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PeDRA

Pediatric Dermatology Research Alliance

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        • Save the Date! The 2023 PeDRA Annual Conference will be held November 9-11, 2023 at the Westin Buckhead Atlanta in Atlanta, GA.

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        • 2022 marked PeDRA’s 10th year of pursuing the vision of changing lives and healing children with skin disease through collaboration and discovery. Visit our 10th Anniversary Page to learn more about the origin of PeDRA and the many accomplishments during the first ten years!

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2018 Conference

EARLY INVESTIGATOR FORUM: Cultivating Collaboration through CommunicationManuscript Writing Workshop
Speaker: Drew Bixby, MA, Instructor and Writing Center Assistant Director, University of Colorado

Negotiating and Coming to Compromise
Speaker: Marsheila DeVan, Communications Specialist, Elite Communications

PLENARY SESSION: Outcomes, and Data Standards and Informatics Clinical Research: Outcomes
Speaker: Mary-Margaret Chren, MD, Professor and Chair, Department of Dermatology, Vanderbilt University Medical Center

Clinical Research: Data Standards and Informatics
Speaker: Rebecca Kush, PhD, Scientific Innovation Officer, Elligo Health Research

DINNER PRESENTATION: Connecting with our Advocacy and Industry Partners Patient-Reported Outcomes Consortium, Bringing the Patient Voice into the Drug Development Process
Speaker: Dory Kranz, NAAF Providing to Industry the Patient Perspective on End-points for Trial Development
Speaker: Holly Evans, PC Project Venture philanthropy as a Model for Injecting Funds into Disease Advocacy
Speaker: Michael Hund, EB Research Partnership

PLENARY SESSION: Basic and Translational Research Forum Basic/Translations Science: Scleroderma
Speaker: Kathryn Seraphin Torok, MD, Assistant Professor, University of Pittsburgh School of Medicine Basic/Translational Science: Regenerative Medicine (Part 1)
Speaker: Anthony Oro, MD, PhD, Eugene and Gloria Bauer Professor of Dermatology, Associate Director of the Center for Definitive and Curative Medicine, and Co-Director, Child Health Research Initiative, Stanford University

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