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Pediatric Dermatology Research Alliance

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        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

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Education Archive

ARCHIVE

Webinar: Demographic Factors and Infantile Hemangioma Characteristics

Association of Demographic Factors and Infantile Hemangioma Characteristics with Risk of PHACE Syndrome Dr. Colleen Cotton discusses the findings of her most recent collaborative study – Association of Demographic Factors and Infantile Hemangioma Characteristics with Risk of PHACE Syndrome. Learn more about hemangioma patterns that might suggest greater or lower…

——————————— Webinar: Demographic Factors and Infantile Hemangioma Characteristics

Webinar: Body Site Distribution of Pediatric-Onset Morphea and Association with Extracutaneous Manifestations

Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations Dr. Yvonne Chiu discusses the findings of her most recent collaborative study – Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations. Learn about the different morphea categories, and whether or not certain locations of linear morphea…

——————————— Webinar: Body Site Distribution of Pediatric-Onset Morphea and Association with Extracutaneous Manifestations

Webinar: Catalyzing Your Research: From Idea to Action

Live webinar on Tuesday, April 27, 2021 at 5:30 PM PT / 8:30 PM ET. So you’ve got the funding, now how do you make the research happen? Hear from three funded PeDRA investigators and learn how they assembled their teams, tackled the paperwork, and got their projects off the…

——————————— Webinar: Catalyzing Your Research: From Idea to Action

Virtual Journal Club – April 2021

Live event on Thursday, April 22, 2021 at 5:00 PM PT / 8:00 PM ET. Featuring Larry Eichenfield, MD, Vikash Oza, MD, and Erin Roberts, MD

——————————— Virtual Journal Club – April 2021

Webinar: Clinical Features, Prognostic Factors, and Treatment Interventions for Ulceration in Patients with Infantile Hemangioma

Clinical Features, Prognostic Factors, and Treatment Interventions for Ulceration in Patients with Infantile Hemangioma. This collaborative study examined the effectiveness of current interventions like propranolol and other beta blockers for the treatment of ulcerated infantile hemangiomas. Learn more about the study and whether features in patients and/or hemangiomas can help…

——————————— Webinar: Clinical Features, Prognostic Factors, and Treatment Interventions for Ulceration in Patients with Infantile Hemangioma

Webinar: Hidradenitis Suppurativa in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients

Hidradenitis Suppurative in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients This international, multicenter, retrospective, cross-sectional study of 481 pediatric patients revealed a gap in diagnosis, and that HS patients are likely to suffer from other comorbidities. Learn more about the study, recommendations for managing…

——————————— Webinar: Hidradenitis Suppurativa in the Pediatric Population: An International, Multicenter, Retrospective, Cross-sectional Study of 481 Pediatric Patients

Webinar: Gene Therapy for Large Chronic RDEB Wounds

Live webinar on Wednesday, April 14, 2021 at 5:00PM PT / 8:00PM ET. Hosted in partnership with Abeona Therapeutics, this webinar will provide an overview and update on gene therapy for large chronic wounds in recessive dystrophic epidermolysis bullosa (RDEB), with a presentation from Jean Tang, MD, PhD, Professor of…

——————————— Webinar: Gene Therapy for Large Chronic RDEB Wounds

Survey 101 – Building a Research Survey

This three-part series of short on-demand webinars provides a high level overview of the design, execution, and analysis of an online research survey. Covering everything from building a survey team, to sampling techniques, to data collection and preparation for publication, this series will position investigators for success and protect the…

——————————— Survey 101 – Building a Research Survey

PeDRA Session at SID

Recorded live on Wednesday, May 5, 2021. Hosted by Carrie Coughlin, MD from Washington University School of Medicine and Amy Paller, MD, MS from Northwestern University, this session will featured keynote speaker Eli Sprecher, MD, PhD from Tel Aviv Sourasky Medical Center and presentations from five selected abstracts. Follow the link…

——————————— PeDRA Session at SID

Webinar: Using Social Media to Advance Your Career

Hosted on February 10, 2021. Learn how to promote your science via social media channels. Featured presenters Dr. John Harris, and Dr. Daniel Sugai shared their experiences with social media and answered questions. This program is run in partnership with the Society for Pediatric Dermatology Junior Faculty/Fellows Committee. Using Social…

——————————— Webinar: Using Social Media to Advance Your Career

Webinar: Understanding EB Biology and Recent Advances in EB Clinical Research and Q&A Session

Hosted on January 11, 2021. PeDRA President-Elect Anna Bruckner, MD, MSCS gave a presentation on basic biology underlying EB and recent advances in EB clinical research. Webinar sponsored by Amryt Research Ltd. Understanding EB Biology and Recent Advances in EB Clinical Research and Q&A Session, Sponsored by Amryt Research Ltd.Monday,…

——————————— Webinar: Understanding EB Biology and Recent Advances in EB Clinical Research and Q&A Session

Webinar: EB-101 Clinical Development Update and Q&A Session

Hosted on November 12, 2020 in partnership with Abeona Therapeutics, this webinar presented cutting edge clinical development updates towards the treatment of epidermolysis bullosa. The webinar featured presentations from Jean Tang, MD, PhD (Professor of Dermatology, Stanford University Medical Center and Principal Investigator, EB-101 pivotal Phase 3 VIITAL study) and…

