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Pediatric Dermatology Research Alliance

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          The 2021 PeDRA Annual Conference will take place October 14-16, 2021 in Bethesda, MD.

           

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          Applications are now being accepted to the 2021 PeDRA Research Fellowships program. Deadline to apply is Thursday, April 1, 2021.

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Education Archive

ARCHIVE

Webinar: Understanding EB Biology and Recent Advances in EB Clinical Research and Q&A Session

Join PeDRA on Monday, January 11 at 5:30 PM PST / 8:30 PM EST. PeDRA President-Elect Anna Bruckner, MD, MSCS will give a presentation on basic biology underlying EB and recent advances in EB clinical research. Pre-registration is required. Webinar sponsored by Amryt Research Ltd. Understanding EB Biology and Recent…

——————————— Webinar: Understanding EB Biology and Recent Advances in EB Clinical Research and Q&A Session

Webinar: EB-101 Clinical Development Update and Q&A Session

Join PeDRA on Thursday, November 12 for a sponsored webinar being hosted in partnership with Abeona Therapeutics on cutting edge clinical development updates towards the treatment of epidermolysis bullosa. The webinar will feature presentations from Jean Tang, MD, PhD (Professor of Dermatology, Stanford University Medical Center and Principal Investigator, EB-101…

——————————— Webinar: EB-101 Clinical Development Update and Q&A Session

Series: Emerging Therapies for Moderate-to-Severe Atopic Dermatitis in Children

Moderate-to-severe atopic dermatitis is associated with negative impacts on quality of life and health outcomes in all age groups, with the impact on children and families being uniquely severe. However, the rapid pace of drug development and uncertainty around novel medications may impact the shared decision-making process and lead to suboptimal…

——————————— Series: Emerging Therapies for Moderate-to-Severe Atopic Dermatitis in Children

Town Hall: Impacts of COVID-19 on Children with Dermatological Disease

In collaboration with PeDRA, GlobalSkin hosted a virtual townhall on June 30, 2020 with Dr. Kelly Cordoro and Dr. Amy Paller to discuss the impact of COVID-19 on children and action being taken by the pediatric dermatology researchers. https://www.youtube.com/watch?v=Jjegb07uMCg&feature=youtu.be GlobalSkin, also known as the International Alliance for Dermatology Patient Organizations (IADPO),…

——————————— Town Hall: Impacts of COVID-19 on Children with Dermatological Disease

Webinar: From the NICU to Eczema and the Value of Research Funding

Tune in to hear Jennifer Schoch, MD from University of Florida discuss her research in the microbiome and eczema, and learn about the value of PeDRA funding. https://youtu.be/L6VAa-sn9B8 Jennifer Schoch, MD is Pediatric Dermatologist and Assistant Professor of Dermatology at the University of Florida. She is the recipient of a…

——————————— Webinar: From the NICU to Eczema and the Value of Research Funding

Webinar: Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes

Olivia Davies, MD Candidate and PeDRA Fellow discusses the findings of a recent publication – Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes. https://youtu.be/P2SxrfVAGdY Olivia Davies is a third year medical student at the Medical College of Wisconsin. She is currently the ’20-’21 PeDRA Fellow.…

——————————— Webinar: Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes

Podcast: A Roadmap for Navigating the New Eczema Treatment Landscape with Dr. Eric Simpson

Through a special partnership with Global Parents for Eczema Research (GPER), PeDRA co-hosted a podcast interview with Dr. Eric Simpson from OHSU on June 5, 2020.  The podcast features a roadmap of new and emerging eczema treatments and Q&A with a small group of parents and early career PeDRA investigators. …

——————————— Podcast: A Roadmap for Navigating the New Eczema Treatment Landscape with Dr. Eric Simpson

Webinar: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis

Lisa Arkin, MD presents the findings of a recent PeDRA study: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis. https://youtu.be/-uSPcmZAg48 Lisa Arkin, MD is the Director of Pediatric Dermatology and Assistant Professor of Dermatology at the University of Wisconsin, Madison. She has been a member of PeDRA since it’s…

——————————— Webinar: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis

PeDRA Session at 2020 SID Virtual Meeting

Watch PeDRA’s Session at the 2020 Society for Investigative Dermatology Virtual Meeting. https://youtu.be/ntimFWfn3mQ

——————————— PeDRA Session at 2020 SID Virtual Meeting

Webinar: Understanding Clinical Research

Co-founding PeDRA member, Anna Bruckner, MD, MSCS provides an overview of what clinical research is, how it works, who benefits, and why it’s important. Anna L. Bruckner, MD, MSCS Dr. Bruckner is Associate Professor of Dermatology and Pediatrics and at the University of Colorado School of Medicine and Director of…

——————————— Webinar: Understanding Clinical Research

Series: How Patients Fuel Innovation

Both webinars in this miniseries are now available! Watch and listen as Suz Schrandt, JD discusses the important role patients play in capturing meaningful data and how PeDRA investigators can engage them as strategy partners in data collection. Part One: Patients as Data Partners Part One: Patients as Data Partners…

——————————— Series: How Patients Fuel Innovation

Webinar: 2019 Overview of PeDRA’s Patient Engagement Efforts

Learn about the PCORI Award PeDRA received in 2019, as well as patient centered proceedings from the 2019 Annual Conference. Audio Only Below

——————————— Webinar: 2019 Overview of PeDRA’s Patient Engagement Efforts

Webinar: Overview of the PeDRA Research Toolkit

This presentation includes an overview of the collaborative research process, an overview of the support that PeDRA provides at each stage, and links to external resources intended to help PeDRA Studies get off the ground and succeed. full toolkit here Audio Only Below

——————————— Webinar: Overview of the PeDRA Research Toolkit

Handout: Patient Perspectives on Pediatric Skin Cancer

——————————— Handout: Patient Perspectives on Pediatric Skin Cancer

Webpage: Master the Basecamp Basics

Short videos from Basecamp on how to use it.

——————————— Webpage: Master the Basecamp Basics

Webpage: Magic Wand Initiative

——————————— Webpage: Magic Wand Initiative

Webpage: MIT OpenCourseWare

——————————— Webpage: MIT OpenCourseWare

Webinar: Finding a Job

——————————— Webinar: Finding a Job

Webpage: Engagement Tool and Resource Repository from PCORI

——————————— Webpage: Engagement Tool and Resource Repository from PCORI

Webinar: Understanding Academic Fiscal Models and Contracting to Maximize Your Career

——————————— Webinar: Understanding Academic Fiscal Models and Contracting to Maximize Your Career

Webpage: Explanation of NIH funding opportunities

——————————— Webpage: Explanation of NIH funding opportunities

Webpage: How to apply for an NIH grant

——————————— Webpage: How to apply for an NIH grant

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