2018 Conference Proceedings

EARLY INVESTIGATOR FORUM: Cultivating Collaboration through Communication


Manuscript Writing Workshop
Speaker: Drew Bixby, MA, Instructor and Writing Center Assistant Director, University of Colorado

Negotiating and Coming to Compromise
Speaker: Marsheila DeVan, Communications Specialist, Elite Communications

PLENARY SESSION: Outcomes, and Data Standards and Informatics

Clinical Research: Outcomes
Speaker: Mary-Margaret Chren, MD, Professor and Chair, Department of Dermatology, Vanderbilt University Medical Center

Clinical Research: Data Standards and Informatics
Speaker: Rebecca Kush, PhD, Scientific Innovation Officer, Elligo Health Research


Baseline Features and Outcomes of Pediatric-onset Discoid Lupus Erythematosus: Interim Data Analysis of a Multicenter Retrospective Cohort Study
Presenter: Lisa M. Arkin, University of Wisconsin School of Medicine & Public Health/American Family Children’s Hospital
Genotype-Phenotype Correlation of Vascular Stain; When a Difference Makes a Difference
Presenter: Olivia M.T. Davies, Medical College of Wisconsin
Retrospective Cohort Study of Ulcerated Infantile Hemangiomas
Presenter: Esteban Fernandez Faith, MD, Nationwide Children’s Hospital
Evaluating the Safety of Oral Propranolol in Patients with PHACE Syndromeg
Presenter: Gerilyn M. Olsen, Medical College of Wisconsin
Characterization of Skin Cleansing and Topical Product Use among Epidermolysis Bullosa Patients: An Update
Presenter: Leila Shayega, Columbia University, College of Physicians & Surgeons

DINNER PRESENTATION: Connecting with our Advocacy and Industry Partners

PLENARY SESSION: Basic and Translational Research Forum

Basic/Translations Science: Scleroderma
Speaker: Kathryn Seraphin Torok, MD, Assistant Professor, University of Pittsburgh School of Medicine
Basic/Translational Science: Regenerative Medicine (Part 1)
Speaker: Anthony Oro, MD, PhD, Eugene and Gloria Bauer Professor of Dermatology, Associate Director of the Center for Definitive and Curative Medicine, and Co-Director, Child Health Research Initiative, Stanford University