——————————— Webinar: EB-101 Clinical Development Update and Q&A Session

Series: Emerging Therapies for Moderate-to-Severe Atopic Dermatitis in Children

Moderate-to-severe atopic dermatitis is associated with negative impacts on quality of life and health outcomes in all age groups, with the impact on children and families being uniquely severe. However, the rapid pace of drug development and uncertainty around novel medications may impact the shared decision-making process and lead to suboptimal…

——————————— Series: Emerging Therapies for Moderate-to-Severe Atopic Dermatitis in Children

Town Hall: Impacts of COVID-19 on Children with Dermatological Disease

In collaboration with PeDRA, GlobalSkin hosted a virtual townhall on June 30, 2020 with Dr. Kelly Cordoro and Dr. Amy Paller to discuss the impact of COVID-19 on children and action being taken by the pediatric dermatology researchers. https://www.youtube.com/watch?v=Jjegb07uMCg&feature=youtu.be GlobalSkin, also known as the International Alliance for Dermatology Patient Organizations (IADPO),…

——————————— Town Hall: Impacts of COVID-19 on Children with Dermatological Disease

Webinar: From the NICU to Eczema and the Value of Research Funding

Tune in to hear Jennifer Schoch, MD from University of Florida discuss her research in the microbiome and eczema, and learn about the value of PeDRA funding. https://youtu.be/mYbkdxl1Vxo Jennifer Schoch, MDJennifer Schoch, MD is Pediatric Dermatologist and Assistant Professor of Dermatology at the University of Florida. She is the recipient…

——————————— Webinar: From the NICU to Eczema and the Value of Research Funding

Webinar: Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes

Olivia Davies, MD discusses the findings of a recent publication – Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes. https://youtu.be/Cn94bG7MumE Olivia Davies, MDDr. Davies was the 2019-2021 PeDRA fellow and is now a dermatology resident at Harvard University.

——————————— Webinar: Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes

Podcast: A Roadmap for Navigating the New Eczema Treatment Landscape with Dr. Eric Simpson

Through a special partnership with Global Parents for Eczema Research (GPER), PeDRA co-hosted a podcast interview with Dr. Eric Simpson from OHSU on June 5, 2020.  The podcast features a roadmap of new and emerging eczema treatments and Q&A with a small group of parents and early career PeDRA investigators. …

——————————— Podcast: A Roadmap for Navigating the New Eczema Treatment Landscape with Dr. Eric Simpson

Webinar: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis

Lisa Arkin, MD presents the findings of a recent PeDRA study: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis. https://youtu.be/EqAjmQ8bDm4 Lisa Arkin, MDLisa Arkin, MD is the Director of Pediatric Dermatology and Assistant Professor of Dermatology at the University of Wisconsin, Madison. She has been a member of PeDRA…

——————————— Webinar: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis

PeDRA Session at 2020 SID Virtual Meeting

Watch PeDRA’s Session at the 2020 Society for Investigative Dermatology Virtual Meeting. https://youtu.be/ntimFWfn3mQ

——————————— PeDRA Session at 2020 SID Virtual Meeting

Webinar: Understanding Clinical Research

Co-founding PeDRA member, Anna Bruckner, MD, MSCS provides an overview of what clinical research is, how it works, who benefits, and why it’s important. https://youtu.be/4pE1sh-nCEY Anna Bruckner, MD, MSCSDr. Bruckner is Associate Professor of Dermatology and Pediatrics and at the University of Colorado School of Medicine and Director of Pediatric…

——————————— Webinar: Understanding Clinical Research

Series: How Patients Fuel Innovation

Both webinars in this miniseries are now available! Watch and listen as Suz Schrandt, JD discusses the important role patients play in capturing meaningful data and how PeDRA investigators can engage them as strategy partners in data collection. Part One: Patients as Data Partners Part One: Patients as Data Partners…

——————————— Series: How Patients Fuel Innovation

Webinar: 2019 Overview of PeDRA’s Patient Engagement Efforts

Learn about the PCORI Award PeDRA received in 2019, as well as patient centered proceedings from the 2019 Annual Conference. Audio Only Below

——————————— Webinar: 2019 Overview of PeDRA’s Patient Engagement Efforts

Webinar: Overview of the PeDRA Research Toolkit

This presentation includes an overview of the collaborative research process, an overview of the support that PeDRA provides at each stage, and links to external resources intended to help PeDRA Studies get off the ground and succeed. full toolkit here Audio Only Below

——————————— Webinar: Overview of the PeDRA Research Toolkit

Handout: Patient Perspectives on Pediatric Skin Cancer

——————————— Handout: Patient Perspectives on Pediatric Skin Cancer

Webpage: Master the Basecamp Basics

Short videos from Basecamp on how to use it.

——————————— Webpage: Master the Basecamp Basics

Webpage: Magic Wand Initiative

——————————— Webpage: Magic Wand Initiative

Webpage: MIT OpenCourseWare

——————————— Webpage: MIT OpenCourseWare

Webinar: Finding a Job

——————————— Webinar: Finding a Job

Webpage: Engagement Tool and Resource Repository from PCORI

——————————— Webpage: Engagement Tool and Resource Repository from PCORI

Webinar: Understanding Academic Fiscal Models and Contracting to Maximize Your Career

——————————— Webinar: Understanding Academic Fiscal Models and Contracting to Maximize Your Career

Webpage: Explanation of NIH funding opportunities

——————————— Webpage: Explanation of NIH funding opportunities

Webpage: How to apply for an NIH grant

——————————— Webpage: How to apply for an NIH grant

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