• Skip to main content
  • Skip to footer

PeDRA

Pediatric Dermatology Research Alliance

  • DONATE
  • Pay 2023 Membership Dues
  • Join PeDRA
  • Login
MENUMENU
  • Contact Us
  • For Patients & Families
        • Patient Support
        • Patient Education
        • Community Spotlight
        • Play Eczema Counts Now!
        • Patient Advisory Committee
        • Find a Pediatric Dermatologist (from SPD)
        • Parents, advocates, and patients over the age of 18 with a direct connection or significant interest in childhood skin disease or pediatric dermatology research are encouraged to join the PeDRA network for free as Community Members.

          Apply Now!

  • Education and Events
        • Virtual Education
        • PeDRA Podcasts
        • Points of Discussion Podcast
        • Mentorship Program
        • SPD/PeDRA Journal Club
        • 2022 PeDRA Annual Conference
        • Dash for Discovery Fun Run/Walk
        • Early Investigator Support
        • Play Eczema Counts Now!
        • Events Calendar
        • Save the Date! The 2023 PeDRA Annual Conference will be held November 9-11, 2023 at the Westin Buckhead Atlanta in Atlanta, GA.

  • Research
        • Grants and Fellowships
        • Resources for Researchers
        • Survey Application
        • Study Application
        • Research Areas
        • Publications
        • Now accepting applications for the Emerging Investigator Research Grants Program and Research Fellowships Program.

  • About
        • Mission & Vision
        • Leadership & Staff
        • Annual Reports & Financials
        • News Archive
        • Our Supporters
        • Our Membership
        • Our Committees
        • Getting to Know You
        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

  • Member Login

PeDRA Studies

By creating a collaborative network of researchers, PeDRA multiplies the power of individual scientists and enables them to work to together to tackle important questions and gaps in knowledge and therapeutics for pediatric skin diseases. Multicenter studies that are underway are listed below, with multiple other studies in planning phases. We welcome additional investigators and input!


Starting a PeDRA Study or Survey

PeDRA Studies and Surveys may be overseen by any active PeDRA member (the principal investigator) working in collaboration with at least one other investigator on a research study or survey relevant to the field of pediatric dermatology. The principal investigator must be a PeDRA member, but it is not a requirement that any other investigator be a member. Investigators may reside at either the same institution or at different institutions, however at least one investigator must reside at an institution within the United States, Canada, or Mexico. The same individual can submit an application on behalf of multiple studies, but only one application is allowed per study. Principal investigators must be willing to agree to ongoing communication with PeDRA staff via periodic phone calls and/or email.

Principal investigators will have the opportunity to request the support they’d like for their study in the PeDRA Study Application form. The support provided to each PeDRA Study will be mutually agreed upon between the principal investigator and PeDRA staff with oversight and approval from the PeDRA Studies Committee. Support may or not match the requests made in the application. By default, certain study types will be entitled to certain support benefits. For example:

  • Surveys will be eligible for dissemination by email to the PeDRA and/or SPD email lists.
  • Studies will be eligible for centralized research coordinator support and Study Support Grants

For additional information on the support provided to PeDRA Studies or surveys please review our Research Toolkit and Survey Policy.

How to apply for a PeDRA Study or Survey:

FOR STUDIES: Review the PeDRA Study RFA and complete the Online PeDRA Study Application.

FOR SURVEYS: Review the PeDRA Survey Policy and complete the Online PeDRA Survey Application.

All application will be reviewed by the PeDRA Studies Committee and notification sent within six weeks.

Active PeDRA Studies and Research Grants

Cross-Cutting

An Examination of the Dermatologic Needs of Sexual/Gender Minority Youth

An International Study to Develop A Patient-Reported Outcome Measure for Scars (The SCAR-Q), and to Determine the Psychosocial Impact of Scarring

COVID Acral Ischemia/Perniosis in children

Effects of IBAT inhibitors on itch in pediatric liver disease patients

Investigating the role of Staphylococci in Pediatric Skin Disease

N-Acetylcysteine for Habit – Based Cutaneous Conditions: A Review of Real-World Use in the Pediatric Population

Birthmarks

Assessment of current practices in management of infantile hemangioma

Biomarkers of Neurovascular Complications in PHACE Syndrome

Capillary Malformation-Arteriovenous Malformation Syndrome Guidelines

Examining How Virtual Reality Improves Children’s Coping During Dermatologic Procedures

Genomic and Non genomic Causes of Segmental Pigmentation Disorder

Investigation of Somatic Mosaicism in Cutaneous Vascular Anomalies and Related Syndromes

Investigation of Somatic Mosaicism in PHACE Using Next-Generation Sequencing

Long term outcomes and quality of life in PHACE syndrome

Multi Center Phenotype-Genotype Analysis of Vascular Overgrowth Syndromes

PHACE Risk Based on Clinical Characteristics of Large Facial Hemangiomas: A Retrospective Cohort Study

Retrospective Cohort Study of Ulcerated Hemangiomas

Topical Sirolimus for the Treatment of Vascular Anomalies

Towards a precision-based treatment for facial port wine birthmarks


Genetic Skin Disorders

Access to Genetic Testing for Epidermolysis Bullosa

Characterization of Wound Microbes in Epidermolysis Bullosa

Deciphering the “ugly duckling” – Natural history and molecular characterization of epidermolysis bullosa nevi

Epidermolysis Bullosa Clinical Characterization and Outcomes Database (CCOD)

