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Pediatric Dermatology Research Alliance

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        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

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Inflammatory Skin Disease

Inflammatory skin diseases are common and associated with challenging physical symptoms, psychosocial burden, and systemic comorbidities. Recent scientific advances have improved our understanding of inflammatory skin diseases and led to many efficacious, FDA-approved treatment options. However, not all treatments are approved in children and questions remain surrounding long-term effects of diseases and treatments.  

Goals of the Inflammatory Skin Disease Working Group are to define and address unmet research needs in inflammatory skin diseases, to discover new therapies, and to advance our understanding of biomarkers, genetic influences, and disease co-morbidities. PeDRA’s Inflammatory Skin Disease Working Group is divided into five overlapping subgroups:

  • Psoriasis, chaired by Amy Paller, MD of Northwestern University, Kelly Cordoro, MD of UCSF, and Kristi Holland, MD of MCW
  • Atopic dermatitis, chaired by Wynnis Tom, MD and Larry Eichenfield, MD of UCSD
  • Connective tissue and autoinflammatory disorders, chaired by Yvonne Chiu, MD of MCW
  • Acne and hidradenitis, chaired by Albert Yan, MD of CHOP
  • Hair, nails, and special sites, chaired by Leslie Castelo-Soccio, MD, PhD of CHOP and Nanette Silverberg, MD of Mt. Sinai

Contact us if you’re interested in getting involved!

Active Studies

A Pilot Study to Assess the Impact of a Validated Illustrated Eczema Action Plan on Pediatric Patients

Antibiotic/Antimicrobial Resistance in Atopic Dermatitis

Atopic Dermatitis: An Assessment of Lesional Morphology by Race/Ethnicity

Characterization of Lipoprotein Composition and Function in Pediatric Psoriasis Before and After Treatment

Development of a Pediatric Lichen Sclerosus Grading Scale

Discovering the Immune Phenotype of Morphologic Subsets of Atopic Dermatitis at the Single Cell Level

Expanding Access to Severe Acne Care for Navajo Adolescents Through Education

Fecal Microbiome in Alopecia Areata

Hidradenitis Suppurativa in Pediatric Population

Pediatric Contact Dermatitis Registry Using New Baseline Series for Children

Pediatric Psoriasis Comorbidity Screening Guidelines and Implementation and Education via an Electronic Platform

Psoriasis and psoriasiform reactions in children receiving anti-TNF medications

Quality of Life of Parents with Children with Alopecia Areata

Retrospective Review of Topical Immunotherapy for Alopecia Areata

Studying Topical Adherence in Atopic Dermatitis: What We Can Learn from Positive Outliers

Systemic Treatment of Atopic Dermatitis

The Relationship between the Cutaneous Microbiome and Skin Barrier in Infantile Atopic Dermatitis

Understanding Racial/Ethnic Disparities in Health Care Utilization for Childhood Atopic Dermatitis

Utilization of the Topical Steroid Volume Calculator and its Effect on Atopic Dermatitis Clinical Outcomes

Publications 

Putterman, Elana, et al. “Severity of disease and quality of life in parents of children with alopecia areata, totalis, and universalis: a prospective, cross-sectional study.” Journal of the American Academy of Dermatology (2019)

Arkin, Lisa, et al. “Practice-Based Differences in Pediatric Discoid Lupus Erythmatosus.” British Journal of Dermatology (2019)

Singer, Hannah M., et al. “Texting atopic dermatitis patients to optimize learning and eczema area and severity index scores: A pilot randomized control trial.” Pediatric Dermatology (2018)

Siegfried, Elaine C., et al. “Developing drugs for treatment of atopic dermatitis in children (≥ 3 months to< 18 years of age): Draft guidance for industry.” Pediatric Dermatology (2018)

Bronckers, Inge MGJ, et al. “Safety of systemic agents for the treatment of pediatric psoriasis.” JAMA Dermatology (2017)

Osier, Emily, et al. “Pediatric Psoriasis Comorbidity Screening Guidelines.” JAMA Dermatology (2017)

Totri, Christine R., et al. “Prescribing practices for systemic agents in the treatment of severe pediatric atopic dermatitis in the US and Canada: The PeDRA TREAT survey.” Journal of the American Academy of Dermatology (2017)

Siegfried, Elaine C., et al. “Optimizing Clinical Trials for Atopic Dermatitis in Children.” Journal of Investigative Dermatology (2017)

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