PeDRA

Pediatric Dermatology Research Alliance

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Webinar: Reviewing and Publishing – Making an Impact in Pediatric Dermatology

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Co-editors of Pediatric Dermatology, Lionel Bercovitch, MD, and Andrea Zaenglein, MD, and chair of PeDRA’s Outcomes Committee, Carrie Coughlin, MD, MPHS, offer guidance to reviewers on how to evaluate a manuscript and advice to authors on preparing a strong manuscript for submission. These skill-sets are not only important for career success, but they help make a positive impact in the field of pediatric dermatology.

Presented in partnership with the SPD Junior Faculty and Fellows Committee.

Reviewing and Publishing – Making an Impact in Pediatric Dermatology
Recorded Live – Wednesday, June 8, 2022, at 5:30 PM PT / 8:30 PM ET

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Speakers

Andrea Zaenglein, MD

Speaker

Professor of Dermatology and Pediatric Dermatology at Penn State Health

Co-Editor of Pediatric Dermatology

    Lionel Bercovitch, MD

    Speaker

    Director, Pediatric Dermatology, Professor of Dermatology at Brown University

    Co-Editor of Pediatric Dermatology

      Carrie C. Coughlin, MD, MPHS

      Speaker

      Assistant Professor, Dermatology and Pediatrics, Director – Section of Pediatric Dermatology, Director – Pediatric Dermatology Fellowship at Washington University School of Medicine

      Chair, PeDRA Outcomes Committee

        Three PeDRA Members Receive 2020 Research Awards from the Dermatology Foundation

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        March 24, 2020 – The pediatric dermatology community is proud to recognize three PeDRA members as recipients of 2020 Research Awards from the Dermatology Foundation.  Lisa Arkin, MD of the University of Wisconsin received a Pediatric Dermatology Career Development Award for a project titled Towards a Precision-based Treatment for Facial Vascular Stains, Leo Shmuylovich, MD, PhD of Washington University received a Dermatologist Investigator Research Fellowship to study Laser Stimulated Thermal Imaging of Nonmelanoma Skin Cancer, andJoy Wan, MD, MSCE of the University of Pennsylvania received a Career Development Award for a project titled Neurocognitive Functioning of Children with Atopic Dermatitis. 

        Together with Elena Hawryluk, MD, PhD (Pediatric Dermatology Career Development Award, year 3) and Jeff Yu, MD (Pediatric Dermatology Career Development Award, year 2), this brings the total of active Dermatology Foundation-funded PeDRA members to five, and impacts projects spanning three of PeDRA’s five working groups. 

        Visit the Dermatology Foundation website for information on all Research Awards granted in 2020 and to learn more about future funding opportunities.  To learn about research funding opportunities from PeDRA, visit the Grants & Awards Page.  

        Eczema Counts Game 1 Winners Announced

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        The first of many games in the Eczema Counts series ended on August 30, 2022. Game 1: The Basics established the foundations of the eczema research process and how that research can translate to real world applications. The game is tailored so patients and caregivers can compete against each other, while researchers battle it out in their own category.

        Congratulations to the top-place winners of Eczema Counts Game 1!

        Top Three Patients/Caregivers:

        • 1st Place: Amy Chrnelich
        • 2nd Place: Claire Rozanski
        • 3rd Place: Elizabeth Tindal

        Top Three Researchers:

        • 1st Place: Albert Yan, MD
        • 2nd Place: Tina Ho, MD, PhD
        • 3rd Place: Catherine Reilly, MD Student

        Over 120 patients, caregivers, and researchers competed in Game 1, with more than 30 participants climbing to the top of the Game 1 Leaderboard and earning over 1,000 points.

        Participants may continue to play Game 1 to learn more about the basics to set them up for success in future games and earn points on the All Time Points Leaderboard. Please note, Game 1 participant points earned after August 30 will not count toward the Game 1 Leaderboard. Game 2 will launch in late October.

        Eczema Counts, a series of games and activities to engage patients, families, and researchers together in learning about patient-centered research in childhood eczema, was created in partnership between the National Eczema Association (NEA) and the Pediatric Dermatology Research Alliance (PeDRA), and is part of a portfolio of Eugene Washington Engagement Award projects that the Patient-Centered Outcomes Research Institute (PCORI) has funded to help develop a community of patients and other stakeholders equipped to participate as partners in comparative clinical effectiveness research (CER) and disseminate PCORI-funded study results. Through the Engagement Award Program, PCORI is creating an expansive network of individuals, communities, and organizations interested in and able to participate in, share, and use patient-centered CER. Click here for more information on this PCORI Engagement Award.

        Webinar: Diagnosing and Treating Ectodermal Dysplasias

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        The National Foundation for Ectodermal Dysplasias (NFED) welcomes you to attend this webinar to hear an overview of the ectodermal dysplasias, the associated dermatological manifestations, the importance of patient advocacy groups and understand the struggles of living with ectodermal dysplasias through a patient presentation.

        Diagnosing and Treating Ectodermal Dysplasias: Dermatological Manifestations of Ectodermal Dysplasias and Patient Case Presentation
        Wednesday, October 12, 2022, 4:00PM PT / 7:00PM ET

        Agenda Coming Soon

        Guest Speaker: Elaine Siegfried, MD

        register here

        Elaine Siegfried, MD

        Pediatric Dermatologist

        Dr. Siegfried is the Director of Pediatric Dermatology at SSM Cardinal Glennon Children’s Medical Center. She is also a Professor of Pediatrics and Dermatology at Saint Louis University School of Medicine.

