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SUMMARY:PeDRA Webinar - Epidermolysis Bullosa in Real-World Practice: Complex Cases\, and Research Gaps
DESCRIPTION:Join us for a new webinar! \nMonday\, November 16\, 2026\n11:30 AM PT / 2:30 PM ET \nHosted in partnership with Chiesi\, this webinar will explore real-world strategies for caring for patients with epidermolysis bullosa (EB)\, drawing on the Cincinnati team’s clinical and research experience. Through case-based examples and practical clinical pearls\, presenters will discuss treatment expectations\, adherence\, wound care\, procedural considerations\, and management of complex needs across EB subtypes. The discussion will also connect clinical experience to research by highlighting current evidence gaps\, ongoing studies\, and opportunities for future investigation. Attendees will gain practical insights into how an EB specialty center approaches patient care while identifying areas where research can help advance clinical guidance. \nRegister by Friday\, November 13. Email Jenn Dawson to register.  \nShare
URL:https://pedraresearch.org/event/pedra-webinar-epidermolysis-bullosa-in-real-world-practice-complex-cases-and-research-gaps/
CATEGORIES:PeDRA Conferences and Events
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LOCATION:https://pedraresearch.org/event/pedra-webinar-epidermolysis-bullosa-in-real-world-practice-complex-cases-and-research-gaps/
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DTSTART;TZID=America/Denver:20261119T110000
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SUMMARY:PeDRA Webinar - Shifting Perspectives: A Fresh Look at Pediatric AD
DESCRIPTION:Join us for a new webinar! \nThursday\, November 19\, 2026\n11 AM PT / 2 PM ET \nThis ADVENT program will feature a comprehensive presentation led by Dr. Amy Paller and Dr. Elaine Siegfried\, focusing on common misconceptions around pediatric atopic dermatitis (AD). The session will explore the connection between pediatric AD and the development of food allergy\, the unique roles of type 2 inflammatory cytokines in AD pathogenesis\, and how the burden of pediatric AD can extend beyond the skin. Through expert insights and evidence-based discussion\, the program aims to clarify key concepts in AD pathophysiology and discuss lasting disease burden\, ultimately enhancing clinical understanding and improving prompt care for pediatric patients with AD. \nHosted in partnership with Sanofi and Regeneron Pharmaceuticals. \nRegister by Tuesday\, November 17. Email Jenn Dawson to register.  \nShare
URL:https://pedraresearch.org/event/pedra-webinar-shifting-perspectives-a-fresh-look-at-pediatric-ad/
CATEGORIES:PeDRA Conferences and Events
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LOCATION:https://pedraresearch.org/event/pedra-webinar-shifting-perspectives-a-fresh-look-at-pediatric-ad/
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DTSTART;VALUE=DATE:20270416
DTEND;VALUE=DATE:20270418
DTSTAMP:20261001T160442Z
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UID:10000082-1807833600-1808006399@pedraresearch.org
SUMMARY:2027 PeDRA Pathways to Progress Summit
DESCRIPTION:Share
URL:https://pedraresearch.org/event/2027-pedra-pathways-to-progress-summit/
LOCATION:Baltimore\, TN
CATEGORIES:PeDRA Conferences and Events
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DTSTART;VALUE=DATE:20271014
DTEND;VALUE=DATE:20271017
DTSTAMP:20260923T132741Z
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LAST-MODIFIED:20260923T132741Z
UID:10000076-1823472000-1823731199@pedraresearch.org
SUMMARY:15th PeDRA Annual Conference
DESCRIPTION:Share
URL:https://pedraresearch.org/event/15th-pedra-annual-conference/
LOCATION:Dallas\, TN
CATEGORIES:PeDRA Conferences and Events
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