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Pediatric Dermatology Research Alliance

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        • PeDRA is an independent 501(c)(3) nonprofit organization driven by the mission to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease.

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PeDRA Studies

By creating a collaborative network of researchers, PeDRA multiplies the power of individual scientists and enables them to work to together to tackle important questions and gaps in knowledge and therapeutics for pediatric skin diseases. Multicenter studies that are underway are listed below, with multiple other studies in planning phases. We welcome additional investigators and input!


Starting a PeDRA Study or Survey

PeDRA Studies and Surveys may be overseen by any active PeDRA member (the principal investigator) working in collaboration with at least one other investigator on a research study or survey relevant to the field of pediatric dermatology. The principal investigator must be a PeDRA member, but it is not a requirement that any other investigator be a member. Investigators may reside at either the same institution or at different institutions, however at least one investigator must reside at an institution within the United States, Canada, or Mexico. The same individual can submit an application on behalf of multiple studies, but only one application is allowed per study. Principal investigators must be willing to agree to ongoing communication with PeDRA staff via periodic phone calls and/or email.

Principal investigators will have the opportunity to request the support they’d like for their study in the PeDRA Study Application form. The support provided to each PeDRA Study will be mutually agreed upon between the principal investigator and PeDRA staff with oversight and approval from the PeDRA Studies Committee. Support may or not match the requests made in the application. By default, certain study types will be entitled to certain support benefits. For example:

  • Surveys will be eligible for dissemination by email to the PeDRA and/or SPD email lists.
  • Studies will be eligible for centralized research coordinator support and Study Support Grants

For additional information on the support provided to PeDRA Studies or surveys please review our Research Toolkit and Survey Policy.

How to apply for a PeDRA Study or Survey:

FOR STUDIES: Review the PeDRA Study RFA and complete the Online PeDRA Study Application.

FOR SURVEYS: Review the PeDRA Survey Policy and complete the Online PeDRA Survey Application.

All application will be reviewed by the PeDRA Studies Committee and notification sent within six weeks.

Active PeDRA Studies and Research Grants

Cross-Cutting

An Examination of the Dermatologic Needs of Sexual/Gender Minority Youth

An International Study to Develop A Patient-Reported Outcome Measure for Scars (The SCAR-Q), and to Determine the Psychosocial Impact of Scarring

COVID Acral Ischemia/Perniosis in children

The Burden of Pediatric Skin Disease — the “Big Study”

Birthmarks

Assessment of current practices in management of infantile hemangioma

Examining How Virtual Reality Improves Children’s Coping During Dermatologic Procedures

Genomic and Non genomic Causes of Segmental Pigmentation Disorder

Investigation of Somatic Mosaicism in Cutaneous Vascular Anomalies and Related Syndromes

Investigation of Somatic Mosaicism in PHACE Using Next-Generation Sequencing

PHACE Risk Based on Clinical Characteristics of Large Facial Hemangiomas: A Retrospective Cohort Study

Retrospective Cohort Study of Ulcerated Hemangiomas

Topical Sirolimus for the Treatment of Vascular Anomalies

Towards a precision-based treatment for facial port wine birthmarks


Genetic Skin Disorders

Access to Genetic Testing for Epidermolysis Bullosa

Characterization of Wound Microbes in Epidermolysis Bullosa

Epidermolysis Bullosa Clinical Characterization and Outcomes Database (CCOD)

Esophageal Strictures in Epidermolysis Bullosa Patients: Incidence, Management Strategies and Patient Outcomes

Gene Discovery and Genetic Diagnosis in Inherited and Mosaic Skin Disorders

Gorlin Syndrome (Basal Cell Carcinoma Nevus Syndrome) Clinical Registry and Genotype-Phenotype Correlation Study

Guidelines for Retinoid Use in Ichthyosis and other Disorders of Cornification

Patient-reported medical needs of adults with EB – Survey Study

Primary disorders of keratinization (DOK): Mutations and novel gene discovery


Inflammatory Skin Diseases

A Pilot Study to Assess the Impact of a Validated Illustrated Eczema Action Plan on Pediatric Patients

