Pediatric Dermatology Research Alliance

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  - - Parents, advocates, and patients over the age of 18 with a direct connection or significant interest in childhood skin disease or pediatric dermatology research are encouraged to join the PeDRA network for free as Community Members.
      
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- - - Save the Date! The 2023 PeDRA Annual Conference will be held November 9-11, 2023 at the Westin Buckhead Atlanta in Atlanta, GA.
      
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Research
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  - - Now accepting applications for the Emerging Investigator Research Grants Program and Research Fellowships Program.
About
- - - 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!
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Acne & Hidradenitis Suppurativa

Acne and hidradenitis suppurativa (HS) are common inflammatory skin disorders affecting adolescents and occasionally younger children. Both disorders are associated with challenging physical symptoms, profound psychosocial burden, and can lead to permanent scarring. Recent scientific advances have improved our understanding of these inflammatory skin diseases and led to efficacious, FDA-approved treatment options. However, not all treatments are approved in children and questions remain surrounding long-term effects of diseases and treatments.

The goals of the Acne & HS Focused Study Group are to define and address unmet research needs in these disorders and to advance our understanding of biomarkers, genetic influences, and disease co-morbidities, in order to best treat our pediatric and adolescent patients.

The Acne & HS Focused Study Group at work, December 2021.

Chairs

The Acne & HS Focused Study Group is chaired by Andrea Zaenglein, MD at Penn State Health, and co-chaired by Leah Lalor, MD at the Medical College of Wisconsin and Irene Lara-Corrales, MD at the University of Toronto.

Links

Studies

Studies Seeking Collaborators

Acne Uniform Data Collection

Isotretinoin use in African American and Hispanic Youth

Acne in Transgender Youth

Moderate to Severe HS in Children and Adolescents

Acne Medication Coverage in Medicaid Formularies

HS Education

Publications

Smiley, Catherine, et al. “Emergency contraception in the iPLEDGE program: A cross-sectional survey of pediatric dermatology provider understanding and practice” Pediatric Dermatology (2022).

Zaenglein, Andrea, et al. “Executive Summary: Consensus Recommendations for the Use of Retinoids in Ichthyosis and Other Disorders of Cornification in Children and Adolescents” Journal of the American Academy of Dermatology (2021).

Liy-Wong, Carmen, et al. “Hidradenitis Suppurativa in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients” JAMA Dermatology (2021).

Resources

Coming soon.

Active Member Locations

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Send us an email to get connected to the Acne & HS group or to learn more.