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PeDRA

Pediatric Dermatology Research Alliance

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        • Parents, advocates, and patients over the age of 18 with a direct connection or significant interest in childhood skin disease or pediatric dermatology research are encouraged to join the PeDRA network for free as Community Members.

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        • Save the Date! The 2023 PeDRA Annual Conference will be held November 9-11, 2023 at the Westin Buckhead Atlanta in Atlanta, GA.

           

           

          Explore our new educational catalog!

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        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

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Get Involved

How can patients and their families connect with PeDRA?

  • Ask your dermatologist if s/he is involved in PeDRA, and ask for help finding research studies that may be helpful for your child, relative, or friend.
  • Get involved in the organization that represents patients with your disease. Have a look at the patient advocacy organizations and their websites.
  • PeDRA’s Stigma, Anxiety, and Depression in Children and Adolescents with Skin Disorders—The “Big Study” is our first to cross all PeDRA study areas. The research will assess anxiety, depression, and social functional issues in addition to stigma in children with skin diseases. This study will help us explain the burden of skin disease on children and families and the need for both support services for kids and better insurance coverage for diseases routinely called “cosmetic.”

Want to get involved?

  • Share your story! How is your child affected by his or her skin disease? For example, has s/he stopped playing sports, going to sleepovers, or doing well in school? Send in a paragraph with your story to Jennifer Dawson.
  • A picture is worth a thousand words. Send in photos of your child with his/her care team, and/or family members/care givers. Your photos help highlight the direct patient impact of our efforts to possible founders of the research. Send photos to Jennifer Dawson.
  • Donate to support PeDRA’s mission and research

Learn more about PeDRA and why it is important

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