Hope, Access, and the Future of EB Care
In this episode of PeDRA Pearls, host Jenn Dawson welcomes back Emily Gorell, DO, of the University of Colorado to discuss the growing momentum within the epidermolysis bullosa (EB) community. They explore the impact of new and emerging therapies, the importance of centering patient voices, and ongoing challenges related to treatment access and adult EB care. The conversation also highlights opportunities for multidisciplinary collaboration and the vital role of patient-focused meetings in advancing meaningful progress in EB research, care, and advocacy.
Keywords: Debra Care Conference, Patient Advocacy, Clinical Trials, Epidermolysis Bullosa, Patient Empowerment
Program Guest
We gratefully acknowledge Disc Medicine for their presenting sponsorship of the PeDRA Pearls Podcast.
