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PeDRA

Pediatric Dermatology Research Alliance

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        • Save the Date! The 2023 PeDRA Annual Conference will be held November 9-11, 2023 at the Westin Buckhead Atlanta in Atlanta, GA.

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        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

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Cross-Cutting Research

PeDRA investigators are a diverse group of clinicians and scientists committed to serving children with skin disease through research. While these investigators often focus the bulk of their efforts on one or two specific research areas, they all posses a broad set of relevant skills and experiences. At the same time, patients and families living with childhood skin diseases face unique challenges related to their disease, but also share many of the same burdens. Things like the stigma attached to a visible disease, like viewing a lifetime with a chronic disease from the perspective of a child, like itch, like pain, and like discomfort.

Thanks to the strength of its members and its patient partners, PeDRA is in a unique position to address large-scale research questions that require a large amount of data and span multiple diseases. The outcome of this kind of research may change the public perception of pediatric skin diseases, communicate the importance of funding pediatric dermatology research, accelerate the regulatory path for new treatments, and much more.

Contact us if you have an idea for a cross-cutting research study.

Active Studies

An Examination of the Dermatologic Needs of Sexual/Gender Minority Youth

An International Study to Develop A Patient-Reported Outcome Measure for Scars (The SCAR-Q), and to Determine the Psychosocial Impact of Scarring

COVID Acral Ischemia/Perniosis in children

Effects of IBAT inhibitors on itch in pediatric liver disease patients

Publications

Coming soon.

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