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Developing an Outcome Measure for Morphea Disease Activity

November 10, 2019 By Mike Siegel

Co-Principal Investigators:

Maria Teresa Garcia Romero, MD, MPH
National Institute of Pediatrics, Mexico City

Yvonne Chiu, MD
Medical College of Wisconsin

Overview:

Morphea is a complex condition that mainly affects children and lacks a good way to measure disease activity. This impacts the timing and choice of treatment and whether patients get better or not. Dr. Garcia-Romero and Dr. Chiu will work with expert pediatric dermatologists and patients to build and test a new tool to measure morphea disease activity. In the end, the tool will help patients and pediatric dermatologists around the world to make the best possible treatment decisions.

Status:

This study was funded through the 2018 PeDRA Research Hot Seat -A PeDRA Shark Tank. The project is currently underway with an in-person meeting planned for early 2020.

Participating Sites: