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Developed Ideas and Special Initiatives
Evidence-based consensus guidelines published by experts in the management of disease are a critical fiber of the healthcare fabric. Healthcare providers rely on guidelines to inform treatment decisions and insurance providers rely on guidelines to design formularies. Researchers compare new therapeutic or procedural interventions to standard-of-care practice guidelines in randomized controlled trials. However, many diseases still lack up-to-date guidelines, resulting in wide variability in practice patterns, and leaving many patients without access to treatment they need. Evidence-based guidelines and expert consensus best practice recommendations are lacking for many pediatric skin diseases.
To help address this need, PeDRA is calling for submissions to its 2021 Consensus Grants program, which will provide up to $25,000 of support to the creation of consensus guidelines, best practice recommendations, or consensus treatment plans for the treatment of diseases in the field of pediatric dermatology in the United States and/or Canada. Interested teams are invited to submit proposals to create consensus guidelines or best practice recommendations for a disease of their choice, using a rigorous methodology of their choice. However, priority will be given to proposals that address diseases for which contemporary guidelines do not exist, and which use established methodology.
- Up to $25,000 for one year to support the creation of consensus guidelines or best practice recommendations for the management of diseases in the field of pediatric dermatology
- Applications due Thursday, December 2, 2021
Past Consensus Grant Recipients:
Lara Wine Lee, MD, PhD
2020 Consensus Grant
Medical University of South Carolina
Capillary Malformation-Arteriovenous Malformation Syndrome Guidelines
Alex Zvulunov, MD & Elena Pope, MD, MsC
2019 Consensus Guidelines Award
Consensus-based recommendations for management of pediatric Mycosis Fungoides: the ARMFUL (AppRoach Mycosis FUngoides in chiLdren) study
Nearly 10 million U.S children under the age of 18 are affected by eczema, with one-third affected by moderate-to-severe disease. Despite recent therapeutic advances, the burdens on these patients, and their families, can be significant and many important research questions remain unanswered. To address this need, PeDRA and the National Eczema Association (NEA) are collaborating to support targeted clinical research investigations focused on pediatric eczema with the 2021 Childhood Eczema Challenge Grant. Through this grant NEA and PeDRA intend to accelerate research that improves the health and quality of life of pediatric eczema patients and their families.
This Challenge Grant is intended to stimulate early and mid-career scientists as they seek to build and sustain careers as research investigators and future thought leaders within this critical field of study. Research proposals should address at least one of the following priorities related to pediatric eczema:
- Eczema Heterogeneity: Novel Insights: Projects aimed at advancing understanding of the underlying factors contributing to the diversity of pediatric eczema clinical presentation, treatment response and comorbidities.
- Innovations in Clinical Practice & Care: Studies addressing approaches to facilitate optimal identification and treatment of pediatric eczema and associated comorbidities in all health care settings to enhance patient/caregiver-reported and patient/caregiver-centric outcomes.
- Understanding & Alleviating Disease Burden: Insightful proposals that identify, quantify or aim to reduce aspects of pediatric eczema burden that negatively affect patient or family/caregiver quality of life (including lifestyle, academic, occupational, or economic impacts) based on patient population, treatment approach, etc.
- Eczema Prevention Novel investigations into the potential risk factors and strategies of primary eczema prevention in the pediatric population.
- Up to $50,000 to support one year of research
- Priority given to proposals that focus on clinical or translational research
- Applications no longer being accepted.
- 2021 Request for Proposals (RFP)
Past Childhood Eczema Challenge Grant Recipients:
Jen Schoch, MD
2021 Childhood Eczema Challenge Grant
University of Florida
Neonatal cutaneous microbiome predictors of infantile eczema
Junko Takeshita, MD, PhD, MSCE
2020 Childhood Eczema Challenge Grant
University of Pennsylvania
Understanding Racial/Ethnic Disparities in Health Care Utilization for Childhood Atopic Dermatitis