Understanding patient-reported outcomes in pediatric patients receiving systemic therapies for atopic dermatitis
Mentee
Hannah Chang
UT Southwestern Medical School
Mentor
Joy Wan, MD, MSCE
Johns Hopkins University School of Medicine
Overview
Atopic dermatitis, or eczema, is a skin disease that affects many children and can cause problems for their physical and mental health. It is important for doctors to understand how eczema affects children and their families directly, without interpretation by a clinician. Patient-Oriented Outcomes (PROs), or reports from patients about their own health condition, allow physicians to gain a better understanding of the full experience of eczema. New treatments are emerging for eczema, and up to one-third of children need systemic medication. This proposal aims to identify how children with severe eczema experience their condition and how patients/caregivers make decisions about treatment. We will conduct a study of children with moderate-to-severe eczema to determine how systemic therapies affect their experience and understand how PROs influence treatment decision-making. Our goal is to improve patient-centered care and treatment for children with AD.
Status
This project was funded through a 2023 PeDRA Emerging Investigator Research Grant.
