Quality of life in childhood cancer and transplant survivors with permanent hair loss: a nested observational study

Overview

Many patients think that hair loss (alopecia) is one of the most bothersome side effects of cancer treatment and stem cell transplantation. While alopecia can get better after cancer treatment is completed, nearly 1 in 7 childhood cancer survivors suffer from permanent alopecia. Children with permanent alopecia are more likely to experience depression and lower self-esteem. Yet, there is not much research on effective treatments for permanent alopecia. We also do not know if patients are satisfied with the counseling and treatment they receive about this condition. Our study will examine the quality of life for childhood cancer and transplant survivors with permanent alopecia and evaluate whether treatments help. We will also describe the unmet patient and family needs in managing this troublesome condition. Our findings will help guide future counseling and clinical care on cancer treatment-related permanent alopecia.

Status

This project was funded through a 2023 PeDRA Research Fellowship Grant.