University of Toronto
Cathryn Sibbald, MD
The Hospital for Sick Children
Transitioning from child to adult care can be difficult for patients with chronic illnesses that begin in childhood, especially those that need to be followed by many doctors and treated with complicated treatment plans. Many patients do not receive enough support during this time, leading to poor health results, and few programs exist in pediatric dermatology to help in this transition.
To better understand how teenagers with complex skin disease manage their own healthcare, we hope to study their self-management skills. We will identify any obstacles that might prevent them from taking over responsibility for their care over time.
This study will help us understand what factors can make it easier or harder for teenagers with complicated skin conditions to take care of themselves in the transition time. We want to use this information to create better ways to help them prepare for this change and improve their health.
This project was funded through a 2023 PeDRA Emerging Investigator Research Grant.