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Patient-reported medical needs of adults with EB – Survey Study

November 10, 2019 By Mike Siegel

Principal Investigator:

Christina Boull, MD
University of Minnesota

Overview:

This survey seeks to better understand the needs of adults with epidermolysis bullosa (EB). It will be disseminated through a number of channels, including on-line via patient advocacy organization websites.

Status:

Primary outcomes have been determined. The research team is now determining secondary outcomes to pursue with the survey and a data analysis plan before launching.