• Skip to main content
  • Skip to footer

PeDRA

Pediatric Dermatology Research Alliance

  • DONATE
  • Pay 2023 Membership Dues
  • Join PeDRA
  • Login
MENUMENU
  • Contact Us
  • For Patients & Families
        • Patient Support
        • Patient Education
        • Community Spotlight
        • Play Eczema Counts Now!
        • Patient Advisory Committee
        • Find a Pediatric Dermatologist (from SPD)
        • Parents, advocates, and patients over the age of 18 with a direct connection or significant interest in childhood skin disease or pediatric dermatology research are encouraged to join the PeDRA network for free as Community Members.

          Apply Now!

  • Education and Events
        • Virtual Education
        • PeDRA Podcasts
        • Points of Discussion Podcast
        • Mentorship Program
        • SPD/PeDRA Journal Club
        • 2022 PeDRA Annual Conference
        • Dash for Discovery Fun Run/Walk
        • Early Investigator Support
        • Play Eczema Counts Now!
        • Events Calendar
        • Save the Date! The 2023 PeDRA Annual Conference will be held November 9-11, 2023 at the Westin Buckhead Atlanta in Atlanta, GA.

           

          Listen to PeDRA’s newest podcast series, Industry 101!

  • Research
        • Grants and Fellowships
        • Resources for Researchers
        • Survey Application
        • Study Application
        • Research Areas
        • Publications
        • Now accepting applications for the Emerging Investigator Research Grants Program and Research Fellowships Program.

  • About
        • Mission & Vision
        • Leadership & Staff
        • Annual Reports & Financials
        • News Archive
        • Our Supporters
        • Our Membership
        • Our Committees
        • Getting to Know You
        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

  • Member Login

PeDRA and the National Eczema Association Receive Collaborative Engagement Award from PCORI

January 19, 2022 By Mike Siegel

January 19, 2022 – PeDRA and the National Eczema Association (NEA) have been approved for a $250,000 funding award through the Eugene Washington PCORI Engagement Awards program, an initiative of the Patient-Centered Outcomes Research Institute. The award will support a project titled “Making it Count: Using Gamification to Enhance Childhood Eczema PCOR and CER”. Working as equal partners, NEA and PeDRA will launch a series of virtual and in-person activities to drive education and engagement of patients, families, and researchers around the management of childhood eczema and the conduct of meaningful patient-centered outcomes research and comparative effectiveness research.

Nearly 10 million U.S. children under the age of 18 are affected by eczema, with one-third affected by moderate-to-severe disease. Despite recent therapeutic advances, the burdens on these patients and their families can be significant, and many important research questions remain unanswered. The already strong partnership between NEA and PeDRA has evolved as activities in the field have increased and, in addition to the award from PCORI, includes the co-funded Childhood Eczema Challenge Grant, which is entering its third annual cycle in 2022.

The PCORI Engagement Award will be run under the direction of Co-Project Lead and PeDRA Executive Director Michael Siegel, PhD and Co-Project Lead and NEA VP of Scientific and Clinical Affairs Wendy Smith Begolka, MBS. Over the course of the two-year award period, NEA and PeDRA will collaborate on a novel virtual educational curriculum directed at a diverse stakeholder audience and gamified approach to learner engagement. It will include real-world activities at the planned in-person Eczema Expo and PeDRA Annual Conference, and virtual education using the NEA Research Ambassador platform and PeDRA Research App.  

“We are so excited to be embarking on this important project with PeDRA and grateful for the support from PCORI.” said Julie Block, president and CEO of NEA. “The project will be carried out at an opportune time, as the list of FDA-approved eczema treatments is growing, and the need for research to support informed decision-making and direct future research investments is becoming increasingly important.”

Near-term goals of the award include increasing competence in patient-centered outcomes research and knowledge of emerging pediatric eczema therapies for the patient and researcher communities. The project’s long-term goal is to influence research that supports shared decision-making for patients and health care providers and to improve quality of life and long-term health outcomes for patients. In pursuing these goals, the award directly furthers the missions and strategic priorities of both NEA and PeDRA. 

For more information on the PCORI Engagement Award, visit https://www.pcori.org/research-results/2021/making-it-count-using-gamification-enhance-childhood-eczema-pcor-and-cer. This project and the other projects approved for funding by the PCORI Engagement Award Program were selected through a highly competitive review process in which applications were assessed for their ability to meet PCORI’s engagement goals and objectives, as well as program criteria.

About the National Eczema Association (NEA)

Founded in 1988, NEA is the largest, 501(c)(3) non-profit, US patient advocacy organization serving people affected by eczema. NEA is the driving force for an eczema community fueled by knowledge, strengthened through collective action and propelled by the promise for a better future. For more on NEA, visit https://nationalecezma.org

Filed Under: News

Footer

  • Our Membership
  • For Patients
  • For Researchers
  • Governance Policies
  • Financial Conflict of Interest Policy
  • Jobs at PeDRA
  • Facebook
  • Instagram
  • LinkedIn
  • Twitter
  • YouTube
Sign up to receive emails from PeDRA
Join PeDRA
Donate

Copyright © 2023 · Pediatric Dermatology Research Alliance (PeDRA) · All Rights Reserved. · Privacy Policy