease advocacy and discusses how the GSA supports patients through community-building, clinician-led education, and a growing commitment to funding research—particularly in dermatology. Together, we highlight the critical role patient organizations play in improving quality of life and advancing meaningful, patient-centered research. Learn more about GSA grant opportunities.

In this episode of PeDRA Pearls, PeDRA Fellow Hannah Chang speaks with Dr. Milie Fang, a pediatric dermatology fellow at Seattle Children’s Hospital, about her journey into pediatric dermatology. Dr. […]