The Effect of Systemic Therapy on Stigma and Mental Health in Adolescent Patients with Hidradenitis Suppurativa: A Prospective Cohort Study
Penn State University
Overview:
Hidradenitis suppurativa (HS) is a painful, chronic skin condition characterized by recurrent noninfectious boils in the armpits and groin areas that can lead to significant scarring. The disorder often begins in the teenage years, causing embarrassment and social stigma. The goal of this study is to understand how HS affects the mental health and quality of life of young people, especially feelings of shame, anxiety, and depression. We will use surveys to measure these effects in teens with HS and their parents, as well as use clinical assessments completed by the physician to evaluate the severity of HS in these patients. We will also follow teens who are starting prescription medications taken by mouth or injection to see if their mental health improves over time. By better understanding the emotional burden of HS in youth, we hope to improve care and support for these patients and inform future treatment strategies.
Status:
This project was funded through a 2025 Pediatric Hidradenitis Suppurativa Challenge Grant, in partnership with HS Connect and the HS Foundation.