Principal Investigator:
Jenna Rudo-Stern, PhD
Phoenix Children’s Hospital
Overview:
Young people with Inflammatory Bowel Disease (IBD) report lower quality of life (QoL) than their healthy peers. They are also at risk for developing skin conditions associated with IBD. QoL is negatively affected by skin conditions. It is not known to what extent skin conditions impact QoL for IBD patients. This gap in knowledge likely results in gaps in assessment and treatment. If providers aren’t considering how the intersection of IBD and skin conditions may affect their QoL, it is likely that children with skin manifestations of IBD are not getting adequate support, leaving them vulnerable to veering off course in their psychosocial development, potentially leading to lifelong challenges in the areas of social, academic, and professional function. There is a need for early detection and prevention of worse psychosocial outcomes, and this study proposes to investigate the association of IBD activity and skin conditions with QoL.
Status:
This project was funded by a 2024 PeDRA Research Grant.