          Post-Market Surveillance of the Safety of Systemic JAK Inhibitors for Dermatologic Diseases in Children

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          Principal Investigator:

          Jeff Yu, MD
          Massachusetts General Hospital

          Overview:

          Oral Janus Kinase inhibitors (JAKi) are novel therapeutic options for patients with various inflammatory skin conditions, such as alopecia areata, atopic dermatitis, and psoriasis. Currently, most of the data that exists on the long-term side effects of JAKis comes from the rheumatology literature, where JAKis are used to treat highly inflammatory systemic diseases (i.e. rheumatoid arthritis). There is scant literature on the side effect profile or recommended laboratory monitoring during the use of JAKis in dermatologic conditions. Thus, the purpose of this database will be to provide pediatric dermatologists with accurate safety information and appropriate lab monitoring during the use of JAKis in the treatment of cutaneous inflammatory diseases, such as those listed above.

          Status:

          This project is new and needs additional sites. If you are interested in joining this study, please contact Hadley Johnson.

          Webinar: Care of Congenital Melanocytic Nevi in Newborns and Infants

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          Care of Congenital Melanocytic Nevi in Newborns and Infants

          Marla Jahnke, MD discusses the findings of her most recent collaborative study – Care of Congenital Melanocytic Nevi (CMN) in Newborns and Infants: Review and Management Recommendations. Learn more about the current state of knowledge around CMN care and monitoring and recommendations for future guidelines.

          Marla Jahnke, MD

          Dr. Jahnke is a pediatric dermatologist at Henry Ford Health.

            Pediatric Alopecia Areata Challenge Grant – ACCEPTING APPLICATIONS

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            Overview

            Alopecia areata (AA) is a common autoimmune skin disease that causes hair loss on the scalp, face, and sometimes on other areas of the body, and affects as many as 147 million people worldwide. Nearly half of patients experience their first episode of alopecia areata before age 20. A diagnosis early in life is linked to higher disease severity and poorer prognosis, making pediatric alopecia areata an important target for research and therapeutic intervention. Despite recent advances, there are no FDA-approved treatments for pediatric alopecia areata. The burdens on these patients, and their families, can be significant and many important research questions remain unanswered.

            To address this need, the National Alopecia Areata Foundation (NAAF) and PeDRA are collaborating to support research investigations focused on pediatric alopecia areata with the Pediatric Alopecia Areata Challenge Grant. Through this grant, NAAF and PeDRA intend to accelerate research that improves the lives of pediatric alopecia areata patients and their families.

            Focus

            This Challenge Grant is intended to stimulate scientists to establish or sustain research programs focused on pediatric alopecia areata. Investigators with any innovative research idea are encouraged to apply for the challenge grant, with priority consideration given to proposals that address one or more of the following areas of interest:

            • Investigations of targets or pathways that will advance understanding of the pathophysiology of pediatric AA
            • Investigations of epidemiology or the natural history of pediatric AA
            • Elucidation of the burden of pediatric alopecia areata on patients and families including the psychosocial impact
            • Advances in treatment or tools for treatment decision-making by patients and families

            Priority consideration will be given to projects led by early-to-mid career principal investigators collaborating with senior mentors and projects that address high-priority research questions. Additional priority will be given to applications that support NAAF and PeDRA’s commitments to advancing equity, diversity, and inclusion across all facets of their organizations and the research they support.

            Important Details

            • Up to $50,000 to support one year of research
            • One award anticipated for this funding cycle
            • Earliest project start date: Wednesday, February 15, 2023
            • Application deadline: Tuesday, November 15, 2022

            View the RFP
            view the application

            Consensus Grant Program – ACCEPTING APPLICATIONS

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            Overview
            Evidence-based consensus recommendations published by experts in the management of disease are a critical fiber of the healthcare fabric. Healthcare providers rely on guidelines and expert recommendations to inform treatment decisions and insurance providers rely on these to design formularies. Researchers compare new therapeutic or procedural interventions to standard-of-care practice guidelines in randomized controlled trials. However, many diseases still lack up-to-date recommendations or expert consensus recommendations, resulting in wide variability in practice patterns, and leaving many patients without access to treatment they need. Evidence-based guidelines and expert consensus best practice recommendations are lacking for many pediatric skin diseases.

            To help address this need, PeDRA is calling for submissions to its 2022 Consensus Grant program, which will provide up to $25,000 of support for the creation of consensus recommendations, best practice recommendations, or consensus treatment plans for the treatment of diseases in the field of pediatric dermatology in the United States and/or Canada. Interested teams are invited to submit proposals to create consensus-based recommendations or best practice recommendations for a disease of their choice, using a rigorous methodology of their choice. However, priority will be given to proposals that address diseases for which contemporary guidelines do not exist, and which use established consensus methodology.

            Important Details

            • Up to $25,000 for one year to support the creation of consensus recommendations or best practice recommendations for the management of diseases in the field of pediatric dermatology
            • Applications due Thursday, December 1, 2022


            2022 Consensus grant rfa
            2022 consensus grant application


            Past Consensus Grant Recipients:

            Nanette Silverberg, MD

            2021 Consensus Grant

            Icahn School of Medicine at Mount Sinai

            Pediatric and Adolescent Vitiligo Guidelines

            Read More…

              Alex Zvulunov, MD & Elena Pope, MD, MsC

              2019 Consensus Guidelines Award

              Ben-Gurion University

              Consensus-based recommendations for management of pediatric Mycosis Fungoides: the ARMFUL (AppRoach Mycosis FUngoides in chiLdren) study

              Read More…

              Lara Wine Lee, MD, PhD

              2020 Consensus Grant

              Medical University of South Carolina

              Capillary Malformation-Arteriovenous Malformation Syndrome Guidelines

              Read More…