PeDRA

Pediatric Dermatology Research Alliance

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Three PeDRA Members Receive 2020 Research Awards from the Dermatology Foundation

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March 24, 2020 – The pediatric dermatology community is proud to recognize three PeDRA members as recipients of 2020 Research Awards from the Dermatology Foundation.  Lisa Arkin, MD of the University of Wisconsin received a Pediatric Dermatology Career Development Award for a project titled Towards a Precision-based Treatment for Facial Vascular Stains, Leo Shmuylovich, MD, PhD of Washington University received a Dermatologist Investigator Research Fellowship to study Laser Stimulated Thermal Imaging of Nonmelanoma Skin Cancer, andJoy Wan, MD, MSCE of the University of Pennsylvania received a Career Development Award for a project titled Neurocognitive Functioning of Children with Atopic Dermatitis. 

Together with Elena Hawryluk, MD, PhD (Pediatric Dermatology Career Development Award, year 3) and Jeff Yu, MD (Pediatric Dermatology Career Development Award, year 2), this brings the total of active Dermatology Foundation-funded PeDRA members to five, and impacts projects spanning three of PeDRA’s five working groups. 

Visit the Dermatology Foundation website for information on all Research Awards granted in 2020 and to learn more about future funding opportunities.  To learn about research funding opportunities from PeDRA, visit the Grants & Awards Page.  

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Abstract Submission Form

2020 Virtual Poster Pub Crawl Sign-up Form

Please complete the following form to request a spot in one of the virtual Poster Pub Crawls being hosted by senior investigators from 6:15 - 7:00PM ET on Thursday, October 22.  Patients, parents, and advocates are encouraged to sign up as well, and will visit a special selection of posters selected by PeDRA's Patient Advisory Committee.  

Space is limited and spots will be awarded on a first-come first-served basis. Participants must be registered for the PeDRA Conference and the final day to sign up for a Pub Crawl is Monday, October 12. 






Contact Information

https://pedraresearch.org/2020/09/24/2020-pub-crawl/

Guide to Engaging Patients at the 2020 PeDRA Annual Conference

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Suz Schrandt is a patient and patient engagement advocate with a health and disability law background. She is the Founder and CEO of ExPPect, a patient engagement initiative aimed at putting skilled patient partners in the heart of healthcare innovation. Schrandt previously served as Director of Patient Engagement at the Arthritis Foundation, and as Deputy Director of Patient Engagement for the Patient-Centered Outcomes Research Institute (“PCORI”). Her career spans work in health reform, bioethics, genetic discrimination, and chronic disease self-management, as well as a long history in patient-led clinical training. Schrandt is one of nine voting members on the FDA’s inaugural Patient Engagement Advisory Committee, the Chairperson for the International Society of Pharmacoeconomics and Outcomes Research North American Patient Roundtable, and is an invited speaker at numerous US and international conferences. Schrandt received her law degree from the University of Kansas and has co-authored multiple peer-reviewed articles on

2020 Childhood Eczema Challenge Grant Awarded to Dr. Junko Takeshita at the University of Pennsylvania

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July 28, 2020 – PeDRA and the National Eczema Association (NEA) have announced that their inaugural Childhood Eczema Challenge Grant will be awarded to Junko Takeshita, MD, PhD, MSCE of the University of Pennsylvania Perelman School of Medicine. The grant of $50,000 will commence in August 2020.

Nearly 10 million U.S children under the age of 18 are affected by eczema, with one-third affected by moderate-to-severe disease. Despite recent therapeutic advances, the burdens on these patients and their families can be significant, and many important research questions remain unanswered.

NEA and PeDRA together created the Childhood Eczema Challenge Grant to accelerate research that improves the health and quality of life of pediatric eczema patients and their families.

Takeshita will be awarded for her grant proposal titled “Understanding Racial/Ethnic Disparities in Health Care Utilization for Childhood Atopic Dermatitis.” Atopic dermatitis (AD) disproportionately affects Black and Hispanic children and is associated with significant financial burden in the U.S. In previous research, Takeshita and her team found that Black children are less likely than white children to seek any outpatient care for their AD, and among children who do access care, Black and Hispanic children are more likely to go to the emergency room for their AD than white children. For this grant, Takeshita aims to identify and understand the barriers to outpatient health care use and reasons for specific health care utilization patterns, especially emergency room use, for AD among white, Black and Hispanic children from the caregiver perspective. The qualitative study will include interviews with caregivers of white, Black, and Hispanic children with AD across a spectrum of health care use patterns.

