Research In Action: Advancing Care for Epidermolysis Bullosa

Educational Programs

Genetic Skin Disorders

2026

Research in Action: Advancing Care for Epidermolysis Bullosa (EB) is a new virtual education series chaired by Irene Lara-Corrales, MD, of the University of Toronto, and Marissa Perman, MD, of the University of Pennsylvania. Designed to highlight the latest advances in EB research, diagnosis, treatment, and multidisciplinary care, the series features a keynote webinar alongside a collection of expert-led webinars and podcast episodes. Bringing together clinicians, researchers, patients, caregivers, advocates, and industry partners, the program aims to explore the evolving EB landscape, foster meaningful dialogue, and identify opportunities for collaboration that can improve outcomes for individuals living with EB.

Special thanks to BioMendics, Castle Creek Biosciences, Chiesi, and Krystal Biotech for their support of the 2026 EB Educational Series. PeDRA is solely responsible for all program content and the selection of all presenters, authors, moderators, and faculty.

Part One: The Evolving Research Landscape in Epidermolysis Bullosa

In the first installment of PeDRA’s 2026 educational series – Research in Action: Advancing Care for Epidermolysis Bullosa (EB), Dr. Peter Marinkovich of Stanford University provides a timely overview of emerging therapies and clinical research in EB, including gene therapies, cell-based approaches, inflammation-targeted treatments, and strategies to improve wound care and long-term outcomes. Dr. Marinkovich includes an excerpt from Aaron Owens, a dystrophic EB patient who participated in a clinical trial. Designed for clinicians, researchers, patients, caregivers, and others involved in EB care, this program highlights recent progress in the field and the collaborative work driving better treatment options for patients.

Interested in joining our studio audience for future episodes? Email Jenn Dawson, PeDRA’s Director of Educational Programs, to learn more.