Epidermolysis Bullosa Simplex Disease Activity and Response Tool (EBSdart): Scoring Clinical Severity and Outcomes in Epidermolysis Bullosa Simplex

Esophageal Strictures in Epidermolysis Bullosa Patients: Incidence, Management Strategies and Patient Outcomes

Gene Discovery and Genetic Diagnosis in Inherited and Mosaic Skin Disorders

Gorlin Syndrome (Basal Cell Carcinoma Nevus Syndrome) Clinical Registry and Genotype-Phenotype Correlation Study

Guidelines for Retinoid Use in Ichthyosis and other Disorders of Cornification

Online, Home-Based Epidermolysis Bullosa Patient Registry

Patient-reported medical needs of adults with EB – Survey Study

Primary disorders of keratinization (DOK): Mutations and novel gene discovery


Inflammatory Skin Diseases

A Pilot Study to Assess the Impact of a Validated Illustrated Eczema Action Plan on Pediatric Patients

Antibiotic/Antimicrobial Resistance in Atopic Dermatitis

Atopic Dermatitis: An Assessment of Lesional Morphology by Race/Ethnicity

Characterization of Lipoprotein Composition and Function in Pediatric Psoriasis Before and After Treatment

Development of a Pediatric Lichen Sclerosus Grading Scale

Discovering the Immune Phenotype of Morphologic Subsets of Atopic Dermatitis at the Single Cell Level

Expanding Access to Severe Acne Care for Navajo Adolescents Through Education

Fecal Microbiome in Alopecia Areata

Hidradenitis Suppurativa in Pediatric Population

Pediatric Contact Dermatitis Registry Using New Baseline Series for Children

Pediatric Psoriasis Comorbidity Screening Guidelines and Implementation and Education via an Electronic Platform

Psoriasis and psoriasiform reactions in children receiving anti-TNF medications

Quality of Life of Parents with Children with Alopecia Areata

Retrospective Review of Topical Immunotherapy for Alopecia Areata

Studying Topical Adherence in Atopic Dermatitis: What We Can Learn from Positive Outliers

Systemic Treatment of Atopic Dermatitis

The Relationship between the Cutaneous Microbiome and Skin Barrier in Infantile Atopic Dermatitis

Understanding Racial/Ethnic Disparities in Health Care Utilization for Childhood Atopic Dermatitis

Utilization of the Topical Steroid Volume Calculator and its Effect on Atopic Dermatitis Clinical Outcomes


Neonatal Skin

Evaluation of skin care practices in the neonatal ICU setting

Management of afebrile neonates with pustules

Neonatal Cutaneous Microbiome Predictors of Infantile Eczema

The Relationship between the Cutaneous Microbiome and Skin Barrier in Infantile Atopic Dermatitis

Unraveling Determinants of the Early Cutaneous Microbiome


Skin Tumors and Reactions to Cancer Therapies

A Multi-Center Retrospective Cohort Study on the Utility of Ancillary Studies in the Risk Assessment and Management of Spitz Nevi, Atypical Spitzoid Tumors, and Spitzoid Melanoma in the Pediatric Population

Beyond the phenotype – A targeted sequencing study to identify the spectrum of genetic mutations in pyogenic granulomas

Characterizing the Cutaneous Late Effects in Pediatric Hematopoietic Stem Cell Transplantation Recipients

Chronic Graft versus Host Disease

Consensus-based recommendations for management of pediatric Mycosis Fungoides: the ARMFUL (AppRoach Mycosis FUngoides in chiLdren) study

Cutaneous Findings in Children Receiving MEK and BRAF Inhibitors

Dilute bleach compresses to reduce the severity of radiation dermatitis in children with cancer

Fatal Pediatric Melanoma Retrospective Study

Hypopigmented mycosis fungoides True lymphoma or T-cell dyscrasia: A Retrospective and prospective cohort study

Keratinocyte Carcinoma in Pediatric Solid Organ Transplant Patients

Melanoma and nonmelanoma skin cancer in children and young adults

Noninvasive Molecular Diagnostic Tests for Pediatric Pigmented Lesions

Patient education for children at risk for skin cancer

Pilot study of novel therapy for the treatment of disfiguring congenital melanocytic nevi

Preventative Skin Care for Children Undergoing Targeted CNS Tumor Therapy

Retrospective and Prospective Evaluation of Pediatric Cutaneous Mastocytosis

The impact of dilute bleach compresses on the incidence and severity of radiation dermatitis

What does a pediatric BAP1 inactivated melanocytic tumor (BIMT) look like?


Completed PeDRA Studies and Research Grants

Dermatitis and the Microbiome

Developing a Guidance Document for Industry on New Therapeutic Agents for Atopic Dermatitis in Children and Adolescents

Exploring the Cutaneous Microbiome in Premature Neonates: A Pilot Study

Is Routine ECG Necessary Prior to Initiation of Propranolol for Treatment of Infantile Hemangiomas?

Multicenter Retrospective Review of Beta Blocker Use in Young, Small, and Pre-term Infants for Infantile Hemangioma

Practice-based differences between pediatric dermatologists and rheumatologists treating children with discoid lupus

Footer

  • Our Membership
  • For Patients
  • For Researchers
  • Governance Policies
  • Financial Conflict of Interest Policy
  • Jobs at PeDRA
  • Facebook
  • Instagram
  • LinkedIn
  • Twitter
  • YouTube
Sign up to receive emails from PeDRA
Join PeDRA
Donate

Copyright © 2023 · Pediatric Dermatology Research Alliance (PeDRA) · All Rights Reserved. · Privacy Policy