Whether you are struggling with a recent diagnosis or facing the daily challenges of a disease, there are organizations and resources that can help! PeDRA proudly partners with several patient advocacy organizations to ensure the patient voice is reflected in the research we do.
Organizations serving pediatric patients with dermatology diseases
Basal Cell Carcinoma Nevus Syndrome (BCCNS) Life Support Network
http://www.gorlinsyndrome.org
Dystrophic Epidermolysis Bullosa Association of America (DEBRA)
http://www.debra.org
Epidermolysis Bullosa Medical Research Foundation (EBMRF)
http://www.ebkids.org
Foundation for Ichthyosis and Related Skin Types (FIRST)
http://www.firstskinfoundation.org
International Pemphigus & Pemphigoid Foundation
http://www.pemphigus.org
National Eczema Association (NEA)
http://nationaleczema.org
National Foundation for Ectodermal Dysplasia (NFED)
http://nfed.org
National Psoriasis Foundation (NPF)
https://www.psoriasis.org
National Alopecia Areata Foundation (PeDRA)
http://www.naaf.org
National Organization of Vascular Anomalies (NOVA)
http://www.novanews.org
Nevus Outreach
http://www.nevus.org
Pachyonychia Congenita (PC)
http://www.pachyonychia.org
PHACE
http://www.phacesyndromecommunity.org/
Vitiligo
http://avrf.org
Xeroderma Pigmentosum (XP)
http://www.xps.org
