• Skip to main content
  • Skip to footer

PeDRA

Pediatric Dermatology Research Alliance

  • DONATE
  • Pay 2023 Membership Dues
  • Join PeDRA
  • Login
MENUMENU
  • Contact Us
  • For Patients & Families
        • Patient Support
        • Patient Education
        • Community Spotlight
        • Play Eczema Counts Now!
        • Patient Advisory Committee
        • Find a Pediatric Dermatologist (from SPD)
        • Awards Program
        • Parents, advocates, and patients over the age of 18 with a direct connection or significant interest in childhood skin disease or pediatric dermatology research are encouraged to join the PeDRA network for free as Community Members.

          Apply Now!

  • Education and Events
        • Virtual Education
        • SPD/PeDRA Journal Club
        • PeDRA Podcasts
        • Mentorship Program
        • 2023 Annual Conference
        • 2023 Dash for Discovery Fun Run/Walk
        • Early Investigator Support
        • Play Eczema Counts Now!
        • Events Calendar
        • Registration is now open for the 2023 PeDRA Annual Conference being held November 9-11, 2023 at the Westin Buckhead Atlanta in Atlanta, GA.

           

           

          Explore our new educational catalog!

  • Research
        • Grants and Fellowships
        • Resources for Researchers
        • Survey Application
        • Study Application
        • Research Areas
        • Publications
        • PeDRA EDI Corner
        • View all open funding opportunities!

  • About
        • Mission & Vision
        • Leadership & Staff
        • Annual Reports & Financials
        • Awards Program
        • News Archive
        • Our Supporters
        • Our Membership
        • Member Spotlight
        • Our Committees
        • Getting to Know You
        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. View the 2022 Annual Report and visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

  • Member Login

Hair Disorders

Alopecia & Us: studying the impact of alopecia areata to adolescents and the family

January 17, 2023 By Katherine Devenport


Principal Investigator:

Chantal Cotter, MD
St. John’s Institute of Dermatology

Overview:

Alopecia areata (AA) is one of the most common hair loss disorders characterized by loss of hair in round patches, usually on the scalp. The exact cause of AA is unknown, but it seems to be caused by the immune system attacking the hair follicles by mistake. Having AA can have impact on a child’s sense of well-being and increase their risk of mental health disorders including depression, anxiety, and OCD. Further, there may an impact on the family’s quality of life. Understanding this burden is paramount to ensuring we understand the full effect AA has on a child. We will do this via an online questionnaire which patients (aged 12-18) and their families can complete at home, anytime, anywhere in the world and in any language. Only through awareness of the full impact of this disease we will be able to advocate for access to treatments but also campaign for recognition and support of mental health in this group.

Status:

This project was funded by a 2022 Pediatric Alopecia Areata Challenge Grant.

Filed Under: Hair Disorders

Needle-free delivery of intralesional triamcinolone for pediatric alopecia areata: a pilot study of patient tolerability

April 6, 2022 By Katherine Devenport


Principal Investigator:

Sonal Shah, MD
University Hospitals Cleveland Medical Center
Case Western Reserve University

Overview:

Alopecia areata (AA) is a type of hair loss that affects both adults and children. It may be limited to a few spots on the scalp or lead to hair loss across the whole body. AA has often been inappropriately considered a cosmetic condition; however, it can cause significant emotional and psychosocial distress. This can negatively impact the quality of life in affected children. Currently, there are no FDA-approved treatments for this disease. However, we do know that injecting steroids into the areas of hair loss can lead to regrowth. Unfortunately, the use of needles can be scary and painful for children, and many are unable to tolerate this treatment option. We aim to study the tolerability and effectiveness of a novel medical device that can deliver medication into the skin without the use of a needle.

Status:

This project was funded by a 2021 PeDRA Research Grant.

Filed Under: Hair Disorders

Footer

  • Our Membership
  • For Patients
  • For Researchers
  • Governance Policies
  • Financial Conflict of Interest Policy
  • Jobs at PeDRA
  • Facebook
  • Instagram
  • LinkedIn
  • Twitter
  • YouTube
Sign up to receive emails from PeDRA
Join PeDRA
Donate

Copyright © 2023 · Pediatric Dermatology Research Alliance (PeDRA) · All Rights Reserved. · Privacy Policy