Amplifying CMN Voices: The Power of Patient Meetings

In this episode of PeDRA Pearls, Deepti Gupta, MD, joins Jenn Dawson to discuss how patient meetings advance care and research for congenital melanocytic nevi (CMN). Reflecting on the Nevus Outreach Conference, Dr. Gupta highlights how collaboration among families, clinicians, researchers, and advocates can amplify patient voices, inspire new research questions, and improve education for rare disease communities. Dr. Gupta brings a unique perspective to this work as both a clinician-researcher in the field and a mother of a child living with CNM, providing valuable insight into both the scientific and lived experiences of this condition.

Keywords: CMN, Congenital Melanocytic Nevus, Nevus Outreach, Patient Advocacy, Research, Collaboration