PeDRA

Pediatric Dermatology Research Alliance

Education for Patients and Families

Webinar: Diagnosing and Treating Ectodermal Dysplasias

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The National Foundation for Ectodermal Dysplasias (NFED) welcomes you to attend this webinar to hear an overview of the ectodermal dysplasias, the associated dermatological manifestations, the importance of patient advocacy groups and understand the struggles of living with ectodermal dysplasias through a patient presentation.

Diagnosing and Treating Ectodermal Dysplasias: Dermatological Manifestations of Ectodermal Dysplasias and Patient Case Presentation

Guest Speaker: Elaine Siegfried, MD

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Elaine Siegfried, MD

Pediatric Dermatologist

Dr. Siegfried is the Director of Pediatric Dermatology at SSM Cardinal Glennon Children’s Medical Center. She is also a Professor of Pediatrics and Dermatology at Saint Louis University School of Medicine.

    Webinar: Care of Congenital Melanocytic Nevi in Newborns and Infants

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    Care of Congenital Melanocytic Nevi in Newborns and Infants

    Marla Jahnke, MD discusses the findings of her most recent collaborative study – Care of Congenital Melanocytic Nevi (CMN) in Newborns and Infants: Review and Management Recommendations. Learn more about the current state of knowledge around CMN care and monitoring and recommendations for future guidelines.

    Marla Jahnke, MD

    Dr. Jahnke is a pediatric dermatologist at Henry Ford Health.

      Webinar: Blistering severe cutaneous adverse reactions in children: proposal for paediatric-focused clinical criteria

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      Blistering severe cutaneous adverse reactions in children: proposal for paediatric-focused clinical criteria

      Blistering severe cutaneous adverse reaction in children: proposal for pediatric-focused clinical criteria. Dr. Michele Ramien summarizes a collaborative study on blistering severe cutaneous adverse reactions (SCAR) in children. It’s very important to diagnose these reactions early and accurately as they can be life-threatening. The study created categories that are more appropriate for diagnosing pediatric patients than what existed in the past. Watch to learn more about the impact on patients and next steps. Note to listeners: please turn up your volume.

      Michele Ramien, MD

      Dr. Ramien is a pediatric dermatologist and Associate Professor of Pediatrics at Alberta Children’s Hospital Research Institute.

        Webinar: Influence of Gender and Sexual Identity in Adolescent Skin Health

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        Influence in Gender and Sexual Identity in Adolescent Skin Health

        Dr. Markus Boos discusses the influence of gender and sexual identity in adolescent skin health. His findings reiterate the importance of recognizing implicit bias and ensuring sexual/gender minority (SGM) children are being treated with the same holistic, respectful care as non-SGM children. Watch to learn more.

        Markus Boos, MD, PhD

        Dr. Boos is an attending pediatric dermatologist at Seattle Children’s Hospital and Assistant Professor in the Department of Pediatrics.

          Webinar: Persistent Dysesthesias in Involuted Infantile Hemangiomas

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          Persistent Dysesthesias in Involuted Infantile Hemangiomas: An Uncommon Complication in a Common Condition

          Medical student and PeDRA Member, Mitchell Braun outlines this collaborative, multi-site chart review of persistent dysesthesias in involuted infantile hemangiomas. Learn the definitions of some commonly used medical terms and recommendations for future studies.

          Mitchell Braun

          Fourth year medical student at the University of California, San Francisco.