PeDRA

Pediatric Dermatology Research Alliance

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Webinar Series: Building a Research Survey

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This 3-part miniseries provides a deep-dive into writing a research survey. Covering everything from who’s on the team to sampling techniques to data collection and preparation. If you are interest in submitting a survey through PeDRA, please visit our survey page for more information.

Use the scroll bar to jump to the chapters that interest you most.
Chapter 1: Team Members
Chapter 2: Defining Objectives
Chapter 3: Qualitative vs. Quantitative.

Use the scroll bar to jump to the chapters that interest you most.
Chapter 1 – Sampling Techniques
Chapter 2 – Determining Sample Size
Chapter 3 – Qualitative vs. Quantitative

Use the scroll bar to jump to specific chapters.
Chapter 1 – Survey Outline
Chapter 2 – Validity vs. Reliability
Chapter 3 – Types of Data
Chapter 4 – Data Collection and Preparation

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Thank you for your interest in joining a Poster Pub Crawl at the 2020 PeDRA Annual Conference.  Registration is now closed.  Please send us an email at info@pedraresearch.org with any questions.  

 

https://pedraresearch.org/2020/09/24/2020-pub-crawl/

Guide to Engaging Patients at the 2020 PeDRA Annual Conference

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Suz Schrandt is a patient and patient engagement advocate with a health and disability law background. She is the Founder and CEO of ExPPect, a patient engagement initiative aimed at putting skilled patient partners in the heart of healthcare innovation. Schrandt previously served as Director of Patient Engagement at the Arthritis Foundation, and as Deputy Director of Patient Engagement for the Patient-Centered Outcomes Research Institute (“PCORI”). Her career spans work in health reform, bioethics, genetic discrimination, and chronic disease self-management, as well as a long history in patient-led clinical training. Schrandt is one of nine voting members on the FDA’s inaugural Patient Engagement Advisory Committee, the Chairperson for the International Society of Pharmacoeconomics and Outcomes Research North American Patient Roundtable, and is an invited speaker at numerous US and international conferences. Schrandt received her law degree from the University of Kansas and has co-authored multiple peer-reviewed articles on

Characterization of Lipoprotein Composition and Function in Pediatric Psoriasis Before and After Treatment

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Principal Investigator:

Amy Paller, MD
Northwestern University

Overview:

Psoriasis is a chronic inflammatory skin disease associated with early onset cardiovascular disease. Despite studies demonstrating high cholesterol, increased diabetes and
higher rate of obesity in psoriasis, these traditional risk factors only explain a fraction of total cardiovascular risk in psoriasis. One-third of the psoriasis patients start developing psoriatic plaques during childhood and studies have shown that the children with psoriasis have similar or higher risk for obesity and future problems with high cholesterol and diabetes. In fact, children have been shown to have abnormal cholesterol as early as age 13 years in psoriasis. However, little is known about how pediatric psoriasis severity affects cholesterol function, including its relationship with proteins involved in inflammation. Importantly, whether treatment of pediatric psoriasis early in the life leads to improvement in cholesterol function and overall lipoprotein
composition is unknown. Therefore, the goal of this proposal is to understand the effect of disease activity and psoriasis treatment on cholesterol and metabolic markers in pediatric
psoriasis.

Status:

This project was funded as a 2018 PeDRA and NPF Pediatric Psoriasis Challenge Grant and is currently underway.