Co-Principal Investigators: Alex Zvulunov, MD, MHA Ben-Gurion University Elena Pope, MD, MsC University of Toronto Overview: Mycosis fungoides is a rare type of skin cancer, increasingly diagnosed in pediatric populations. To date there is little knowledge on how to manage this condition … [Read more...] about Consensus-based recommendations for management of pediatric Mycosis Fungoides: the ARMFUL (AppRoach Mycosis FUngoides in chiLdren) study
Skin Tumors and Reactions to Cancer Therapies
Dilute bleach compresses to reduce the severity of radiation dermatitis in children with cancer
Principal Investigator Amy Paller, MDNorthwestern University Overview Many years ago, we were able to show that dilute bleach baths reduce the severity of pediatric atopic dermatitis. This simple and inexpensive technique is now standard-of-care and has benefitted children worldwide. T. … [Read more...] about Dilute bleach compresses to reduce the severity of radiation dermatitis in children with cancer
Patient education for children at risk for skin cancer
Principal Investigator: Carrie Coughlin, MD Washington University School of Medicine Overview: Though children are at risk for skin cancer and cutaneous complications of immunosuppressive therapy, there is a paucity of pediatric-specific educational materials. Moreover, there are no … [Read more...] about Patient education for children at risk for skin cancer
Melanoma and nonmelanoma skin cancer in children and young adults
Co-Principal Investigators: Jen Huang, MD Harvard Medical School Larry Eichenfield, MD UCSD Overview: This study is a collaboration of 10 major hospitals across the country with the unified goal of improving our understanding of skin cancer in children. It is a multi-center … [Read more...] about Melanoma and nonmelanoma skin cancer in children and young adults
Fatal Pediatric Melanoma Retrospective Study
Principal Investigator: Elena Hawryluk, MD, PhD Massachusetts General Hospital Overview: Pediatric dermatologists have a strong interest in better understanding pediatric nevi and characterizing melanoma; the diagnostic challenge of pediatric melanomas can delay diagnosis, lead to deeper and … [Read more...] about Fatal Pediatric Melanoma Retrospective Study
Cutaneous Findings in Children Receiving MEK and BRAF Inhibitors
Principal Investigator: Christina Boull, MD University of Minnesota Overview: This is a multi-center retrospective chart review of pediatric patients who have received MEK inhibitors and/or BRAF inhibitors to better document and describe the associated cutaneous changes. The use of targeted … [Read more...] about Cutaneous Findings in Children Receiving MEK and BRAF Inhibitors
Chronic Graft versus Host Disease
Principal Investigator: Dominique Pichard, MD National Institute of Arthritis and Musculoskeletal and Skin Diseases Overview: Chronic GVHD is a rare, but often debilitating, condition that occurs after stem cell transplant. The current diagnostic and management guidelines for cGVHD are based … [Read more...] about Chronic Graft versus Host Disease
Retrospective and Prospective Evaluation of Pediatric Cutaneous Mastocytosis
Principal Investigator: Leslie Lawley, MD Emory University Overview: This study aims to better characterize pediatric cutaneous mastocytosis through a retrospective and prospective clinical evaluation of patients over 20 years. Specifically we are evaluating the natural history of … [Read more...] about Retrospective and Prospective Evaluation of Pediatric Cutaneous Mastocytosis
