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November 4, 2024by PeDRA Team
04 November 2024

Enhancing Shared Decision Making in Pediatric Dermatology: Developing and Pilot Testing a Decision Aid for Pulsed Dye Laser Treatment

Mentee Carly Stevens, MDTulane University Mentor Carrie Coughlin, MD, MPHSWashington University in St. Louis Overview The pulsed dye laser (PDL) treats dermatologic conditions such as port-wine stain birthmarks and other […]

Birthmark Studies
Enhancing Shared Decision Making in Pediatric Dermatology: Developing and Pilot Testing a Decision Aid for Pulsed Dye Laser Treatment
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August 1, 2024by Katherine Devenport
01 August 2024

Retrospective Review of Quality of Life Instrument for Pediatric Vascular Malformations

Mentee Carolena Steinberg, BAAlbert Einstein College of Medicine Mentor Joyce Teng, MD, PhDStanford University Overview Vascular malformations are a lifelong disease that are challenging to comprehensively measure how they impact […]

Birthmark Studies
Retrospective Review of Quality of Life Instrument for Pediatric Vascular Malformations
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August 1, 2024by Katherine Devenport
01 August 2024

A Comprehensive Review of Cutaneous Mosaic RASopathies in Pediatric Patients

Mentee Sneha Rangu, BSAlbert Einstein College of Medicine Mentor Leslie Castelo-Soccio, MD, PhDNational Institutes of Health Overview Mosaic RASopathies are a group of genetic diseases caused by problems in the […]

Birthmark Studies
A Comprehensive Review of Cutaneous Mosaic RASopathies in Pediatric Patients
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November 27, 2023by Katherine Devenport
27 November 2023

Consensus on Diagnostic Criteria for LUMBAR syndrome

Principal Investigator: Denise Metry, MDBaylor College of Medicine Overview: Infantile hemangiomas are growths of blood vessels that most often affect the skin, appear within a few months after birth, and […]

Birthmark Studies
Consensus on Diagnostic Criteria for LUMBAR syndrome
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June 9, 2023by Katherine Devenport
09 June 2023

Thermography to Monitor Proliferation in Evolving Hemangiomas at Risk for Aggressive Growth: Use of Infrared Assessment (TEMPERATURE) Study

Fellow Charles HuangThomas Jefferson University Mentor Albert Yan, MDUniversity of Pennsylvania School of Medicine Overview This study aims to predict the behavior of infantile hemangiomas using a non-invasive tool called […]

Birthmark Studies
Thermography to Monitor Proliferation in Evolving Hemangiomas at Risk for Aggressive Growth: Use of Infrared Assessment (TEMPERATURE) Study
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June 9, 2023by Katherine Devenport
09 June 2023

Assessment of the Clinical Use and Outcomes of Sirolimus Treatment for Complex Vascular Anomalies

Fellow Carolena SteinbergAlbert Einstein College of Medicine Mentor Joyce Teng, MD, PhDStanford University Overview Sirolimus is a drug that was previously approved to prevent organ rejection after kidney transplant. In […]

Birthmark Studies
Assessment of the Clinical Use and Outcomes of Sirolimus Treatment for Complex Vascular Anomalies
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January 12, 2023by Katherine Devenport
12 January 2023

Biomarkers of Neurovascular Complications in PHACE Syndrome

Principal Investigator: Dawn Siegel, MDStanford University School of Medicine Overview: Large infantile hemangiomas on the face, can be associated with developmental anomalies of the brain, blood vessels, heart, and eyes. […]

Birthmark Studies
Biomarkers of Neurovascular Complications in PHACE Syndrome
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May 18, 2021by Katherine Devenport
18 May 2021

Long term outcomes and quality of life in PHACE syndrome

Fellow Mitchell BraunUniversity of California, San Francisco Mentor Erin Mathes, MDUniversity of California, San Francisco Overview PHACE syndrome is a congenital neurocutaneous syndrome discovered in 1996 when Dr. Ilona Frieden […]

Birthmark Studies
Long term outcomes and quality of life in PHACE syndrome
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May 18, 2021by Katherine Devenport
18 May 2021

Multi Center Phenotype-Genotype Analysis of Vascular Overgrowth Syndromes

Fellow Ashley NgMedical College of Wisconsin Mentor Beth Drolet, MDUniversity of Wisconsin – Madison Overview Vascular anomalies represent a diverse group of developmental disorders and affect patient-reported quality of life […]

Birthmark Studies
Multi Center Phenotype-Genotype Analysis of Vascular Overgrowth Syndromes
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April 13, 2021by Katherine Devenport
13 April 2021

Capillary Malformation-Arteriovenous Malformation Syndrome Guidelines

Project Lead: Lara Wine Lee, MD, PhDMedical University of South Carolina Overview: Patients diagnosed with Capillary Malformation – Arteriovenous Malformation Syndrome present with multiple, small, flat areas of red color […]

Birthmark Studies
Capillary Malformation-Arteriovenous Malformation Syndrome Guidelines
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April 9, 2020by Katherine Devenport
09 April 2020

Examining How Virtual Reality Improves Children’s Coping During Dermatologic Procedures

Principal Investigator: Annie Grossberg, MDJohns Hopkins Overview: Children who play virtual reality games have been found to experience less pain and anxiety during vaccination and venipuncture. The immersive experience of […]

Birthmark Studies
Examining How Virtual Reality Improves Children’s Coping During Dermatologic Procedures
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January 17, 2020by Katherine Devenport
17 January 2020

Towards a precision-based treatment for facial port wine birthmarks

Principal Investigator: Lisa Arkin, MD University of Wisconsin, Madison Overview: Facial vascular stains affect 0.3-0.5% of newborns; they reduce quality of life due to soft tissue overgrowth, nodularity and life-altering, […]

Birthmark Studies
Towards a precision-based treatment for facial port wine birthmarks
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