2018 PeDRA Annual Conference

The 6th PeDRA Annual Conference was held October 25-27, 2018, in Denver, CO.

Highlights

EARLY INVESTIGATOR FORUM: Cultivating Collaboration through Communication

Manuscript Writing Workshop
Speaker: Drew Bixby, MA, Instructor and Writing Center Assistant Director, University of Colorado

Negotiating and Coming to Compromise
Speaker: Marsheila DeVan, Communications Specialist, Elite Communications

PLENARY SESSION:

Outcomes, and Data Standards and Informatics Clinical Research: Outcomes
Speaker: Mary-Margaret Chren, MD, Professor and Chair, Department of Dermatology, Vanderbilt University Medical Center

Clinical Research: Data Standards and Informatics
Speaker: Rebecca Kush, PhD, Scientific Innovation Officer, Elligo Health Research

DINNER PRESENTATION:

Connecting with our Advocacy and Industry Partners Patient-Reported Outcomes Consortium, Bringing the Patient Voice into the Drug Development Process
Speaker: Dory Kranz, NAAF Providing to Industry the Patient Perspective on End-points for Trial Development
Speaker: Holly Evans, PC Project Venture philanthropy as a Model for Injecting Funds into Disease Advocacy
Speaker: Michael Hund, EB Research Partnership

PLENARY SESSION:

Basic and Translational Research Forum Basic/Translations Science: Scleroderma
Speaker: Kathryn Seraphin Torok, MD, Assistant Professor, University of Pittsburgh School of Medicine Basic/Translational Science: Regenerative Medicine (Part 1)
Speaker: Anthony Oro, MD, PhD, Eugene and Gloria Bauer Professor of Dermatology, Associate Director of the Center for Definitive and Curative Medicine, and Co-Director, Child Health Research Initiative, Stanford University