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Pediatric Dermatology Research Alliance

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Uncategorized

Webinar Series: Building a Research Survey

March 4, 2021 By Jenn Dawson

This 3-part miniseries provides a deep-dive into writing a research survey. Covering everything from who’s on the team to sampling techniques to data collection and preparation. If you are interest in submitting a survey through PeDRA, please visit our survey page for more information.

Use the scroll bar to jump to the chapters that interest you most.
Chapter 1: Team Members
Chapter 2: Defining Objectives
Chapter 3: Qualitative vs. Quantitative.

Use the scroll bar to jump to the chapters that interest you most.
Chapter 1 – Sampling Techniques
Chapter 2 – Determining Sample Size
Chapter 3 – Qualitative vs. Quantitative

Use the scroll bar to jump to specific chapters.
Chapter 1 – Survey Outline
Chapter 2 – Validity vs. Reliability
Chapter 3 – Types of Data
Chapter 4 – Data Collection and Preparation

Filed Under: Education, Uncategorized

Building a Research Survey

March 2, 2021 By Jenn Dawson

Part One provides and overview for building a research survey and is broken into 3 different parts. To jump to different sections click these links. 0:04:34​ – Characteristics of a good objective. Defining Objectives, Team Roles​, Qualitative vs. Quantitative.

Filed Under: Uncategorized

2021 Webinar: Epidermolysis bullosa: An update on pathogenesis and emerging topical therapies

February 25, 2021 By Jenn Dawson

Thank you for your interest in this webinar. Members must be logged in to the PeDRA website before viewing. 

Not a PeDRA member but interested in becoming one?  Please visit https://pedraresearch.org/join-pedra/ to learn more.   

To return to the program webpage click here. 

Filed Under: Uncategorized

2021 Webinar: Using Social Media to Advance Your Career

February 18, 2021 By Mike Siegel

Thank you for your interest in this webinar. Members must be logged in to the PeDRA website before viewing. 

Not a PeDRA member but interested in becoming one?  Please visit https://pedraresearch.org/join-pedra/ to learn more.   

To return to the program webpage click here. 

Filed Under: Uncategorized

Masters of Pediatric Dermatology Symposium

January 2, 2021 By Mike Siegel

February 4-5, 2021 VIRTUAL

The Latest in Pediatric Dermatology: From Infants to Adolescents

9.5 credit hours available. REGISTRATION IS COMPLIMENTARY

Learn more

Filed Under: Uncategorized

September 24, 2020 By Mike Siegel

Thank you for your interest in joining a Poster Pub Crawl at the 2020 PeDRA Annual Conference.  Registration is now closed.  Please send us an email at info@pedraresearch.org with any questions.  

 

https://pedraresearch.org/2020/09/24/2020-pub-crawl/

Filed Under: Uncategorized

Guide to Engaging Patients at the 2020 PeDRA Annual Conference

August 17, 2020 By Mike Siegel

Suz Schrandt is a patient and patient engagement advocate with a health and disability law background. She is the Founder and CEO of ExPPect, a patient engagement initiative aimed at putting skilled patient partners in the heart of healthcare innovation. Schrandt previously served as Director of Patient Engagement at the Arthritis Foundation, and as Deputy Director of Patient Engagement for the Patient-Centered Outcomes Research Institute (“PCORI”). Her career spans work in health reform, bioethics, genetic discrimination, and chronic disease self-management, as well as a long history in patient-led clinical training. Schrandt is one of nine voting members on the FDA’s inaugural Patient Engagement Advisory Committee, the Chairperson for the International Society of Pharmacoeconomics and Outcomes Research North American Patient Roundtable, and is an invited speaker at numerous US and international conferences. Schrandt received her law degree from the University of Kansas and has co-authored multiple peer-reviewed articles on

Filed Under: Uncategorized

Characterization of Lipoprotein Composition and Function in Pediatric Psoriasis Before and After Treatment

July 15, 2020 By Katherine Devenport

Principal Investigator:

Amy Paller, MD
Northwestern University

Overview:

Psoriasis is a chronic inflammatory skin disease associated with early onset cardiovascular disease. Despite studies demonstrating high cholesterol, increased diabetes and
higher rate of obesity in psoriasis, these traditional risk factors only explain a fraction of total cardiovascular risk in psoriasis. One-third of the psoriasis patients start developing psoriatic plaques during childhood and studies have shown that the children with psoriasis have similar or higher risk for obesity and future problems with high cholesterol and diabetes. In fact, children have been shown to have abnormal cholesterol as early as age 13 years in psoriasis. However, little is known about how pediatric psoriasis severity affects cholesterol function, including its relationship with proteins involved in inflammation. Importantly, whether treatment of pediatric psoriasis early in the life leads to improvement in cholesterol function and overall lipoprotein
composition is unknown. Therefore, the goal of this proposal is to understand the effect of disease activity and psoriasis treatment on cholesterol and metabolic markers in pediatric
psoriasis.

Status:

This project was funded as a 2018 PeDRA and NPF Pediatric Psoriasis Challenge Grant and is currently underway.

Filed Under: Active Studies, Inflammatory Skin Disease, Uncategorized

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