Principal Investigator:
Joyce Teng, MD, PhD
Stanford University
Overview:
This study will allow us to search for trends and relationships between participants’ specific genetic abnormalities and the types and severity of their health problems related to Gorlin Syndrome. We hope our study will provide a better understanding of this condition and will have an impact on the development of many new therapeutic strategies in Gorlin Syndrome. In this light, we plan to share the results of our study with many other clinicians who take care of children and adults with Gorlin Syndrome in the hopes of improving their care and promoting personalized medicine.
Status:
This project is complete.