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Webinar: Understanding EB Biology and Recent Advances in EB Clinical Research and Q&A Session
Hosted on January 11, 2021. PeDRA President-Elect Anna Bruckner, MD, MSCS gave a presentation on basic biology underlying EB and recent advances in EB clinical research. Webinar sponsored by Amryt Research Ltd. Understanding EB Biology and Recent Advances in EB Clinical Research and Q&A Session, Sponsored by Amryt Research Ltd.Monday,…
Webinar: EB-101 Clinical Development Update and Q&A Session
Hosted on November 12, 2020 in partnership with Abeona Therapeutics, this webinar presented cutting edge clinical development updates towards the treatment of epidermolysis bullosa. The webinar featured presentations from Jean Tang, MD, PhD (Professor of Dermatology, Stanford University Medical Center and Principal Investigator, EB-101 pivotal Phase 3 VIITAL study) and…
——————————— Webinar: EB-101 Clinical Development Update and Q&A Session
Series: Emerging Therapies for Moderate-to-Severe Atopic Dermatitis in Children
Moderate-to-severe atopic dermatitis is associated with negative impacts on quality of life and health outcomes in all age groups, with the impact on children and families being uniquely severe. However, the rapid pace of drug development and uncertainty around novel medications may impact the shared decision-making process and lead to suboptimal…
——————————— Series: Emerging Therapies for Moderate-to-Severe Atopic Dermatitis in Children
Town Hall: Impacts of COVID-19 on Children with Dermatological Disease
In collaboration with PeDRA, GlobalSkin hosted a virtual townhall on June 30, 2020 with Dr. Kelly Cordoro and Dr. Amy Paller to discuss the impact of COVID-19 on children and action being taken by the pediatric dermatology researchers. https://www.youtube.com/watch?v=Jjegb07uMCg&feature=youtu.be GlobalSkin, also known as the International Alliance for Dermatology Patient Organizations (IADPO),…
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Webinar: From the NICU to Eczema and the Value of Research Funding
Tune in to hear Jennifer Schoch, MD from University of Florida discuss her research in the microbiome and eczema, and learn about the value of PeDRA funding. https://youtu.be/L6VAa-sn9B8 Jennifer Schoch, MD is Pediatric Dermatologist and Assistant Professor of Dermatology at the University of Florida. She is the recipient of a…
——————————— Webinar: From the NICU to Eczema and the Value of Research Funding
Webinar: Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes
Olivia Davies, MD Candidate and PeDRA Fellow discusses the findings of a recent publication – Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes. https://youtu.be/P2SxrfVAGdY Olivia Davies is a third year medical student at the Medical College of Wisconsin. She is currently the ’20-’21 PeDRA Fellow.…
Podcast: A Roadmap for Navigating the New Eczema Treatment Landscape with Dr. Eric Simpson
Through a special partnership with Global Parents for Eczema Research (GPER), PeDRA co-hosted a podcast interview with Dr. Eric Simpson from OHSU on June 5, 2020. The podcast features a roadmap of new and emerging eczema treatments and Q&A with a small group of parents and early career PeDRA investigators. …
Webinar: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis
Lisa Arkin, MD presents the findings of a recent PeDRA study: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis. https://youtu.be/-uSPcmZAg48 Lisa Arkin, MD is the Director of Pediatric Dermatology and Assistant Professor of Dermatology at the University of Wisconsin, Madison. She has been a member of PeDRA since it’s…
PeDRA Session at 2020 SID Virtual Meeting
Watch PeDRA’s Session at the 2020 Society for Investigative Dermatology Virtual Meeting. https://youtu.be/ntimFWfn3mQ
Webinar: Understanding Clinical Research
Co-founding PeDRA member, Anna Bruckner, MD, MSCS provides an overview of what clinical research is, how it works, who benefits, and why it’s important. Anna L. Bruckner, MD, MSCS Dr. Bruckner is Associate Professor of Dermatology and Pediatrics and at the University of Colorado School of Medicine and Director of…
Series: How Patients Fuel Innovation
Both webinars in this miniseries are now available! Watch and listen as Suz Schrandt, JD discusses the important role patients play in capturing meaningful data and how PeDRA investigators can engage them as strategy partners in data collection. Part One: Patients as Data Partners Part One: Patients as Data Partners…
Webinar: 2019 Overview of PeDRA’s Patient Engagement Efforts
Learn about the PCORI Award PeDRA received in 2019, as well as patient centered proceedings from the 2019 Annual Conference. Audio Only Below
——————————— Webinar: 2019 Overview of PeDRA’s Patient Engagement Efforts
Webinar: Overview of the PeDRA Research Toolkit
This presentation includes an overview of the collaborative research process, an overview of the support that PeDRA provides at each stage, and links to external resources intended to help PeDRA Studies get off the ground and succeed. full toolkit here Audio Only Below
Webpage: Master the Basecamp Basics
Short videos from Basecamp on how to use it.