The findings will directly inform the development and implementation of future interventions to reduce racial/ethnic disparities in health care use for childhood AD, optimize care utilization, and improve outcomes.

In addition to providing meaningful research funding to those awarded, the Challenge Grant furthers the missions and strategic priorities of both NEA and PeDRA.  For more information on the 2020 Childhood Eczema Challenge Grant, visit https://pedraresearch.org/grants-awards or https://nationaleczema.org/research/research-we-fund/for-researchers/. 

About National Eczema Association (NEA)

Founded in 1988, NEA is the largest, 501(c)(3) non-profit, US patient advocacy organization serving people affected by eczema.  NEA’s mission is to improve the health and quality of life for individuals with eczema through research, support, and education.  For more on NEA visit https://nationalecezma.org

Characterization of Lipoprotein Composition and Function in Pediatric Psoriasis Before and After Treatment

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Principal Investigator:

Amy Paller, MD
Northwestern University

Overview:

Psoriasis is a chronic inflammatory skin disease associated with early onset cardiovascular disease. Despite studies demonstrating high cholesterol, increased diabetes and
higher rate of obesity in psoriasis, these traditional risk factors only explain a fraction of total cardiovascular risk in psoriasis. One-third of the psoriasis patients start developing psoriatic plaques during childhood and studies have shown that the children with psoriasis have similar or higher risk for obesity and future problems with high cholesterol and diabetes. In fact, children have been shown to have abnormal cholesterol as early as age 13 years in psoriasis. However, little is known about how pediatric psoriasis severity affects cholesterol function, including its relationship with proteins involved in inflammation. Importantly, whether treatment of pediatric psoriasis early in the life leads to improvement in cholesterol function and overall lipoprotein
composition is unknown. Therefore, the goal of this proposal is to understand the effect of disease activity and psoriasis treatment on cholesterol and metabolic markers in pediatric
psoriasis.

Status:

This project was funded as a 2018 PeDRA and NPF Pediatric Psoriasis Challenge Grant and is currently underway.

Understanding Racial/Ethnic Disparities in Health Care Utilization for Childhood Atopic Dermatitis

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Principal Investigator:

Junko Takeshita, MD, PhD, MSCE
University of Pennsylvania

Overview:

Atopic dermatitis (AD) is a common skin disease that disproportionately affects minority children and is associated with a large financial burden in the U.S. Racial/ethnic disparities in health care use for AD also exist. For example, minority children are more likely than white children to go to the emergency room (ER) for their AD. In order to reduce differences in health care use for AD between white and minority children as well as minimize potentially avoidable and costly ER use, we propose to evaluate racial/ethnic differences in the barriers to routine health care use and reasons for specific health care use patterns among children with AD. We will interview caregivers of white, black, and Hispanic children with AD and identify the factors that affect health care use for AD by race/ethnicity. Our findings will inform future interventions to optimize and reduce racial/ethnic disparities in health care use for childhood AD.

Status:

This study was funded by PeDRA in partnership with the National Eczema Association (NEA) through the 2020 Childhood Eczema Challenge Grant and is currently underway.

Impacts of COVID-19 on Children with Dermatological Disease

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In collaboration with PeDRA, GlobalSkin hosted a virtual townhall on June 30, 2020 with Dr. Kelly Cordoro and Dr. Amy Paller to discuss the impact of COVID-19 on children and action being taken by the pediatric dermatology researchers.

GlobalSkin, also known as the International Alliance for Dermatology Patient Organizations (IADPO), is a nonprofit organization supporting more than 160 patient associations across more than 50 countries. They seek to improve the lives of patients with all skin disease through advocacy, education, networking, and research. To learn more, visit the GlobalSkin website.

From the NICU to Eczema and the Value of Research Funding

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Tune in to hear Jennifer Schoch, MD from University of Florida discuss her research in the microbiome and eczema, and learn about the value of PeDRA funding.

Jennifer Schoch, MD is Pediatric Dermatologist and Assistant Professor of Dermatology at the University of Florida. She is the recipient of a PeDRA Pilot Grant (2018), SPD/PeDRA Weston Career Development award (2019-20), PeDRA Shark Tank Award (2020-21) and an NIH KL2 Award (2020-22).