Since day-one, PeDRA has worked in close partnership with patient advocacy organizations. Each of these groups has provided vital resources to build PeDRA into a successful research network, and expert guidance to set it on the right course. PeDRA would not be where it is today without its patient advocacy partnerships.
In 2019, PeDRA was awarded an Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI) to build capacity for patient centered outcomes research in pediatric dermatology. Thanks to this award, PeDRA has been able to give more back to patient advocacy organizations, and to elevate their role as active research partners.
We are grateful to count these patient advocacy organizations as PeDRA partners:
A list of patient advocacy organizations in the field of pediatric dermatology can be found on our Advocacy and Support Groups page. For more information on our industry partnerships, please visit the Our Supporters page.
Please contact us if you’re interested in partnering with PeDRA in the fight against pediatric skin diseases.