Watch PeDRA’s Session at the 2020 Society for Investigative Dermatology Virtual Meeting.
Archive
Webinar: Understanding Clinical Research
Co-founding PeDRA member, Anna Bruckner, MD, MSCS provides an overview of what clinical research is, how it works, who benefits, and why it’s important.
Anna L. Bruckner, MD, MSCS
Dr. Bruckner is Associate Professor of Dermatology and Pediatrics and at the University of Colorado School of Medicine and Director of Pediatric Dermatology at Children’s Hospital Colorado. She attended Northwestern University as part of the Honors Program in Medical Education, earning her MD in 1997. She completed residencies pediatrics and dermatology at the University of Colorado followed by a fellowship in pediatric dermatology at the University of California San Francisco. She maintains board-certification in dermatology and pediatric dermatology.
Dr. Bruckner is passionate about improving outcomes and quality of life for children with skin disorders through patient care, research, education and advocacy. Her academic interests include genetic skin disorders – particularly epidermolysis bullosa (EB), vascular anomalies, atopic dermatitis, and complex patients. She is the principal investigator for the Epidermolysis Bullosa Clinical Research Consortium, a network of North American EB care centers collaborating in clinic research aimed at improving the care and outcomes for patients with EB.
Dr. Bruckner is a founding member of the Pediatric Dermatology Research Alliance, has served on the Executive Committee and is currently chairing PeDRA Studies Committee.
Series: How Patients Fuel Innovation
Both webinars in this miniseries are now available! Watch and listen as Suz Schrandt, JD discusses the important role patients play in capturing meaningful data and how PeDRA investigators can engage them as strategy partners in data collection.
Part Two: Patients as Strategy Partners
Suz Schrandt is a patient and patient engagement advocate with a health and disability law background. She is the Founder and CEO of ExPPect, a patient engagement initiative aimed at putting skilled patient partners in the heart of healthcare innovation. Schrandt previously served as Director of Patient Engagement at the Arthritis Foundation, and as Deputy Director of Patient Engagement for the Patient-Centered Outcomes Research Institute (“PCORI”). Her career spans work in health reform, bioethics, genetic discrimination, and chronic disease self-management, as well as a long history in patient-led clinical training. Schrandt is one of nine voting members on the FDA’s inaugural Patient Engagement Advisory Committee, the Chairperson for the International Society of Pharmacoeconomics and Outcomes Research North American Patient Roundtable, and is an invited speaker at numerous US and international conferences. Schrandt received her law degree from the University of Kansas and has co-authored multiple peer-reviewed articles on health policy and the value of patient engagement.
Webinar: 2019 Overview of PeDRA’s Patient Engagement Efforts
Learn about the PCORI Award PeDRA received in 2019, as well as patient centered proceedings from the 2019 Annual Conference.
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Webinar: Overview of the PeDRA Research Toolkit
This presentation includes an overview of the collaborative research process, an overview of the support that PeDRA provides at each stage, and links to external resources intended to help PeDRA Studies get off the ground and succeed.
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Handout: Patient Perspectives on Pediatric Skin Cancer
Webpage: Master the Basecamp Basics
Short videos from Basecamp on how to use it.