Advancing Screening and Education for Eczema in Children with Neurodevelopmental and Complex Medical Needs
Johns Hopkins University School of Medicine
Johns Hopkins University School of Medicine
Overview:
Children with eczema who also experience neurodevelopmental or complex medical conditions face unique challenges in symptom management and healthcare access, particularly in underserved settings. This exploratory study aims to evaluate and adapt existing eczema screening tools and educational strategies to better serve these vulnerable pediatric populations. Through a multi-site pilot study, the feasibility and comparative effectiveness of validated screening tools— including Child Eczema Control Tool (ECT), Atopic Dermatitis Control Tool (ADCT), Caregiver Atopic Dermatitis Control Tool (ADCT), and Patient-Oriented Eczema Measure (POEM)—will be assessed in children with diverse neurodevelopmental and medical profiles. The goal is to identify tools that are both sensitive and practical for routine clinical use. To improve care delivery, the study will co-design and pilot a digital workflow that integrates these tools into electronic health record (EHR) systems at four partnering clinics. This approach will evaluate provider uptake, caregiver engagement, and the impact on treatment decisions and healthcare utilization in resource-limited environments. Additionally, the study will analyze eczema-related content on social media platforms such as YouTube, TikTok, Instagram, Facebook, and Twitter (X). A mixed-methods approach will explore caregiver stress, adaptive routines, and misinformation, with the aim of developing culturally responsive and inclusive educational materials tailored to families managing eczema alongside neurodevelopmental or medical complexity. This study is the first to systematically compare eczema screening tools in children with complex needs, embed them into underserved clinical workflows, and leverage social media insights to inform education. Findings will support scalable, equitable interventions that enhance symptom control and reduce caregiver burden.
Status:
This was funded through a 2025 Childhood Eczema Challenge Grant.
