• Skip to main content
  • Skip to footer

PeDRA

Pediatric Dermatology Research Alliance

  • DONATE
  • Pay 2023 Membership Dues
  • Join PeDRA
  • Login
MENUMENU
  • Contact Us
  • For Patients & Families
        • Patient Support
        • Patient Education
        • Community Spotlight
        • Play Eczema Counts Now!
        • Patient Advisory Committee
        • Find a Pediatric Dermatologist (from SPD)
        • Parents, advocates, and patients over the age of 18 with a direct connection or significant interest in childhood skin disease or pediatric dermatology research are encouraged to join the PeDRA network for free as Community Members.

          Apply Now!

  • Education and Events
        • Virtual Education
        • PeDRA Podcasts
        • Points of Discussion Podcast
        • Mentorship Program
        • SPD/PeDRA Journal Club
        • 2022 PeDRA Annual Conference
        • Dash for Discovery Fun Run/Walk
        • Early Investigator Support
        • Play Eczema Counts Now!
        • Events Calendar
        • Save the Date! The 2023 PeDRA Annual Conference will be held November 9-11, 2023 at the Westin Buckhead Atlanta in Atlanta, GA.

  • Research
        • Grants and Fellowships
        • Resources for Researchers
        • Survey Application
        • Study Application
        • Research Areas
        • Publications
        • Now accepting applications for the Emerging Investigator Research Grants Program and Research Fellowships Program.

  • About
        • Mission & Vision
        • Leadership & Staff
        • Annual Reports & Financials
        • News Archive
        • Our Supporters
        • Our Membership
        • Our Committees
        • Getting to Know You
        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

  • Member Login

Esophageal Strictures in Epidermolysis Bullosa Patients: Incidence, Management Strategies and Patient Outcomes

October 11, 2019 By Brandon Weekes

Principal Investigator:

Elena Pope, MD
University of Toronto

Overview:

Esophageal strictures are well recognized complications of patients with Epidermolysis Bullosa (EB). To date, there is very little information on the best short and long-term intervention to manage the strictures with great variability between each treating center.

This study is investigating:

1. The frequency, clinical presentation and recurrence risk of esophageal strictures in a large cohort of patients with all types of EB

2. The short and long-term response to medical and surgical interventions

3. The feasibility of doing a prospective, comparative trial based on the most successful interventions

Status:

Manuscript being prepared for publication.

Participating Sites:

Get Directions

Add Waypoint
show options hide options
Print directions Reset directions
Fetching directions......
Reset directions
Print directions

Filed Under: Active Studies, Genetic Skin Disorders

Footer

  • Our Membership
  • For Patients
  • For Researchers
  • Governance Policies
  • Financial Conflict of Interest Policy
  • Jobs at PeDRA
  • Facebook
  • Instagram
  • LinkedIn
  • Twitter
  • YouTube
Sign up to receive emails from PeDRA
Join PeDRA
Donate

Copyright © 2023 · Pediatric Dermatology Research Alliance (PeDRA) · All Rights Reserved. · Privacy Policy