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The Burden of Pediatric Skin Disease — the “Big Study”

October 11, 2019 By Brandon Weekes

 

What is the study about?

We hope to better understand the burden of skin disorders in school-age children, and how these skin disorders affect a child’s personal and social perceptions. We want to study the relationship between the burden and how severe or visible the skin problem is.

Who is this study for?

This study will enroll children ages 8 to 17 years of age with chronic and highly visible skin conditions, as determined by the physician.

Both the child and participating parent must speak English and be able to complete questionnaires about the child’s skin condition, social experiences, and quality of life.

Status:

Data collection is underway with the target of 3500 enrolled patients and parents anticipated in early 2020.

Sites:

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What will you do if you participate?

If you qualify and decide to participate, you will be asked to:

  • Complete one in-person visit at a local recruiting site
  • Complete questionnaires for both the parent (~15-20 minutes to complete) and the child (~10-20 minutes)
  • Have a brief physician-conducted clinical evaluation
  • You will receive $10 compensation

We hope that parents and children will consider completing some questionnaires to help provide these answers. Participation is entirely voluntary.

What should you do if you are interested in participating?

If you would like to learn more about this study, you can:

  • Email: NUderm-research@northwestern.edu
  • Visit the study page on ClinicalTrials.Gov
trial page
study Newsletters

Filed Under: Active Studies, Cross-cutting Research

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