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Pediatric Dermatology Research Alliance

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        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

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Archive

Podcast: A Roadmap for Navigating the New Eczema Treatment Landscape with Dr. Eric Simpson

June 17, 2020 By Mike Siegel

Through a special partnership with Global Parents for Eczema Research (GPER), PeDRA co-hosted a podcast interview with Dr. Eric Simpson from OHSU on June 5, 2020.  The podcast features a roadmap of new and emerging eczema treatments and Q&A with a small group of parents and early career PeDRA investigators.  Listen and share the 25-minute podcast, also available for download on these platforms:

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Filed Under: Archive, Education, For Patients, Podcasts

Webinar: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis

May 20, 2020 By Jenn Dawson

Lisa Arkin, MD presents the findings of a recent PeDRA study: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis.

Lisa Arkin, MD

Lisa Arkin, MD is the Director of Pediatric Dermatology and Assistant Professor of Dermatology at the University of Wisconsin, Madison. She has been a member of PeDRA since it’s inception and has served on several committees. She is the principal investigator for several PeDRA studies and was recently awarded a PeDRA Research grant to support her efforts in working towards a precision-based treatment for facial port wine birthmarks. She is currently the vice-chair for the PeDRA Meetings Committee, and previously chaired the Early Investigator Committee.

    Filed Under: Archive, Education, For Patients, Webinars

    PeDRA Session at 2020 SID Virtual Meeting

    May 15, 2020 By Jenn Dawson

    Watch PeDRA’s Session at the 2020 Society for Investigative Dermatology Virtual Meeting.

    Filed Under: Archive, Education, Special Session

    Webinar: Understanding Clinical Research

    March 20, 2020 By Jenn Dawson

    Co-founding PeDRA member, Anna Bruckner, MD, MSCS provides an overview of what clinical research is, how it works, who benefits, and why it’s important.

    Anna Bruckner, MD, MSCS

    Dr. Bruckner is Associate Professor of Dermatology and Pediatrics and at the University of Colorado School of Medicine and Director of Pediatric Dermatology at Children’s Hospital Colorado. Dr. Bruckner is a founding member of the Pediatric Dermatology Research Alliance, has served on the Executive Committee and is currently chairing PeDRA Studies Committee.

      Filed Under: Archive, Education, For Patients, Webinars

      Series: How Patients Fuel Innovation

      February 26, 2020 By Jenn Dawson

      Both webinars in this miniseries are now available! Watch and listen as Suz Schrandt, JD discusses the important role patients play in capturing meaningful data and how PeDRA investigators can engage them as strategy partners in data collection.

      Part One: Patients as Data Partners

      Audio Only
      Part One: Patients as Data Partners SlidesDownload

      Part Two: Patients as Strategy Partners

      Audio Only
      Part Two: Patients as Strategy Partners SlidesDownload

      Suz Schrandt is a patient and patient engagement advocate with a health and disability law background. She is the Founder and CEO of ExPPect, a patient engagement initiative aimed at putting skilled patient partners in the heart of healthcare innovation. Schrandt previously served as Director of Patient Engagement at the Arthritis Foundation, and as Deputy Director of Patient Engagement for the Patient-Centered Outcomes Research Institute (“PCORI”). Her career spans work in health reform, bioethics, genetic discrimination, and chronic disease self-management, as well as a long history in patient-led clinical training. Schrandt is one of nine voting members on the FDA’s inaugural Patient Engagement Advisory Committee, the Chairperson for the International Society of Pharmacoeconomics and Outcomes Research North American Patient Roundtable, and is an invited speaker at numerous US and international conferences. Schrandt received her law degree from the University of Kansas and has co-authored multiple peer-reviewed articles on health policy and the value of patient engagement.

      Filed Under: Archive, Education, For Patients, Series, Webinars

      Webinar: 2019 Overview of PeDRA’s Patient Engagement Efforts

      January 28, 2020 By Jenn Dawson

      Learn about the PCORI Award PeDRA received in 2019, as well as patient centered proceedings from the 2019 Annual Conference.

      Audio Only Below

      Filed Under: Archive, Education, For Patients, Webinars

      Webinar: Overview of the PeDRA Research Toolkit

      January 28, 2020 By Jenn Dawson

      This presentation includes an overview of the collaborative research process, an overview of the support that PeDRA provides at each stage, and links to external resources intended to help PeDRA Studies get off the ground and succeed.

      full toolkit here

      Audio Only Below

      Filed Under: Archive, Education, Webinars

      Handout: Patient Perspectives on Pediatric Skin Cancer

      November 20, 2019 By Mike Siegel

      Filed Under: Archive, Education, For Patients, Resource

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