Patient Advocacy Organization / Support Groups

 

Organizations serving pediatric patients with dermatology diseases

Basal Cell Carcinoma Nevus Syndrome (BCCNS) Life Support Network
http://www.gorlinsyndrome.org

Dystrophic Epidermolysis Bullosa Association of America (DEBRA)
http://www.debra.org

Epidermolysis Bullosa Medical Research Foundation (EBMRF)
http://www.ebkids.org

Foundation for Ichthyosis and Related Skin Types (FIRST)
http://www.firstskinfoundation.org

International Pemphigus & Pemphigoid Foundation
http://www.pemphigus.org

National Eczema Association (NEA)
http://nationaleczema.org

National Foundation for Ectodermal Dysplasia (NFED)
http://nfed.org

National Psoriasis Foundation (NPF)
https://www.psoriasis.org

National Alopecia Areata Foundation  (PeDRA)
http://www.naaf.org

National Organization of Vascular Anomalies (NOVA)
http://www.novanews.org

Nevus Outreach
http://www.nevus.org

Pachyonychia Congenita (PC)
http://www.pachyonychia.org

PHACE
http://www.phacesyndromecommunity.org/

Vitiligo
http://avrf.org

Xeroderma Pigmentosum (XP)
http://www.xps.org