PeDRA

Pediatric Dermatology Research Alliance

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Transition Readiness in Patients with Cutaneous Skin Diseases: A Prospective Observational Study

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Mentee Haleh ZabihiUniversity of Toronto Mentor Cathryn Sibbald, MDThe Hospital for Sick Children Overview Transitioning from child to adult care can be difficult for patients with chronic illnesses that begin in childhood, especially those that need to be followed by many doctors and … [Read more...] about Transition Readiness in Patients with Cutaneous Skin Diseases: A Prospective Observational Study

Quality of Life Survey in Patients with Down Syndrome and Dermatologic Conditions

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Mentee Morgan DykmanUniversity of Minnesota Mentor Jillian Rork, MDDartmouth-Hitchcock Clinic Overview Patients with Down syndrome (DS) experience skin conditions more frequently and earlier in life than the average person. By young adulthood, 56% of patients with DS have been diagnosed … [Read more...] about Quality of Life Survey in Patients with Down Syndrome and Dermatologic Conditions

Understanding patient-reported outcomes in pediatric patients receiving systemic therapies for atopic dermatitis

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Mentee Hannah ChangUT Southwestern Medical School Mentor Joy Wan, MD, MSCEJohns Hopkins University School of Medicine Overview Atopic dermatitis, or eczema, is a skin disease that affects many children and can cause problems for their physical and mental health. It is important for doctors … [Read more...] about Understanding patient-reported outcomes in pediatric patients receiving systemic therapies for atopic dermatitis

Imaging Analysis of Facial Atrophy in Patients with Pediatric Morphea

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Mentee Cheri Chambers, PhDUniversity of Washington Mentor Heather Brandling-Bennett, MDSeattle Children's Hospital University of Washington Overview Pediatric morphea is a chronic medical condition that can cause irreversible skin, muscle, and bone damage during development. Morphea affects … [Read more...] about Imaging Analysis of Facial Atrophy in Patients with Pediatric Morphea

Barriers to care for pediatric atopic dermatitis patients and the effects on treatment adherence and follow-up: A cross-sectional survey study

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Fellow Renae TessemUniversity of California, Los Angeles Mentor Marcia Hogeling, MDUniversity of California, Los Angeles Overview Limited access to dermatologic care for pediatric atopic dermatitis patients leads to poorer health outcomes with higher rates of emergency department visits and … [Read more...] about Barriers to care for pediatric atopic dermatitis patients and the effects on treatment adherence and follow-up: A cross-sectional survey study

Quality of life in childhood cancer and transplant survivors with permanent hair loss: a nested observational study

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Fellow Eun Jae KimHarvard Medical School Mentor Jennifer Huang, MDHarvard Medical School Overview Many patients think that hair loss (alopecia) is one of the most bothersome side effects of cancer treatment and stem cell transplantation. While alopecia can get better after cancer treatment … [Read more...] about Quality of life in childhood cancer and transplant survivors with permanent hair loss: a nested observational study

Integrating patient-reported outcomes into pediatric atopic dermatitis care

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Fellow Hsing-Jou (Chloe) Su, MDJohns Hopkins University Mentor Joy Wan, MD, MSCEJohns Hopkins University Overview Atopic dermatitis (AD) is the most common chronic skin disease affecting children and has significant impact on physical, mental and social health. However, AD often has more … [Read more...] about Integrating patient-reported outcomes into pediatric atopic dermatitis care