Webpage: Engagement Tool and Resource Repository from PCORI

Association of Demographic Factors and Infantile Hemangioma Characteristics with Risk of PHACE Syndrome Dr. Colleen Cotton discusses the findings of her most recent collaborative study – Association of Demographic Factors […]

Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations Dr. Yvonne Chiu discusses the findings of her most recent collaborative study – Body site distribution of pediatric-onset morphea […]

Live webinar on Tuesday, April 27, 2021 at 5:30 PM PT / 8:30 PM ET. So you’ve got the funding, now how do you make the research happen? Hear from […]

Live event on Thursday, April 22, 2021 at 5:00 PM PT / 8:00 PM ET. Featuring Larry Eichenfield, MD, Vikash Oza, MD, and Erin Roberts, MD

Clinical Features, Prognostic Factors, and Treatment Interventions for Ulceration in Patients with Infantile Hemangioma. This collaborative study examined the effectiveness of current interventions like propranolol and other beta blockers for […]

Hidradenitis Suppurative in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients This international, multicenter, retrospective, cross-sectional study of 481 pediatric patients revealed a gap in […]

Live webinar on Wednesday, April 14, 2021 at 5:00PM PT / 8:00PM ET. Hosted in partnership with Abeona Therapeutics, this webinar will provide an overview and update on gene therapy […]

This three-part series of short on-demand webinars provides a high level overview of the design, execution, and analysis of an online research survey. Covering everything from building a survey team, […]

Recorded live on Wednesday, May 5, 2021. Hosted by Carrie Coughlin, MD from Washington University School of Medicine and Amy Paller, MD, MS from Northwestern University, this session will featured […]

Hosted on February 10, 2021. Learn how to promote your science via social media channels. Featured presenters Dr. John Harris, and Dr. Daniel Sugai shared their experiences with social media […]

Hosted on January 11, 2021. PeDRA President-Elect Anna Bruckner, MD, MSCS gave a presentation on basic biology underlying EB and recent advances in EB clinical research. Webinar sponsored by Amryt […]

Hosted on November 12, 2020 in partnership with Abeona Therapeutics, this webinar presented cutting edge clinical development updates towards the treatment of epidermolysis bullosa. The webinar featured presentations from Jean […]