Pediatric Dermatology Research Alliance

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- - - Patient Advisory Committee
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- - - Registration for the 2022 PeDRA Annual Conference is now open! Visit the conference webpage to learn more.
Research
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  - - Now accepting applications for 2022 Pediatric Alopecia Areata Challenge Grant and Consensus Grant Program!
About
- - - 2022 marks PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Memories page to see what our community finds most memorable about the past ten years and to leave your own memory!
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Acne & Hidradenitis Suppurativa

Acne and hidradenitis suppurativa (HS) are common inflammatory skin disorders affecting adolescents and occasionally younger children. Both disorders are associated with challenging physical symptoms, profound psychosocial burden, and can lead to permanent scarring. Recent scientific advances have improved our understanding of these inflammatory skin diseases and led to efficacious, FDA-approved treatment options. However, not all treatments are approved in children and questions remain surrounding long-term effects of diseases and treatments.

The goals of the Acne & HS Focused Study Group are to define and address unmet research needs in these disorders and to advance our understanding of biomarkers, genetic influences, and disease co-morbidities, in order to best treat our pediatric and adolescent patients.

The Acne & HS Focused Study Group at work, December 2021.

Chairs

The Acne & HS Focused Study Group is chaired by Andrea Zaenglein, MD at Penn State Health, and co-chaired by Leah Lalor, MD at the Medical College of Wisconsin and Irene Lara-Corrales, MD at the University of Toronto.

Links

Studies

Studies Seeking Collaborators

Acne Uniform Data Collection

Isotretinoin use in African American and Hispanic Youth

Acne in Transgender Youth

Moderate to Severe HS in Children and Adolescents

Acne Medication Coverage in Medicaid Formularies

HS Education

Publications

Smiley, Catherine, et al. “Emergency contraception in the iPLEDGE program: A cross-sectional survey of pediatric dermatology provider understanding and practice” Pediatric Dermatology (2022).

Zaenglein, Andrea, et al. “Executive Summary: Consensus Recommendations for the Use of Retinoids in Ichthyosis and Other Disorders of Cornification in Children and Adolescents” Journal of the American Academy of Dermatology (2021).

Liy-Wong, Carmen, et al. “Hidradenitis Suppurativa in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients” JAMA Dermatology (2021).

Resources

Coming soon.

Active Member Locations

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Send us an email to get connected to the Acne & HS group or to learn more.