Principal Investigators:
Carrie C Coughlin, MD, MPHD
Washington University School of Medicine in St. Louis
Harper Price, MD
Phoenix Children’s Hospital
Michael Sargen, MD, PhD
NIH, Division of Cancer Epidemiology and Genetics
Overview:
To improve care for patients with congenital melanocytic nevi (CMN), we need long-term data. A registry in partnership with Nevus Outreach and PeDRA will improve data collection and provide support for a variety of investigations of long-term outcomes and under-reported comorbidities.
We are housing a registry within PeDRA with the support of Nevus Outreach. Investigators seeking to use registry data will submit a formal project proposal. All project proposals will be reviewed by the registry’s research task force.
Status:
If you are interested in learning more or participating in the registry, please contact Dr. Carrie Coughlin.