Antibiotic/Antimicrobial Resistance in Atopic Dermatitis

Atopic Dermatitis: An Assessment of Lesional Morphology by Race/Ethnicity

Characterization of Lipoprotein Composition and Function in Pediatric Psoriasis Before and After Treatment

Developing an Outcome Measure for Morphea Disease Activity

Development of a Pediatric Lichen Sclerosus Grading Scale

Discovering the Immune Phenotype of Morphologic Subsets of Atopic Dermatitis at the Single Cell Level

Expanding Access to Severe Acne Care for Navajo Adolescents Through Education

Fecal Microbiome in Alopecia Areata

Genetic Variations in Non-coding Regulatory Regions in Linear Morphea

Guidelines for Use of Methotrexate in Pediatric Inflammatory Skin Diseases

Hidradenitis Suppurativa in Pediatric Population

Investigating Constitutive and Cell-Driven Fibroblast Activation in Pediatric Morphea

Investigation of Pediatric Onset Discoid Lupus

Longitudinal Characterization of Pediatric Morphea

Mapping Morphea: Toward a Better Understanding

North American Study of Pediatric Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis: Setting Diagnostic Criteria, Systematic Review and Retrospective Cohort Analysis Comparing Outcomes of Common Treatments

Pediatric Contact Dermatitis Registry Using New Baseline Series for Children

Pediatric Psoriasis Comorbidity Screening Guidelines and Implementation and Education via an Electronic Platform

Psoriasis and psoriasiform reactions in children receiving anti-TNF medications

Quality of Life of Parents with Children with Alopecia Areata

Retrospective Review of Topical Immunotherapy for Alopecia Areata

Studying Topical Adherence in Atopic Dermatitis: What We Can Learn from Positive Outliers

Sun Protection for Pediatric Rheumatology Patients

Systemic Treatment of Atopic Dermatitis

The Relationship between the Cutaneous Microbiome and Skin Barrier in Infantile Atopic Dermatitis

Understanding Racial/Ethnic Disparities in Health Care Utilization for Childhood Atopic Dermatitis

Utilization of the Topical Steroid Volume Calculator and its Effect on Atopic Dermatitis Clinical Outcomes


Neonatal Skin

Characterization of skin scarring in former premature infants

Evaluation of skin care practices in the neonatal ICU setting

Management of afebrile neonates with pustules

Unraveling Determinants of the Early Cutaneous Microbiome


Skin Tumors and Reactions to Cancer Therapies

Chronic Graft versus Host Disease

Consensus-based recommendations for management of pediatric Mycosis Fungoides: the ARMFUL (AppRoach Mycosis FUngoides in chiLdren) study

Cutaneous Findings in Children Receiving MEK and BRAF Inhibitors

Dilute bleach compresses to reduce the severity of radiation dermatitis in children with cancer

Fatal Pediatric Melanoma Retrospective Study

Keratinocyte Carcinoma in Pediatric Solid Organ Transplant Patients

Melanoma and nonmelanoma skin cancer in children and young adults

Patient education for children at risk for skin cancer

Preventative Skin Care for Children Undergoing Targeted CNS Tumor Therapy

Retrospective and Prospective Evaluation of Pediatric Cutaneous Mastocytosis

The impact of dilute bleach compresses on the incidence and severity of radiation dermatitis

What does a pediatric BAP1 inactivated melanocytic tumor (BIMT) look like?


Completed PeDRA Studies and Research Grants

Dermatitis and the Microbiome

Developing a Guidance Document for Industry on New Therapeutic Agents for Atopic Dermatitis in Children and Adolescents

Exploring the Cutaneous Microbiome in Premature Neonates: A Pilot Study

Is Routine ECG Necessary Prior to Initiation of Propranolol for Treatment of Infantile Hemangiomas?

Multicenter Retrospective Review of Beta Blocker Use in Young, Small, and Pre-term Infants for Infantile Hemangioma

Practice-based differences between pediatric dermatologists and rheumatologists treating children with discoid lupus

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