Mentee Carly Stevens, MDTulane University Mentor Carrie Coughlin, MD, MPHSWashington University in St. Louis Overview The pulsed dye laser (PDL) treats dermatologic conditions such as port-wine stain birthmarks and other vascular skin lesions. Due to the benefits of early treatment, parents … [Read more...] about Enhancing Shared Decision Making in Pediatric Dermatology: Developing and Pilot Testing a Decision Aid for Pulsed Dye Laser Treatment
Birthmark Studies
Retrospective Review of Quality of Life Instrument for Pediatric Vascular Malformations
Mentee Carolena Steinberg, BAAlbert Einstein College of Medicine Mentor Joyce Teng, MD, PhDStanford University Overview Vascular malformations are a lifelong disease that are challenging to comprehensively measure how they impact the quality of life of patients. There is currently no tool … [Read more...] about Retrospective Review of Quality of Life Instrument for Pediatric Vascular Malformations
A Comprehensive Review of Cutaneous Mosaic RASopathies in Pediatric Patients
Mentee Sneha Rangu, BSAlbert Einstein College of Medicine Mentor Leslie Castelo-Soccio, MD, PhDNational Institutes of Health Overview Mosaic RASopathies are a group of genetic diseases caused by problems in the RAS pathway, an important pathway for the cells in our body to communicate. … [Read more...] about A Comprehensive Review of Cutaneous Mosaic RASopathies in Pediatric Patients
Consensus on Diagnostic Criteria for LUMBAR syndrome
Principal Investigator: Denise Metry, MDBaylor College of Medicine Overview: Infantile hemangiomas are growths of blood vessels that most often affect the skin, appear within a few months after birth, and gradually improve over several years, They are benign and typically non-problematic. … [Read more...] about Consensus on Diagnostic Criteria for LUMBAR syndrome
Thermography to Monitor Proliferation in Evolving Hemangiomas at Risk for Aggressive Growth: Use of Infrared Assessment (TEMPERATURE) Study
Fellow Charles HuangThomas Jefferson University Mentor Albert Yan, MDUniversity of Pennsylvania School of Medicine Overview This study aims to predict the behavior of infantile hemangiomas using a non-invasive tool called infrared thermography (IRT). Hemangiomas are common vascular tumors … [Read more...] about Thermography to Monitor Proliferation in Evolving Hemangiomas at Risk for Aggressive Growth: Use of Infrared Assessment (TEMPERATURE) Study
Assessment of the Clinical Use and Outcomes of Sirolimus Treatment for Complex Vascular Anomalies
Fellow Carolena SteinbergAlbert Einstein College of Medicine Mentor Joyce Teng, MD, PhDStanford University Overview Sirolimus is a drug that was previously approved to prevent organ rejection after kidney transplant. In recent years it has increasingly been used for the treatment of … [Read more...] about Assessment of the Clinical Use and Outcomes of Sirolimus Treatment for Complex Vascular Anomalies
Biomarkers of Neurovascular Complications in PHACE Syndrome
Principal Investigator: Dawn Siegel, MDStanford University School of Medicine Overview: Large infantile hemangiomas on the face, can be associated with developmental anomalies of the brain, blood vessels, heart, and eyes. The goal of our study is to understand if there are patterns on brain … [Read more...] about Biomarkers of Neurovascular Complications in PHACE Syndrome
Long term outcomes and quality of life in PHACE syndrome
Fellow Mitchell BraunUniversity of California, San Francisco Mentor Erin Mathes, MDUniversity of California, San Francisco Overview PHACE syndrome is a congenital neurocutaneous syndrome discovered in 1996 when Dr. Ilona Frieden synthesized the association between posterior fossa … [Read more...] about Long term outcomes and quality of life in PHACE syndrome
