• Skip to main content
  • Skip to footer

PeDRA

Pediatric Dermatology Research Alliance

  • DONATE
  • Pay 2023 Membership Dues
  • Join PeDRA
  • Login
MENUMENU
  • Contact Us
  • For Patients & Families
        • Patient Support
        • Patient Education
        • Community Spotlight
        • Play Eczema Counts Now!
        • Patient Advisory Committee
        • Find a Pediatric Dermatologist (from SPD)
        • Parents, advocates, and patients over the age of 18 with a direct connection or significant interest in childhood skin disease or pediatric dermatology research are encouraged to join the PeDRA network for free as Community Members.

          Apply Now!

  • Education and Events
        • Virtual Education
        • SPD/PeDRA Journal Club
        • PeDRA Podcasts
        • Points of Discussion Podcast
        • Mentorship Program
        • 2023 Annual Conference
        • Dash for Discovery Fun Run/Walk
        • Early Investigator Support
        • Play Eczema Counts Now!
        • Events Calendar
        • Save the Date! The 2023 PeDRA Annual Conference will be held November 9-11, 2023 at the Westin Buckhead Atlanta in Atlanta, GA.

           

           

          Explore our new educational catalog!

  • Research
        • Grants and Fellowships
        • Resources for Researchers
        • Survey Application
        • Study Application
        • Research Areas
        • Publications
        • Now accepting applications for the Emerging Investigator Research Grants Program.

  • About
        • Mission & Vision
        • Leadership & Staff
        • Annual Reports & Financials
        • News Archive
        • Our Supporters
        • Our Membership
        • Our Committees
        • Getting to Know You
        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

  • Member Login

Investigation of Pediatric Onset Discoid Lupus

November 10, 2019 By Mike Siegel

Principal Investigator:

Lisa Arkin, MD
University of Wisconsin

Overview:

This is a multi-centered, retrospective cohort study of pediatric patients with discoid lupus erythematosus (DLE). The primary aims are to:

1. Determine the cross-sectional characteristics of pediatric patients presenting with DLE;

2a. Determine the incidence of progression to systemic lupus erythematosus (SLE) in children who present with “skin-limited” DLE;

2b. Describe the clinical phenotype and disease severity of SLE in affected patients;

2c. Determine risk factors for progression of DLE to SLE;

3. Describe differences between patients with DLE seen by rheumatologists, those seen by dermatologists, and those seen by both.

The primary endpoint of the study is to determine the cumulative incidence of SLE in pediatric patients with DLE.

Status:

This study was funded as a 2017 PeDRA Team Grant and is currently underway. Data collection is complete and two manuscripts are being prepared for publication.

Participating Sites:

Filed Under: Active Studies, Connective Tissue & Autoimmune

Footer

  • Our Membership
  • For Patients
  • For Researchers
  • Governance Policies
  • Financial Conflict of Interest Policy
  • Jobs at PeDRA
  • Facebook
  • Instagram
  • LinkedIn
  • Twitter
  • YouTube
Sign up to receive emails from PeDRA
Join PeDRA
Donate

Copyright © 2023 · Pediatric Dermatology Research Alliance (PeDRA) · All Rights Reserved. · Privacy Policy