Patient Advocacy Organization / Support Groups


Organizations serving pediatric patients with dermatology diseases

Basal Cell Carcinoma Nevus Syndrome (BCCNS) Life Support Network

Dystrophic Epidermolysis Bullosa Association of America (DEBRA)

Epidermolysis Bullosa Medical Research Foundation (EBMRF)

Foundation for Ichthyosis and Related Skin Types (FIRST)

International Pemphigus & Pemphigoid Foundation

National Eczema Association (NEA)

National Foundation for Ectodermal Dysplasia (NFED)

National Psoriasis Foundation (NPF)

National Alopecia Areata Foundation  (PeDRA)

National Organization of Vascular Anomalies (NOVA)

Nevus Outreach

Pachyonychia Congenita (PC)



Xeroderma Pigmentosum (XP)